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Pain Concern
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chronic pain

hey guys i suffer alot from pain and on some serous medication daily, i have had this pain since 2015. what am trying say is there anyone who has similar pain can a ask what medication helps u? me & doctors are running out off options and we are going down 1 road and a really dont want to try it.

thank you in advance xx

42 Replies
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Welcome aboard.

You don't say what causes your pain or what meds you take.

What suits one person will not suit another.

So if you can expand a bit there may be something we can advise.

x

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hi sorry its nerve pain since i had an operation in 2015, the medication am on are tramadol x8 50 mg pre-gablin 100mg x3 cbd oil 300mg valium 10mg x

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Quite a dose and in my opinion far too much.

Presume you are buying CBD yourself? That alone should be enough without any other meds.

Have you thought about coming off Tramadol and Valium? Both are highly addictive long term. Research has shown long term use of prescription opiates to have no effect on pain.

x

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hi ano thats what am saying i have been on all these meds for 3 year. i have cut some pain killers down me & my doc keep an eye on things so a dont get addicted to them. the chronic nerve damage is severe pain that no amount off painkillers take it away. and yea a buy the cbd my self amd doesnt make a difference neither does the meds but it does edge it for me. yea ano even from the very start didnt do much part from edge it. x

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OK well that is exactly what research proves.

Have you been to a pain clinic? Or attended pain management course? They teach you how...to manage your pain with alternatives including physio,. acupuncture and pacing.

Is your pain in your spine? If so spinal procedures, not surgery, can be very effective.

x

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ok thats fine understand your entitle to your opinion what a don't get if thats case why hasn't my doc not took me off them. he recommends me to be on these for the near future yea been to pain clinics etc. the word there using for my lower pelvic pain is endometriosis which there is no cure for. part from more surgery which am going against as can get worse x

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Sorry it wasn't an opinion..it was based on experience and well researched evidence.

If your GP wants you to stay on these meds which are not working then you must tell him. Maybe they are helping a bit and you would be worse without them. Are you getting CBD from a good supplier? That can make a huge difference as it isn't cheap to get a good one.

x

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sorry my mistake iam going to speak with my gp this week cuz all this meds cant be doing my insides any good, yea iam getting it from licensed store so far i have spent £35 on the 300 mg. can a ask what u have took to help yourself x

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Good...tell GP.

I live in the Canary Islands where cannabis is widely available...with restrictions.

So I find it extremely valuable for my pain

x

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thank you how much do u pay? is it for the oil or the actual stuff

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The real stuff....I have friends!!

The CBD which comes from mainland Spain is around £25 for a small bottle. That too is excellent as is the salve but obviously has no thc so legal in UK

x

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You are entitled to good pain meds and professionals know how to prescribe and will keep an eye on those Things. My own situation is while I'm not addicted to the morphine it appears my body is. Like you I have cut well back on the original prescribed dose and from ten a day I'm now on one. Each time I try to stop that one my body goes crazy and I end up in Ed where they administer it to get pain and body under control. My thoughts on cbd was to introduce that and then come off that one slow release morphineI take at night. I will still use the quick acting when I need it which is usually if I have a lot of walking to do.

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Thank you they were going to put me on morphine but I do feel I will regret it. My gp is watching me and he is careful checking what meds he is given me. But a do think it's best I do cut them down for good now in try some weed but in sure as a drive an a will have to give up my car. Sorry to hear about you suffering this pain too and thank you for your input also

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Hi shorty89, I too have nerve pain, I have peripheral nerve damage in both feet and legs up to the knee. I take gabapentin which is similar to pregablin and I also take slow release morphine. I have sevredol to use as a top up fast acting morphine. I'm wanting off most of those drugs because of the addictive nature of them. Cbd oil is only just about to be decriminalized here and I'm very keen to try it. Can I ask if you have found cbd has done anything to help your pain?

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Hi a did buy and oil I have been on it for a few months and a would recommend it hun. It doesn't take it away completely but does have an effect. I was on 200 mg but I then went to 300 mg which I do think is better for nerve pain a will be moving up to 500mg x

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Hi Tramadol and Valium will not help nerve pain, I’m going through a similar problem with pain myself.

I’m attending a pain clinic this week, I’m on morphine, (zomorph 180mg ) paracetamol ( got to come off morphine or lower dose) Amitriptyline 50mg and Duloxetine 60mg the last two medications are for nerve pain and an antidepressant.

I’m only just getting slight relief now on the 50mg dose of Amitriptyline but I’m still raising the dose by 10mg each month and I am starting to notice slight relief but it’s worth mentioning to your doctor.

I probably will be put on Gabapentin ( another good nerve pain medications) when I attend my pain clinic and then they can reduce the opioid medications.

Mention these medications when you attend clinic next

Amitriptyline, Duloxetine and Garbapentin, hope you get some relief soon

Hope this helps

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Hi there what is causing your pain and medications do you take if you don't mind me asking. Clive

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comment is above longsider x

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thanks x

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I can understand what you are going through pegabilin is usually a good one for nerve pain same as gabberpentein I take all different med but it won't take it away fully got to try and live with it when there's no cures what I would say is ibruffen can cause problems in stomach it did for me I got collitis just another problems

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ano i have just recently went up to 300 mg a was on 200mg ofd pregabilin so hopefully it helps. yea ano the best way is to find something thats going to help me manage my pain i cant take ibuprofen because i have asmtha x

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I was misdiagnosed in 1995 as having complex regional pain syndrome and then told in 2013 I never had it but a slow onset cervical myelopathy which I had acdf c4c5 removed

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sounds like you have had a roller coaster how are u feeling? x

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If any of your pains are nerve related, pins and needles etc and you have had an operation in the past, they can when needed give a script for various Anti Depressants that as a side affect reduces the nerve pains. You are on some serious medications, so you may be able to ask your GP how He feels regards TENS machines, some like mine also can be adjusted to work as an EMS that can tone the muscles on top of addressing some of your pain

Sometimes I use a multi-directional Shower head set up to deliver hot/warm water on the area that is sore, that may help your pain.

It is always a good idea to consider posture, how you sit and if your bed is getting on in years.

BOB

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yea a did in 2015 but they diagnosed me recently with endometriosis it might b cure able one but would involve another operation which am waiting on but its 50/50 weather it will work. and i have been using the shower head, heat pads cold pads work out don't think there isn't nothing i have tried x

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Hi shorty. Just the same operation was to release pressure on cord but damage was done nearly 20 yrs with a time bomb in my body I'm more angry that I knew something wasn't right with me and I got my new gp to refer me to Walton center Liverpool rest is history

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omg 😮 always trust your instincts cause always turns out to be something. thats what a did with my doctor in 2015 after my op saying to them that something was wrong after and 3 years later they diagnosed me with endometriosis x

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Shorty what does endometriosis affect if you don't mind me asking I'm new to this site and immglsd I can help people and those who can help me x

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I too have chronic pain, back, pelvis, knee and neck, my GP refuses me anything stronger than dihydrocodeine, pain clinic was a waste of time, doctor told my GP to prescribe stronger meds and he refused!! At my wit's end, poor quality of life, spend more time in tears than not.

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It is your pain consultant who tells your GP what meds he wants you to have.

If GP refuses to prescribe them then ask him why?

If he still has no reasonable answer then call pain clinic and tell them.

It isn't up to your GP to decide

x

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My GP says anything stronger goes into the morphine type drugs and says he will not give me these, I asked another doctor in the practice and he said the same..I am in pain 24/7 and it's draining and exhausting. I think they think I'm too young to be on these type of drugs or maybe my pain isn't bad enough?

I don't have a pain consultant as such, just saw one doctor for about 15 mins 4 years ago.

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If you saw the pain Doctor 4 yrs ago who said to have stronger meds?

Yes ...no Doctor or pain Consultant will normally put you on strong meds til you have worked your way up the ladder. Nothing to fall back on in later life.

However if he suggested something then he must feel you need it.

How old are you?

You should ask for another referal to pain clinic. They can offer, or suggest, alternatives to meds. Acupuncture, physio, pacing, swimming etc.

x

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I'm 51, had chronic pain for 17 years, started with a split pelvis in pregnancy, ended up on crutches for 6 years. I now have back, neck and knee pain, tried tramadol, pregabalin and longtec nothing helps, GP is basically telling me to put up and shut up..

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Sorry also had physio and tens machine, pretty useless.

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3x100mg pregabilin, 50mg Amitriptoline take at 1900hrs kicks in around 2130hrs, when I go to bed keeps pain slightly abay so I can sleep.

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Hello friend.. I have been suffering since 1994 with severe chronic pain n mondo medical issues.I was on gobs of meds for the chronic pain..even Methadone for 20 years n fentanyl n morphine also and etc meds. I finally turned to different medical care when I started getting more med conditions from the damn prescriptions.

The following saved MY life... single point acupuncture..chiropractor who really does know his shit and mm/medical marijuana. I don't know if Ive helped.but if ya need to ask questions Im here for ya..ask away. Hope this all helped. P.>S. What I do isn't gonna help everyone because we r all different,

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Hi thank you for replying my internet has been down for a couple off days. I have been looking into coming off meds and going to get some weed cuz am pretty sure it will help me. Everyone keeps telling me tablets will just give u side effects etc so fingers crossed a don't get withdrawal from them. Am sorry to hear you are going through all this it can get you down ah, has done me for 3 years. X

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I know be has there own opinion on what u should do,BUT do what u feel would benefitvuvthe most.having severe pain is really hard..n relief is even harder.wish u well on ur journey to relief.

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Hi

I also have a lot of nerve pain form an eroded disc (L5) in my lower back and Endometriosis. In 2015, for two years, I was in such severe pain and I cried most days, was too and fro from the GP and specialists. In the end I had a Laparoscopy which showed I was full of scar tissue that was wrapped around most of my organs, including my appendix, which was about to bust. That is what was causing my severe pain, so they removed it there and then along with the scar tissue and endometriosis tissue.

I was a lot better after that! I am still on Tramadol and Pregablin but this now controls my pain quite well.

Have you had a Laparoscopy to see what exactly is going on in there?

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I feel for you. I also have chronic pain for years. Primary MS is so painful, i have not found anything yet. I would like to try cbd or medical marijuana until I see research. It is not easy so I hope you find help and support. Thanks

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Vitamin deficiencies and lactose and gluten sensitivity were causing my pain to escalate. Now on minimal pain relief when I’ve eaten something I shouldn’t

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Am going to get vitamins today as am not eating as good anymore and a feel like am on deaths door

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