Frustrated!!!!

[LesE62]

Feeling so frustrated..... Its after 5am and still no sleep possible.

I keep my pacing in mind (most of the time anyway) but so difficult to know what to do for the best atm.

It was such a lovely day, I went out for a short walk and I mean a short walk and this is the result....awful sciatica that can't cope with! Every position, special pillows here, there, painkillers, rubbed gel on, in bed, out bed.... OMG why are things so bad?

Sorry for the rant but sometimes all the effort, perseverence, mindfulness etc doesn't cut it!?!?

To make things easier, I've even tried travelling short distance to a new sports athletic track because its an easier, softer walk for me. If I do less activity, it would hardly be worth getting out of bed.

I thought I was doing the right thing to get fresh air, clear head and loved it at the time but the pain just flairs up so easily.

Trying not to look back at my old life but sitting here just now, don't want to look forward to this being my 'new' life either!

I'm sorry for this post which will be trivial to a lot of people but just feel tired, frustrated and disappointed in my ability to do such simple things.

[margaretjo]

I'm also up at 6am because I cant sleep for the pain this is the third night in a row I've been up all night and all I did was make tea on Friday. It was painful at the time , standing for longer than two or three minutes always is, but this is agony and I know there isn't any point talking to my GP even though he is a really good doctor because I've been told by the neurosurgeon that nothing can be done for my back so I must resign myself to a wheel chair if I want to leave the house. At this hour I feel so sad for all the things I've lost all the simple things like making tea or playing with my grandchildren I feel so alone because although my family are marvelous I dont think anybody understands the pain unless they have been there. So I do understand how you are feeling. What is causing your sciatica, do you know. I'm here if you need to talk

[LesE62 in reply to margaretjo]

Thank you for your reply and I'm sorry you are suffering so much.I understand how you feel and in the middle of the night, things do appear even worse I feel.

Thanks again and take care of yourself.

[Emma2017]

Hi there, I am up and down most nights with bad back pain and sciatica. I have had 4 ops but still it’s bothering me. I have started with cbd oil and feel it helps somewhat after persevering for 6 weeks. So will keep it up.One thing that’s bad though is blue light for sleep. However much I like to go on line at night I just don’t as that is a sure recipe for no sleep. So I walk up and down and go back to bed, occasionally I will read a bit. If it’s totally unbearable I will take an extra pregabalin or dihydrocodeine. It’s hard but we just have to get on with it, what else can we do?

Take care x

[LesE62 in reply to Emma2017]

Thanks for your reply and that's interesting about the cbd.I don't normally use my phone at night but was so frustrated....the PMP had said that if sleep doesn't come within 15-20 mins to get up but I have to be honest between this and pacing, I haven't stuck to the advice given back then.

I normally try to and I'm reasonably aware of doing this but lately have fallen by the wayside. So a conscious effort to get back to paying attention to the info given and as far as exercise is concerned, I will start again slowly and with my pacing in mind.

Thanks again for your reply.

Take care

[Bevvy]

Last year a friend bought me a heated back pad. You can use it at home and in the car. I do find it helps. Is small so can position it where is most beneficial. Mine came from Lakeland.

[LesE62 in reply to Bevvy]

Hi and thanks for your reply.I use hot water bottles a lot but have b to be careful as not all areas have proper feeling.

Obviously heat pads more convenient.

Thanks again.

[subzerotemps]

I also have sleep issues due to pain and truly understand how if affects you. Going to bed should feel comforting and it just makes me a little angry that I don't get that anymore. I try sleep tea, cbd gummies and calm breathing.... but usually 1-2 hours at most. I have a friend who swears by listening to a "soundbath" Good luck.