I'm Jayne and I'm asking this for my 32 year old daughter, Laura. Briefly, at 6/7 years old, she began to have pain in and behind her knee joints, aching, which the doctor gave her Movelat for. Age 10/11 she started with pain in her hips and spine, enough to have to take Co-Proxamol for and by 14 she was taking Tramadol and Naproxen. She has seen many specalists over the years and had a diagnosis of shortened hamstrings, growing pains, generalised anxiety disorder (she has always been a worrier and started with migraine age 20), wear and tear being the latest but the b**** of a rheumatologist more or less told her it was all in her head, to "get a hobby" (she's my carer, I have similar problems, as does my eldest daughter and my Dad did too), then discharged her. Her blood tests have shown raised inflammatory levels, th elast but one rheumatologist gave her Amitryptiline at night, but they don't seem to do anything. Right through her life, she has caught everything going, after being in a room full of people for instance, she will be ill for a few days afterwards or feel totally wiped out after a few hours out of the house.
So, she's 32 in 2 weeks time and has a list of health problems as long as my arm, ranging from allergies and intolerances (from 6 months old) to joint pain and inflamation, eczema to heart palpitations (that's a new one) when she's sat doing nothing. She has an appointment booked with our GP 11th January and we're going to insist that she sees a decent specialist. Everything points to an autoimmune disease, but nobody seems to want to label whatever it is. Anyone any ideas on how to go about it please? She's had x-rays, blood tests etc (no MRI as yet), but we know from experience that bloods don't always show what's needed.