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Research Participation - research aiming to transform lives for people living with neuropathic pain

PainConcernHelpline profile image
PainConcernHelplineModeratorCommunity ChampionPain Concern
6 Replies

Researchers at the University of Aberdeen who are part of the Advanced Pain Discovery Platform [APDP] (apdp.community/ and the PAINSTORM consortium painstorm.co.uk) want to understand what it is like for you to live with Neuropathic Pain (Nerve pain).

Would you be willing to take part in a telephone interview and/or two focus groups that last around one hour each? More information can be found here: abdn.ac.uk/iahs/academic/pr...

If you are willing to help with this research and/or would like more information, please email PAINSTORM@abdn.ac.uk for more information. Participants will be compensated for their time.

Thank you!

Do you live with Neuropathic Pain? Would you be willing to help us explore what it’s like living with Neuropathic Pain? You can find out more about the research at abdn.ac.uk/iahs/academic/pr... or phone Dr Katie Allan on 01224 437426 for more information. Participants will be compensated for their time.

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SimonInEdinburgh profile image
SimonInEdinburgh

I reckon I can get you some volunteers from the CPSP group in our " Stroke Improvement Group". There's a lot of "what the daily challenge is like" there already

see:stroke.logicalmodel.net/fla...

Caio

Simon

(The Stroke Improvement Group are a loose affiliation of people who believe that stroke care (all ABI care, all chronic care!!) will be significantly improved when institutions learn how to Listen & HEAR us and embrace digital community)

SimonInEdinburgh profile image
SimonInEdinburgh

PainConcernHelpline you appear to have a broken link at the findoutmore "...More information can be found here: clickheretofindoutmo...

healthunlocked.com/redirect...

Caio

Simon

PainConcernHelpline profile image
PainConcernHelplineModeratorCommunity ChampionPain Concern in reply toSimonInEdinburgh

Hi Simon,

Many thanks for bringing this to our attention. The link should now work.

-Pain Concern Admin

Defenders profile image
Defenders

Hi, I have lived with nerve pain in my lower legs and feet for almost 10 years, from Peripheral Neuropathy. I have been diagnosed by Professor Sir Pir Mohamed, Consultant in Parmacogenetics Liverpool Royal, with PN due to the antibiotic Ciprofloxacin. This antibiotic has caused me other injuries, if you are interested, I can tell you about those further down the line.

Painstorm profile image
Painstorm in reply toDefenders

Hi Defenders. Sorry to hear about the pain you are experiencing. If you are interested in taking part in our research, please email me at painstorm@abdn.ac.uk. Thanks

Defenders profile image
Defenders in reply toPainstorm

Yes I am interested, thank you for replying. I will email you.

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