help! my stent dysuria pain

[andy76]

I have had a kidney stent put in (following a laser fragmented stone being removed) and i have excruciating pain when i wee... stings so much and the feeling back up to my kidney is stronger than when i had a stone stuck in my bladder, all i've been advised to take is codeine every 6 hrs and paracetamol every four.but so far no improvement plus have been taking this type/qty of tablets for nearly three weeks prior to my ureteroscopy and it isn't anywhere strong enough to reduce the pain,what else can i try to manage this situation this stent may have to be in for 2 to 4 weeks i really am at a loss. phoned my ward that discharged me they recommended ibuprofen and then contact GP in the morning (maybe even 111 an get a n apt sooner?),,,any suggestions welcome,thanks

[Bananas5]

There are a number of strong pain meds designed for short term relief as in your case.

Certainly speak with you GP and tell him what it feels like.

If no joy ring for help and advice.

Unfortunately hospitals and GPs are loathe to give out these stronger meds due to adverse effects over from America but for operations like yours they are just the job.

Insist.

Could there be an infection in the tubes?

x

[andy76 in reply to Bananas5]

my stent tube was put in Monday lunchtime...so hopefully infection isn't a factor(i pray!), but certainly there seems a reluctance to dose out anything stronger than codeine,paracetamol and ibuprofen...just before i was discharge midday Tuesday i was given a little liquid morphine to drink but i can't say that it really calmed the dysuria...many thanks for your response it does help when there's a kind of community online that you can share your darkest pain related issues with..

[Bananas5 in reply to andy76]

Morphine like many of its bedfellows were really 'invented for cancer and short term pain.

I do use Paracetamol for chronic pain over anything stronger and it does work for me but...you definitely need something stronger.

I am loathe to advise what though. Maybe a trans dermal patch? They do come in different strengths and release their contents slowly thus giving stable pain relief.

They can be used for short periods safely.

This pain concern forum has members with a wealth of experience...mainly with chronic pain though. So...any help we can offer is given willingly

x

[andy76 in reply to andy76]

early days but I've passed some urine on a couple of occasions since trying ibuprofen and although painful its been some what less traumatic in doing so,maybe the anti-inflammatory action was by bugbear?, does hurt like a %"@$% when the back pressure to the kidney hits me though feels like a really strong punch hitting you in the loin,still hoping this is positive progress

[bantam12]

I had a friend who regularly had stents and she was on morphine but even that barely helped.

I have kidney stones and my worst nightmare is needing to have a stent at some time.

Good luck.

[andy76 in reply to bantam12]

Thanks bantam 12...it does look like a lengthy campaign(pain) i'm going to be going thru...i took some ibuprofen at 0230 this morn (i called my discharge ward and sister told me to try ibuprofen as its an anti-inflammatory)and I have passed a little bit more with pain and only slightly less tantrums!,just this bloody(literally)thing having to be in for 2-4 weeks is the mental block to assault...just on tenterhooks evry time the call of nature starts its herald!

[bantam12 in reply to andy76]

Sounds horrible, I've already tried Lithotripsy which was horrendous and didn't work so I have to decide on my next move.

I hope you improve and all the pain is worth it.

[camelot54 in reply to bantam12]

Hi ....I think I maybe in the same position....they got 3 small stones, but still have 2 large left....high in the kidney.....I have to go back to see Consultant in 2 months and he will give me options of keyhole....have you been offered this?

[bantam12 in reply to camelot54]

No not been offered surgery but i would definitely go for it if I was, I don't see the point in messing about with these other treatments that are time consuming, painful and frequently don't work, seems the docs would rather leave things until it becomes an emergency !

[camelot54 in reply to bantam12]

My consultant says they need to come out as could cause kidney damage.....so I guess its different consultants/dr....there are risks and its a 2 - 3 hour surgery...

[AndrewT]

Dear Andy,

You Shouldn't be in, anything like, THIS amount of pain! I DO know what I'm talking about- I had a Kidney Transplant, in July 2013. Even after 'Stent', was removed, the pain had, more or less, 'Cleared Up', in a few days.

So unless your situation is VASTLY different, which I doubt, then you need to see your Doctors/Consultants Urgently. Leave them in, absolutely NO doubt, regarding your Suffering- without being too rude, hard as that may be! Don't worry about passing blood, or urine, into your underwear- isn't that what it's for? It will wash.

Sorry that I can't be more help, especially with your Horrible pain Andy.

Please do let us know, will you?

Sending you my Kindest Wishes, and Prayers.

AndrewT

[MrsM7 in reply to AndrewT]

There are different stents your would have been very different.

[camelot54 in reply to MrsM7]

Just had the stent out yesterday....was in so much discomfort with it and couldn't hold my water....There was no pain in removal of stent and over in a minute!.....feel so much better now...really couldn't tolerate it!

[MrsM7]

See GP for meloxicam. You will need something to protect your stomach as well. No reason you can’t have a few Valium in the short term.

[lowlife]

Hi Andy my daughter in law has a stent for failing kidneys which she has changed every six months. She is always in pain for a week or so until things settle down. She is very short in hight and has go have a shorter stent fitted. Have you had your urine tested as this is a common complaint with a stent. She takes codeine for the pain. Hope this helps. X

[HADES]

Hello Andy - I don't have your complaint but I can share your battle to alleviate constant pain. I have chronic severe Fibromyalgia which produces exceptional muscle pain. Unless you experience it at first hand, you will not appreciate its impact. I have tried a range of "Pain Killers"; the best one can hope for is to dampen things down to a bearable level.

At present I take a slow release morphia tablet, ZOMORPH, 100mg pd at 6 hourly intervals - 30mg at 8am and 8pm, 20mg at 2am and 2pm. Each dose is backed up with 2 PARACETAMOL Caplets. When I get a flare up I resort to DIAZEPAM 2mg tabs. In an attempt to promote sleep, in addition I take a single NORTRIPTYLINE 10mg.

I have taken CODEINE as a component of earlier prescriptions but its constipation byproduct and other associated side effects were unacceptable. To counter that at present I take CosmoCol in powder sachets twice a day.

As you see, I have become a proper "Junkie" now in my late eighties. I hope the foregoing might be of some help. I am with you in spirit, if only to offer my sympathy.

With kind regards, "HADES"