Have just finished a weeks 'boot camp' and although tired from all the physical therapy,have pushed myself to limits I never thought would be possible again.
Being on max dose of Mirapexin and Azelect the Nurologist recommended I start Sinemet.
Thanks to my wife's research we found the centre and decided that before I went down that road ,would like to see if I could improve my symptoms without levodopa and I am so glad I did.
Over the week I have been empowered to be in control of PD not PD be in control of me . With one to one Physical therapy every day,talks on physical activity,lifestyle and psychology. My balance is now 100% my gait almost normal,my step lengths equal ,im swinging my arm again and my posture is straight again.
No one did this for me I've done it myself with neuroplaticity and it really works.
We met other PWP with much worse symptoms than my own and really didn't expect to see improvement in them.
To see them empowered to walk without sticks and walk instead of being in a wheelchair was humbling they too worked well beyond what they thought they were capable of.
The easy bit is over now the hard bit begins as I return home and keep up the exercise and keep motivated.
As a couple we both learned that My wife is my wife not my carer.
She has learnt that she needs to take 2 steps back and I must take 2 forward so we remain man and wife.
Whilst I know that PD is progressive and one day I will need further medication at the moment my symptoms are not impeding my quality of life so will save the meds till it is.
For now I will live my life on the slow train, enjoying the journey keeping fit ,active stress free,living in the moment.
It's no good worrying about the past, you can't change it,and worrying about the future isn't going to change it either.