I am back for some more advice but first I will give you a brief history; In march of this year I was finally diagnosed with B12 deficiency and given the recommended 6 loading doses within the 2 week period. However at no point did the doctor try to establish why I maybe B12 deficient other than running the IF test and that only happened because one of the nurses corrected him.
Unfortunately my IF test came back as negative so I was seen as cured and sent on my merry way. Three months later I was back at the doctors due to pins and needles in my hands, feet and face, my memory was starting to fail, I had the shakes and the fatigue had returned. I was sent for another B12 test but as it came back at B12 = 388ng (180-900) and my Serum folate = 3.8 (4.0-20.0). As a result I was given a prescription for folic acid for 2 months and informed my B12 was fine.
I didn’t take the folic acid due to the conclusion of a heated discussion on here. I just stuck it out for a couple more months and went back to the doctors but this time saw a different doctor in the practice. By this time my migraines, that I take the anticonvulsant- Topiramate for as a prophylactic had become unmanageable and I am now getting them every day. He re-did a full blood panel; My B12 is now 290ng folate 3 and ferritin is 38. He said I am still within range so my symptoms cannot be due to B12 deficiency. I have now had an ECG, result; fine, Cranial CT scan results; fine and I have an appointment with a neurologist on 25th February.
He too gave me a prescription for folic acid for 2 months – I haven’t taken them. I went back to see my doctor last week armed with the NICE guidelines, BNF print off and an article from the BMJ. He promised to read them and he tried to explain that he had to investigate not just B12 but other things too. I agreed that that was sensible but expressed once again that he needed to read the information I had given to him and I left.
Three days later I had a call from the receptionist at the surgery, she said that the doctor had asked her to call to book me in for a one off B12 injection. Initially I was really happy but then I thought about it and now I’m not because it means I will spend longer in this grey area suffering with all these symptoms but my test results coming out in the ‘normal’ range…………….
So my question is; what do I do now?
Sorry that’s a lot longer than I thought it would be.