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Pernicious Anaemia Society
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RNY gastric bypss

recently had endoscopy and told ive got multiple clean ulcers around the cut line,also biopsy for hpylori wich said negative..ive had a bloodtest and results say that all is ok.i cant understand how i can fix iron deficiency without even taking any.ive just about lost everybody close to me due to mood swings...my memory is destroid,and am struggling to see where i had my life saved...if i could go back to intesive care and start again,ad just give up...dont see much point of any of it when its been made impossable..

4 Replies

Hi there! You mustn't feel like that. Are you in the UK? I think you should insist on being explained to why if you need the iron in the blood why you are not having them. I believe after this procedure you need certain vitamins for life, as your eating very little your body's taking none. If you don't feel comfortable asking face to face and have a wait to see them, ring the doctors sectary and say how your feeling and you need something done now. If no good go to a& e tell them about you wish you hadn't made it cause of how ill your feeling. It cold be a bug that s been picked up.

I know some one that had I think what you had done after a few days and ended back there poorly for weeks. She had to have corrective surgery to mend it. I believe she also got alot of compensation as the procedure should not have been done as her blood was not write before hand. As it was privately done they went ahead to fill the bank account. Don't leave these symptoms.

Your bound to be in a low mood after all that. I think anti depressants to. As you sound like you've hit the bottom.

If your friends don't want to know so be it weren't worth your worry. Family though would never forgive themselves if they new how you feel.it isn't hopeless. Just put your foot down. I hope you feel better soon x


I had that surgery. You need to take liquid iron. From my research 12 to 15 years post op we lose the ability to absorb iron from the tablets. When I had my surgery I was told I would need to have B12 inj twice a week, along with taking iron, Vit E, Beta Carotene, Vit C and Zinc. I've also had stomach issues and have been on Nexium etc for years. I've recently started taking DGL instead and finally have total relief. I volunteered to have my surgery undone but they said I'm too weak and wouldn't survive. I think your memory is the beginning of B12 Def, along with your mood swings etc. Did they tell you your anemia was pernicious anemia? That's what it seems everything is pointing to.


Hello flatoutcooper

I'm so sorry and shocked that you still have not been treated for PA/B12 deficiency after gastric surgery some while ago.

Would you be able to get someone to accompany you to your surgery, but first write or email the following extracts from latest BCSH Guidelines and BMJ, which your doctor should be made aware of as this is responsible for the neurological changes happening to you - anger, changes in personality etc. This happened to someone close to me, who was eventually found to have severe B12 deficiency and the family had to be very assertive and persistent in asking for treatment. You could also try ringing the Pernicious Anaemia Society, who are known to be very helpful - pernicious-anaemia-soci... 01656 769467



"h) Poor absorption due to gastrointestinal surgery or disease

(1) Patients who have had gastric surgery have a high prevalence of cobalamin deficiency (Sumner, et al 1996), and more recently, treatments for obesity including gastric banding and gastric bypass surgery also lead to cobalamin deficiency (Ledoux, et al 2006, Vargas-Ruiz, et al 2008). Recommendations for prevention and treatment of nutritional deficiencies have been published(Ziegler, et al 2009), which include monitoring of levels and prophylactic supplementation. Oral treatment may not be adequate(Donadelli, et al 2012) and lifelong compliance may be poor (Edholm, et al 2013). "

Also BCSH guidelines:

"The BNF advises that patients presenting with neurological symptoms should receive 1000 ug i.m. on alternate days until there is no further improvement".

Here are some more links you may not have seen, which you could try emailing to your GP:

b12deficiency.info/signs-an... (templates for writing to your GP)

ukneqas-haematinics.org.uk/... :


The above latest BMJ research document is supported by many research papers and has a useful summary. Under page 2 - Causes of B12 Deficiency- Impaired absorption - it mentions gastrectomy.

It also tells GP that, once b12 treatment is started, the test results don't mean anything and blood levels are not reflective of how effective the treatment is - it is the clinical condition of the patient that matters....


I'm sorry - Reply has come out without paragraphs and won't let me edit it.

very best wishes for a good outcome.


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