Are there any doctors in the U.S. who specialize in b12 deficiency? I'm a middle-aged woman who had previously been in excellent health, and have a rather complicated case. Last July, I began to have occasional numbness in my arms and legs. In August, I had a couple of nights of terrifying electrical charges going through my body, which finally sent me to the doctor. I was diagnosed with low b12, but because I'd been taking 5,000 b12 pills/day for a couple of weeks, it was just barely low. (I figured I had b12 deficiency, because I was diagnosed with it seven years ago, took the typical series of daily injections for a week, and made an easy, full recovery.)
Since the terrible nights in August, I've had daily and nightly (though not constant) numbness in my arms and legs. I'm currently waiting for DNA test results, and I've had dozens of other medical tests (tons of blood draws, several MRI's, multiple nerve tests, skin biopsies, etc) which have all shown good results, and have taken daily hydroxocobalamin shots for months (I shot 1,000/day intramuscularly for 3 months, and now do 500/day subcutaneously.) I've tried several times to taper off the injections, but my symptoms always quickly worsen.
I've seen some improvement in the daily (though not constant) numbness in my hands and legs, but my improvement seems to be plateauing. I also have an occasional second or two of dizziness a couple of times a month, and feel a rapid thumping in my chest occasionally at night, even though my pulse rate is good. Aside from these symptoms, I feel fine most of the time.
I'm in the NYC metro area, and have gone to a couple of neurologists, including one at the Columbia Neurological Institute in NYC, but they know less about b12 deficiency than I do (I've done a lot of research, have read the great book "Could it B12", visited lots of websites, etc.) Unfortunately, Columbia doesn't have any b12 experts on staff. I'm really hoping someone here can point me to a doctor in the U.S. who specializes in b12 deficiency...
Thanks so much to everyone in this wonderfully helpful group. I really appreciate your time and concern.