Hi! Apologies in advance for my long post!!! l am a 35 year old Irish female who has lived in Canada for the past 5 years. In January 2015 l was diagnosed with coeliac disease and pernicious anaemia. My coeliac disease was undiagnosed for years therefore leaving me with severe villi damage and malabsorption. My iron (ferritin?) was 3 and was B12 was non-existant. l was put on one a week (for three weeks) iron infusions and once weekly 1000mcg of B12 for four weeks with B12 injections to be continued once monthly thereafter. l am also on 3000ui (down from 6000ui) of Vitamin D daily which is taken orally as per the GI's instructions. l suspected malabsorption was continuing as my stools have been bulky, slimy and often foul smelling (sorry!). Every month coming up to my B12 injection, l have felt tightness in the chest, struggles to catch my breath and overall fatigue which generally improved after l got the shot. However, in mid-July l starting noticing a loss of coordination and power in my right hand (especially the outer three fingers). This then spread to my right wrist, elbow and shoulder. lt felt as if my arm was going dead. It continued on to my left side which then resulted in pins and needles, heavy limbs, numbness, excessive brain fog. It's been two weeks and all l can describe is an avalanche of symptoms. l honestly feel as if l've been hit by a bulldozer and the doctors are unsympathetic. l went to the Emergency Dept last week as my symptoms were escalating and they ordered an immediate brain MRI. The doctor on call was worried it was MS and l was suspicious as l'm displaying so many similiar and worrying symptoms. Thankfully it came out clear. Though l don't know if that's conclusive proof that l don't have it? Now l have concentrated pain in my lower back, my appetite is poor, l'm losing weight, intermittent pins and needles, cold hands and feet (sometimes), hip stiffness (especially right side), fatigue, difficulty concentrating, light sensitivity, brain fog so bad that l am not confident driving the car as l need power to manage the pedals and control steering. lf l mention B12 absorption to my GP, she's dismissive. l haven't a clue whats happening. She did recent B12 blood levels and l didn't get the result back so l presume it's normal. Are my neurological issues related or unrelated to my recent diagnosis? lt seems to have happened all of a sudden over the past two weeks. l had a B12 shot last week which helped alleviate some of my symptoms but they are not gone entirely. Any feedback would be greatly appreciated!
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