Opioids

[BellabluePainSucks7]

What are those of us that are in more pain than I could have ever imagine a person could live with supposed to do now that the government has almost gotten rid of all opioid? Fine but please replace it with something else. I have an awesome doc but he's retiring early he said he didn't go to school only to be told not to treat patients who are in more pain. It's not like I asked for this pain I do nothing anymore because I Will be in much more pain.

[Hidden]

I fully understand you. Now it seems pain management is about the power of the mind or the power of a variable electrical signal like tens. Coming off will take a very long time during which you must get access to them. The body gets used to opoids so patients take more to get the same effect. This you should not do. I wish the government would stop treating those on prescribed opoids the same way as those on opoids for fun. The differences are huge and the reasons are more complex than just the thrill of narcotics. In my case I was in hospital. My usual cocodamol had stopped working after four hours so I couldnt have any more for two hours. A consultant said I could have a new patch to stop the peaks and troughs on the condition I dont go swimming or dont forget to change them. No mention of addiction or the other side effects. In a day the pain would have gone anyway sio I regret the patch but cant stop them to an extent and would love to one day stop it. Good luck with your struggles.

[katieoxo60]

I don't know how those with severe pain will cope or those with an addiction. I have had my opiods reduced, and did have other options offered but the pain management was cancelled as I had a fall and broke a bone. I have persistant multi joint pain, that flares now & then so manage quite well apart from getting me down now & then. But cant imagine how you cope with severe back pain and the prospect of no opiods, the nearest to the opiods is codeine. Just a thought I wonder if Hypnosis might help some , but don't expect it would be cheap if lots of people find it works, supply & demand dictates price after all. Hope it still remains open for people to have stronger drugs who really have no option.

[waylay]

Are you talking about the UK? Did something happen?

[bonniebluebird in reply to waylay]

That's my question also. Mine haven't been stopped. I hate the damn things! But need them unfortunately. I think this musi be in the US.

[waylay in reply to bonniebluebird]

Same for me.

[cyberbarn]

One of the problems is that opioids were developed for end of life care with cancer, not for the type of pain we have. But doctors used them anyway. not only that, how people react to opioids differs too. some don't react well, so they try to take more and more to get the same effect. Others just have to look at a tablet and they get high (okay, exaggeration, I do have to take it, but even at the lowest dose I am off with the fairies within minutes).

There is a much greater understanding of pain now than when your GP was trained. the medical professional did us a great disservice by setting us up to think that pain, especially chronic pain, was something easily removed. And now we have to pay the price.

Have you been referred to a pain clinic yet?

[waylay in reply to cyberbarn]

None of my docs said that my pain would be easily removed. I started off on codeine, but I kept landing in A&E 2-3 times/year because the codeine wasn't enough for a severe back spasm. At one point I had one so bad that I was admitted to hospital for 5 days of IV morphine. The pain clinic came to seee and upped my meds to tramadol, with oramorph for really bad spasms. That's worked for me for years, and no more trips to A&E.

[Offcut]

I am going on an Opiod trial to try and reduce my opiod input. I have been given Morphine when I am in hospital but it takes a very large dose to even make me feel a little better! I do not look or sound in any way like I have been given the dosage. Once in Hospital with a collapsed lung the doctor asked if he could bring students to see me. He went around all of them to ask about my conditon and treatment, Then asked how much Morphine do they think I have been given. They all underestimated it by quite a lot!

Be well