How much do we have in common?

[FordMus84]

My aches and pains.

1. Health anxiety

2. Noise sensitivity

3. Off balance sensation

4. Chronic headache or scalp pain

5. Neck pain

6. Widespread muscle ache

7. Widespread muscle fatigue

8. Off and on extreme fatigue

9. Buzzing sound in head probably tinnitus

10. Abdominal side pain mostly on right side below ribs

11. Burning/gnawing upper stomach pain

12. Low back pain

13. Menstrual like pelvic pain

14. Jaw pain

16. Foggy brain (easily worsen by certain lighting)

17. Chronic nausea off and on mostly in the morning

18. Sore throat that comes and goes

19. Off and on itchiness

20. Off and on low grade fever

21. Internal vibrations either when falling asleep or waking up.

22. Off and on excessive gas

23. Heavy head

24. Over heat easily

Other than all that I’m fine. Probably forgot a couple. Hehehe. 😅 I’ve dealt with the majority of these symptoms over the past 15 years. I’ve had numerous blood tests and scans all benign fortunately. I had one benign adenoma colon polyp removed 2 months ago. Have to go back in 5 years for another colonoscopy. 6 months ago my liver tests came back mildly high for AST and ALT but since have returned to normal. Ultrasound showed fatty liver. Even though I don’t drink, I eat healthy and I exercise. But none the less most symptoms are with me all day, everyday. Lately, everything seems to happen together. Most days I’m angry, sad, frustrated. But how can I not be. Anyway, I want to know how many of these symptoms we share. By the way I’m 35 years old and have 4 kids. 4 c-sections, tubal ligation and had my gallbladder removed 5 years ago.

[Itsallinthehips]

19.😂😔

[FordMus84 in reply to Itsallinthehips]

#19. Yes. I hate it! Claritin will usually do the trick and give me a break from that one. 👏🏼🙄

[Itsallinthehips in reply to FordMus84]

I meant we have like 19 in common lol x

[FordMus84 in reply to Itsallinthehips]

Oh. Hahaha. Well than. We have a lot in common than.

[PainExpert]

Do you get sinus irritation /pre nasal drip. (When active a small drop reoccurs on top of nose) lots of gastric discomfort ie chronic ibs, bleeds in bowel movements, or moments where your mind kindve fogs over, leading to oversights like walking in a room & realising u forgot why u went, or putting the cereal in the fridge & milk in cupboard?. Bc it sounds to me like you're suffering from FMS, (fibromyalgia syndrome, hypercholesterolaemia (which isn't diet related it's genetic), and would explain liver deposits, and if you feel drained & have sleep problems coupled with non restorative sleep, (waking feeling worse than u did at bedtime), regular migraines headaches, wide spread aches, areas of u are tender to the touch, skin irritations & flare ups. Then it's likely advanced full body fms which they believe can lay dormant till triggered by physical/emotional trauma, operations, injuries, accidents etc. I've had it since birth & didn't get diagnosed till 28 yrs old. They kept saying something's up but we don't know what, and you can't possibly be going through as much pain as you're describing.

Until I got diagnosed then they said sorry yes it's chronic pain and acute pain & you're going to have it for life. And put me on combination drug therapy, declared me unfit for work & no pain killers work long term I've tried them all.

[FordMus84 in reply to PainExpert]

Oh. Wow. Thank you for the interesting reply. Yes, I forgot to add that. I don’t know about pre-nasal drip but I do get post-nasal drip which coincides with my sore throat. I’m currently on Claritin and Flonase also to help open up my Eustachian tubes since I was experiencing sound distortion, mild hearing loss and tongue pain? I don’t have the regular allergy symptoms but I must have allergies because the medication is working. I have had a positive stool test thus why they sent me in for an urgent upper GI and colonoscopy. But they found no source for the bleeding. I do have frequent moments of brain fog and other cognitive issues that come with the heavy head sensation. Mornings are horrendous for me. I’m much more alert at evening time which is odd. I have nausea for most of the early part of the day. And I do have dermatographic urticaria (another one I forgot to add...hehehe). Wow. I’ll have to read about hypercholesterolemia. Should be an interesting read. What drug therapy are you on? I’m sensitive to most medication I’ve tried.

[PainExpert in reply to FordMus84]

You're most welcome. Yes the blood loss is put down to a recurring abrasion of part of the end of the g.i tract . In uk they call it anal fissure, which to me is a misleading misnomer but essentially it's caused by chronic ibs/mucus membrane malfunction/constipation. Then the eventual movement grazes the internal wall as it progresses down the anal passage. The colour of any passed blood indicates the area it's from. Bc digested blood is black but the colon & anal passage don't so the blood remains red. Sensory overload to unbeatable sounds, overwhelming smells, light/photosensitivity and restless leg/arm syndrome are also common in FMS. They often assume Crohn disease, gastric cancer etc b4 even testing for fms occurs to them so may be worth getting tested. Jaw and tongue pain are asymptomatic of fms too.

[PainExpert in reply to PainExpert]

Forgot to say I'm on morphine amitriptyline pravastatin (the high blood cholesterol thing) ranitidine for acid reflux, and a few others but tries almost everything and only self education, awareness & self control/ meditation techniques have helped long term. And cbd oil . Pain meds are addictive & u become immune fast to their effects so just take them to support addiction after a while.

[FordMus84 in reply to PainExpert]

A long time back my doctor sent me in for Fibromyalgia but the rheumatologist said no? So, we left that. But I’ll have to ask again. Maybe see a different specialist this time. How long did it take for you to notice a difference with the CBD oil. I have used the 1500 sporadically but the taste is such a turn off.

[E_lizab8]

I have had almost all of these symptoms at one time or another, especially before I was diagnosed with autoimmune hypothyroid in 2009 and went gluten free in 2012. Have you been tested for hypothyroid, and had your vitamins/minerals tested? Docs dont know much about how much vitamins etc can affect patients. They found that I was very low on B12 and D3 and after supplementing my fogginess unsteadyness/dizzyness disappeared. When I went gluten free my migraines and stomach problems also went along with other aches and pains. My fatigue is so much better. Statins (for cholesterol), can cause serious muscle pains, my husband had to stop taking them.Burning stomach sensation can be low stomach acid and not high. If you check up on hypothyroid symptoms you will see lots of yours. I took my health in my own hands (dont know what I would have done without internet) and since then so much better, take thyroid meds, vits etc., digestive enzymes and probiotics and am gluten and fructose free, also eat low carb/high healthy fats diet. Sorry this is so long, Just wanted you to know that it is possible to feel better. I had lifelong terrible migraines and couldnt get out of bed without help for the pain and fatigue before, doc said I'd had thyroid problem for many years before diagnosis.

[FordMus84 in reply to E_lizab8]

I think I have been tested for thyroid problems many years ago but everything was normal. The only vitamin test is the D3 which comes back borderline low. I haven’t had the rest checked. I do often wonder if it’s my thyroid. I’ll be going to a private lab soon and I’ll ask about getting re-tested. Thank you for your reply seems this could also be a possibility.

[QueenElla]

Hi,

Except the vibrations, I have all your symptoms and I just have been diagnosed with fibromyalgia. It took me years to be taken seriously...Despite all my test came out fine I begged GP to refer me to Musculoskeletal specialist, and I am so glad I did...

I also have endometriosis 😐

Good luck to you 😊

[FordMus84 in reply to QueenElla]

Hmmm. Makes you wonder why so many of us have all these symptoms. Scary, really. I see FMS almost every where. But grateful they aren’t life threatening. My doctor wants to do a laparoscopy to check for endometriosis but I’m not convinced on having another invasive procedure again. 😔

[sullivn]

hi I know the feeling I have a slip disc l4/5also underactive glands high costerall and on the border line of getting dibeatic loads of med morphine liquid morphine patches gabbinteen tablets noroprexn amepritten and loads of other med there always someone worse than me hey bee happy I am 54years old

[FordMus84 in reply to sullivn]

Oh, gosh. Sorry to hear. I certainly hope you find some relief and hopefully you don’t end up with diabetes. Yes, I always figure as long as I’m here for my kids I’ll just keep pushing along and honestly I keep telling myself that even my worst days of symptom after symptom may actually be someone else’s better day. There are so many more awful illnesses out there. For example my aunt was diagnosed with advanced breast cancer today and she had no idea anything was even wrong. 😞