My introduction...: Hi all My name is Ian... - Cure Parkinson's

Cure Parkinson's

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My introduction...

Ianfrizell profile image
4 Replies

Hi all

My name is Ian, I'm 55 years old and have early onset Parkinson's disease. I was diagnosed in 2011, but had symptoms going back to the mid-90s. I had Deep Brain Stimulation surgery in April last year at the National Hospital for Neurology and Neurosurgery in London, and have a DBS recovery blog, which I still add to on a daily basis, which may be of interest to anyone going down that route - dbsacompletenobrainer.co.uk.

I also have a weekly vlog and produce informational/product review videos relevant to Parkinson's disease and/or DBS - this week's vlog is about mannitol and coconut oil, and their possible effect on Parkinson's disease -

youtu.be/3eiGIHAVfSw

All of my videos are available on my YouTube channel, and I welcome comments and constructive criticism.

YouTube.com/ianfrizell

Cheers,

Ian

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Ianfrizell
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Aleagles profile image
Aleagles

Hi thanks very useful. Do you have two boxes with wires?

Ianfrizell profile image
Ianfrizell in reply to Aleagles

No, both leads are connected to a single neurostimulator. See here for the setup - youtu.be/ovg6EwfNcJw

Cheers,,

Ian

Astra7 profile image
Astra7

Welcome.

Suprised you had dbs so soon after diagnosis. Why did they do it so soon?

I am 52 diagnosed a year ago.

Astra7 profile image
Astra7 in reply to Astra7

Just watched your videos so no need to reply!

Great videos and nice smile!

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