Fibromyalgia Chronic Pain

[Manukalover]

Hello my names Awhina. I'm 65 years old. Had medical concerns all my life.. But now, I can't handle it as the pain is above and beyond. I struggle to work and look after my family. Not knowing if I will wake with chronic pain is horrific for me at this time. Doctors and specialist just increase doses of medication.

[Scotsman53]

The TMS approach is highly recommended for chronic pain conditions such as fibromyalgia, it's done wonders for my CRPS. There are many resources online, one good one is tmswiki.org/forum/

[Konagirl60]

You haven’t described your pain in detail. Where is it? What movements make it worsen? What does the pain feel like? Is it burning, throbbing, cutting? Is your pain 24/7? Can you sleep ?

[Evonne02]

Hello Manukalover, Like you I have some other acute medical ailments as well as fibromyalgia, which is acute chronic pain. I have had 5 different gp practices in the last 2 years, and don't know anyone who gets help with it. Fibromyalgia is a form of arthritis and I have the other 2 main ones too. It took me at least 5 years to get diagnosed by a hospital Rheumatoligist. That was only because a gp looked at my notes & said he was fed up with me not accepting that the new pains were arthritis, so referred me to hospital. He did apologise when Fibromyalgia was duagnosed, then referred me to my local Pain Clinic who just wanted me to take an antidepressant/sleeping tablet. I now take Amitriptyline 2 hours before bed 🙄

There's Fibromyalgia groups on Facebook ., Tiktok and Instagram, and you can also join Verses arthritis which is free, as well as Fibromyalgia UK, who charge a yearly fee.

From what you've posted it sounds like you should be on ESA (Employment Support Allowance - only get the one based on your tax). You should also be getting Pip (Personal Independence Allowance.... And, not working as if you keep working, it will be exacerbating your symptoms and causing you harm, or further harm.

You can also call your local Adults Social Services and ask for an assessment of all needs.

In the meantime whilst you decide, please ask to speak to the o/t, physio or counselling group/service of/attached to your employer. If not, seek out what your choices are via a Trades Union.

I sincerely wish you the best and hope you get some more help asap. All the best 😊