I have un- (or badly) recognised B12 issues. Only this evening while trying to find some help on why I could still have problems even although I get 4-weekly injections, I discovered Functional B12 Deficiency. I don't know if I've somehow missed this (God knows how!) or it hadn't been given a name when I first did my research, but I suspect this could be my problem as it seems to fit to a T.
I have trigeminal neuralgia and have been in remission for over a year. However recently it's started to come back. I have also developed a numb leg problem and have various other odd little neurological tweaks that indicate all might not be well with me neurologically.
I had tremendous difficulty getting my doc to treat me for B12 (for the TN) but when I was finally treated with loading doses it worked really quickly. He, however, still does not believe it was relevant (he thinks it's a placebo effect).
I've discovered that if I have functional deficiency, MMA & homocysteine tests may actually be useful, despite my B12 treatment, as in they should show as elevated if I have the condition. Is this correct? Also, can my GP have these tests run or would I have to be sent to a hospital/consultant? If so, what do I ask for by way of a dept? Is it haematology who would do this, or neurology? Believe it or not, when I was first seeking treatment I asked my doc for these tests and he'd never heard of them and told me he couldn't get them for me. I have a horrible feeling if I'd had them done then all might have been revealed - although whether they'd have been acted on is still very open to debate!
I am seeing my doc (a different one!) in a couple of days to ask if I can go back to alternate day injections for a month as a preferable treatment to try before going back on Carbamazepine, so if anyone can give me any tips for what to ask for re MMA testing, I'd be grateful. I'd also appreciate any links for further reading on functional B12 deficiency if anyone has experience of this. Thanks!
P.S. I should just mention that I told the last neurologist I saw that B12 had helped me and he was beyond disinterested, so if it's a neurologist who does this testing I'm more than a little anxious about how to convince them I need this done!