Parkinson's Movement
12,363 members10,986 posts

To Mannitol or not to Mannitol?

Like many of our community, you would have watched the mannitol promotion video of December 2016

This gives the impression that Mannitol can at least reduce and at best reverse symptoms. I have gone out and bought myself a pack and just started using it. I am happy to let you know results in say 2 months but was wondering if anyone else has already been down this track and what were the results?

My sceptical mind tells me that something is usually presented in this light because a researcher or merchant wants to attract funding, on the other hand, we have nothing to lose. Your thoughts and experiences are most welcome.

22 Replies
oldestnewest

I've been taking 2 tsp of Mannitol daily (according to Clinicrowd weight chart) for 2 months and have not noticed any difference. Lately, I've been reading about widespread B12 deficiency which can cause neurological symptoms and decided to try sublingual B12 for better absorption. Was surprised to find out that some of sublingual supplements have mannitol as a sweetener - could be a great combination!

5 likes
Reply

What is sublingual b12? Where do you get it pls?

Reply

I buy mine online, but it's available at health food stores.

Reply

Sublingual B12 was meant to dissolve under the tongue to bypass digestive system for better absorption.

Reply

I think that the CliniCrowd people over-hyped Mannitol in order to attract participants, and they are now paying the price. Many people tried Mannitol for a few months, and then stopped taking it when they noticed no improvement in symptoms.

Hopefully there are still a few hundred of us around the world who are still taking Mannitol daily, and completing the survey monthly.

Hopefully this will provide sufficient data for the CliniCrowd people to feel confident enough to release some initial results (early next year?).

7 likes
Reply

I totally agree with this.

Beginning my sixth month...

2 likes
Reply

Beginning my eighth.

I'm planning to continue for at least another year.

3 likes
Reply

Hi, are the results of the Mannitol-survey already publiced ??

Reply

CliniCrowd have recently released a new webinar video (36 minutes). Topics covered include background information and first results.

Reply

It does appear to have improved my condition, sleep etc. It certainly resolves constipation. I think it works best combined with something else such as N Acetyl L Cysteine. It also probably depends on they type of parkinson's you have!

2 likes
Reply

What a coinkidink! I was just asking the folks at the health food store about it, then came home to do some goo-goo-googly research. I was confused because it looks like mannitol is given via injection ... ?

Reply

Mannitol can be taken orally. It is a white powder - and has a sweet taste. I put it in Coffee with a couple of teaspoons of coconut oil.

Don't put N Acetyl L Cysteine in there though - it curdles the whole thing and make it tastes rank.

1 like
Reply

Mannitol administered through IV is for totally different purpose. It's very high in dosage and for very short term.

We are talking small daily doses, taken orally, just like plain sugar in coffee, tea, yogurt...

Reply

Hi Beckey,

To add further to what Xenos said, here is what park_bear wrote in another thread a few months ago:

" ... mannitol is infused via IV in massive quantities to prevent brain swelling in the event of a stroke. As such it can cause kidney failure due to overload trying to get rid of it. This of course is quite different than small quantities taken by mouth."

healthunlocked.com/parkinso...

Jeff

3 likes
Reply

Two month is not significant, IMHO.

1 like
Reply

Mom just finished her first month of taking it. I have noticed some small improvements like she has stood up for me several times when usually I have to pull her up. She is incontinent so it has been a struggle to change her but she is starting to open her legs for me. So we still have ups and downs. But I will take any improvements I can get. I think it’s important to signup and register with Clinicrowd to make sure you are taking the right dose for your body weight. But I have spent so much money trying to help my Mom and changing her diet. This is the cheapest thing I’ve bought for her to help her. So I will continue as it is too early anyways to tell. I bought it through Amazon. I’m taking it too. It is completely safe as long as you are taking the right amount for your body weight.

1 like
Reply

How are you feeling six months down the track? Is it worth trying?

Reply

I am feeling fine but cant put it down to mannitol, however not giving up on it yet and i have ordered another half kilo

Reply

On 1/3/018, I have started my journey with sinement and mannitol. It taste really good in my peppermint tea. Sine i normallt have problems with new meds, i wil go easy at first. I will use 1 tbsp once a day for 3 weeks. I am excited to try a new product that has come from Israel.

1 like
Reply

My husband has been taking Mannitol for just about a year and along with a few other changes, his symptoms seem to have reversed to where they were 5+ years ago. (He is 81 and was diagnosed with PD in the summer of 2004. He still works a 30 hour week.)

If you are available on Sunday at noon EST USA I wanted to invite you to participate in a webinar and listen to CliniCrowd's CEO discuss how Mannitol studies came about and the results of people with PD who are taking Mannitol and filling out the clinicrowd survey at least over 4 months. I was informed about this by Gila Madjar [mailto:gila@clinicrowd.info] who is now available to answer questions of people in US

When: Noon ET, Sunday, March 4th

Where: clinicrowd.easywebinar.live...

register on the link above and join us via your computer.

You can share the link with anyone that might be interested.

Reply

Your husband is 81 and is working 30 hours a week after 14 years of PD and this because of Manitol? It is hard to believe! Sounds more like an ad.

1 like
Reply

Hi, can one still follow the Webinar about Mannitol. ??

Reply

You may also like...