Them days.: Hey all I just wanted to say... - Pain Concern

Pain Concern

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Them days.

11 Replies

Hey all I just wanted to say.

Being in pain all the time is no fun, the constant grinding down of the person you are is horrible and it's ok to say that because that's what it is.

From time to time I get down on myself as do others, so I just wanted to say your not alone we are sharing this pain, it may not make it better but it may help, has I've been going through this for nearly 10 years I've has my ups and many downs. Luckily I have people around me I love and adore,I hope that you have something in your life worth fighting for. Thanks for reading and I pray for you to keep strong in the days of need. Thanks

11 Replies
Harmony60 profile image
Harmony60

Agreed, it does grind you down. I have a beautiful grandson and family, but I can barely play with my grandson due to pain. I will be laying down not hurting. (On Fentanyl Patch 25mcg every 48hrs) and Norco 5/325 30 a month for breakthrough. I get up get dressed, and go out after 25 to 30 minutes in a store I am walking so slow and my hips, legs and back are on fire, by the time home I'm in tears, but I keep trying. This has been 11 years now. I lose balance as well. Before the failed back surgery and the diabetic neuropathy a very severe case, I ran 5 mi a day, walked, exercised, very active, now I can hardly walk much less run, dance, sit on floor, bend down, kneel, step up a curb, jump, nothing. Yes it grinds you down, it cost my marriage, I am so limited, but each day I awake with hope and I just keep trying. Best Wishes to all.

bettyfl profile image
bettyfl in reply to Harmony60

I am the same. The only walking outside of the house I can do is the grocery store. And I’m like you, in tears and terrible pain and anxiety. I have 4 grandkids and so want to be able to do what I used too. I pushed myself for years but finally had to quit working a year ago. At 66 this is no fun. I count the hours before I can take my sleep meds and not feel pain. These days 3:30am seems to be when I fall asleep. Im not living just existing and trying not to give up.

bettyfl profile image
bettyfl

Right there with you. It is so hard to mourn your own self. It has been 11 years for me in chronic pain and so many doctors, procedures, medications. I’m so sick of all of it. Most days all I can do is be awake and lay down. Everything I do causes pain. Still fighting and trying. Although it’s difficult I am trying not to give up.

Harmony60 profile image
Harmony60 in reply to bettyfl

bettyfl I understand completely. 11 years of chronic constant pain here too. Procedures, needles, surgery, medicine, pain mgmt, physical therapy, braces, crutches and wheelchair. Compression garments, creams, lotions, potions, waiting for the one thing that will make me better. I am 58, My first grandson and I feel like I can not be a good grandma and I am his only grandparent in his life. I spend 90% of my time laying down. All I do is sleep and hurt. I try I push it, but pay for it, but I will never give up. I wish you well.

Hermes123 profile image
Hermes123 in reply to bettyfl

Hermes123

Pain? Yes I know a bit a about it, as an 80. year old been suffering in one form or another since 1969. I had to wait 13.years to have my lower back operated on, as operation were rare and in there infancy. I been though Rheumatic Arthritis, Osteoarthritis now been told I have Fibromyalgia, loads of scans over the years x-rays mri scans so on and so forth, at present on 4. Paracetamol, 4. co-dydramadol 12. Gabapentin plus all the other run of the mill medication. I had never heard of Fibromyalgia before, my Consultant at the time just said that's what I had, with no explanation as to what it was, "O" yes I am also on a Morphine patch as well. All my joints are gone swollen ankles, feet just keep giving away, knee joints give out, hips have had it, shoulders and elbows as well as my spinal cord. Apart from that I fit and healthy as there is no more they can do for me or so I am told.

It would not be any thing to do with my age by any chance would it, just wallow in an out of each day at a time, I have coped for so many years but now I am really feeling the strain, I feel I have no where else to go Shattered. Hermes.

Harmony60 profile image
Harmony60 in reply to Hermes123

Hermes123 I am so sorry, trust me I understand completely. I wish I knew what to say as of now for different health issues I take a total of 28 pills a day, 3 liquids, 6 shots and a patch every 48hrs. I am just turned 58. Been this way since 2006. So 45 it began. So I can't say age is a factor. I can't be fixed, all I can do is fight and survive. I'm so sorry for your pain

Hermes123 profile image
Hermes123 in reply to Harmony60

Hermes123.

Hi Harmony, So pleased to have you on my side and with the assurance we are both suffering to the same degree, I too have fought all kinds of pain for many years, but this last cloud has been pushing me to my limits, when I have an extra bad day I will try to think of you, give myself a good talking too and say look I'm not the only. Good luck to you and have a nice day. Hermes.

Harmony60 profile image
Harmony60 in reply to Hermes123

Hermes123 I get the clouds and some get very dark. I feel like my limit for tolerance has been reached. But I push through, because tommorow could always be better. Even if for a while. We all have battles in life, ours unfortunately is pain. It dosent help that people judge in any way possible especially medication, and doctors and pharmacies and pain clinics, and even now the FDA and other government forms think they know over your doctor what treatment is best for you. It's hard but life and hope and faith is worth the fight. Hang in there, it's hard I know, but keep the faith, fight it, be strong as you can be a try hard to muster a laugh and smile each day. I wish I the very very best today and everyday. Take care, and may you have as many good days as bad, at least then it's 50/50........Blessings

Hermes123 profile image
Hermes123 in reply to Harmony60

Hermes123

Hi Harmony, love your sentiments, how I would long for a fifty - fifty day, up early this morning? Pain from left hip full length of leg, got up about 6.30. A.M. then the pain transferred to right hip only had a job to walk, from there it moved left elbow down to left wrist, that is for starters f the day. Harmony you have a fruitful day may all your pains be little ones... now I' tired and worn out already and being complain about doing chores around house. Hermes.

It's been a few days since I originally posted and I'm glad people have shared and come together. I understand the pain and suffering the sleepless days and nights has sometimes I try and sleep when I can with three kids. Not being able to play with them as I once did. I had to let go off the thoughts of the past and things I could do and come to terms with what I am now. We do the best we can on that day that moment, that's all we can expect ourselves to do. I do have some good days but as we know our good days are people's normal bad days. The darkness rolls in once I awake trying to grind me down but I will always fight it as long as I hold a breathe.

I understand people's pain and even anger with what we have to deal with but if you can let go of it, it's seems a little less.

Thanks for that not been called a women in a while. But has a man I'm not insulted you women are the rock of society. But yes people on here are remarkable for courage and strength to push each day get up and go on.

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