When I take supplements they work for a few days and then stop working, if I swap to a different type of B12 supplement I feel good again for a few days and then have to swap again. I have been tested for H Pylori and it was negative, I also have parietal cell antibodies.
I don't know if I would have the same problem with the injections but I would like to try it. She says she can't give them to me as my levels are too high. My first test in Jan was just over 200 but I had been taking multivitamins which had B12 in. My next was in May and was 508, had been supplementing on and off. then I had one last week which was over 1000 and I had been supplementing a lot, 5000 a day. If I go a few days without taking any B12 the symptoms come back, fatigue, numbness, breathlessness, brain fog etc.
If I hadn't been supplementing my levels would have been low and she would have given me injections, but she says without a test result showing they are low she wouldn't be covered if something went wrong, like I had a reaction to the injections.
I tried not taking B12 for a couple of weeks to get an accurate test but it's so hard when it makes you feel so bad.
My doctor is trying to help me but admits she knows very little about B12 deficiency. She wants to refer me but isn't sure who I should see, so she is referring me to general medicine. As I keep finding out things and telling her, she has asked me if I can find someone local to us (in South East Wales) who is a specialist in B12 deficiency so she can refer me to them. Is there anyway I could find someone?