Pain Concern
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Sick of being in pain

Hi I'm Robin and I have been dealing with Fibro pain for so long that I have no clue what to do.. I have a great Dr who scent me to a pain Dr. She's is the first one to listen to me. She helping me with my pain and she is also running more scans.She found that along with the Fibro,I also have problems with my spine. She has me on pain meds so I can function. But I'm 43 and feel like I'm 80. My question is dose anyone have deep bone pain and anxiety? What kind of steroid can you take long term when you have a allergies to nsids?

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I want to say taking too many steroids are not good for your bones I have the beginnings of osteoporosis and I to like the feeling of what the steroids do for my pain. But I also fear of falling and breaking a bone at my age 59 they don’t heal the same.

I am going to my endocrinologist next week and I have a bone density ex-ray this week.

Good luck to you I do hope you find relief with your pain.

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Sorry to hear of your pain Robin, hope your pain Doctor works with you to find the right level of the right pain relief meds for you.

I was wondering if you ever had a blood test to check your levels of Vitamin D. If not , then I would ask GP for this in case you have a deficiency and need prescribed supplements. Google "symptoms of Vitamin D deficiency - NHS choices". One of the symptoms is Bone pain.

Also, may I ask what the problem is with NSAIDS? I wouldn't take anything without your doctor's knowledge.

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Is there any evidence that vitamin d def causes bone pain. It costs 99p for a pack of 60 tabs in the pharmacy so maybe that is worth trying. A blood test costs tens of pounds so for something like vitamin d is not cost effective.

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I had a allergic reaction to them, I was told that my blood work was fine.I am going to ask my G.P to run a new blood test so that I know for sure.

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Hi - have you seen the fibromyalgia page - dedicated to this condition.

Is the finding incidental or is it causing the pain ?

Have you tried the conventional treatments for fibromyalgia ? By pain meds if you mean opioids or narcotics - well they aren't recommended long term for fibromyalgia.

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Hi again Robin, are you in UK of USA?

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USA

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There are several pain killer in the market for different pain.One of the best pain killer which i was prescribed was Tramadol and it worked like magic on my pain.My doctor gave me a long guidelines for its consumption and i have taken the pills according to it and now am no more in pain.

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Robingreen, 'Thyroid UK' here on Health Unlocked are brilliant at Fibro , deep bone pain and anxiety, they are all symptoms of thyroid/B12 deficiency. I had fibro type all over pains and deep bone pain which can be down to a vitamin D deficiency even. There is even a vitamin deficiency link to the spine. (not saying yours is,) Good idea to check them out they have helped me get my life back.

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Hi Robin,

I'm so sorry to hear your pain struggles. I can relate. I have fibro, chronic pain and Ankylosing Spondylitis (another auto-immune disorder). I usually try to 'move past' my fibro pain as moving won't cause risk of injury, and activity helps to quiet my fibro pain. My fibro isn't as bad as the AS, which is sometimes crippling.

I Was allergic to Celebrex right away. I took ibuprofen for 13 years before I broke out in hives. I'm now 52 and on my 4th NSAID. It makes life liveable. Without it I can't walk on my own. Is it possible to try different NSAIDS?

Please be persistent in discovering what's going on with your spine. Hopefully you can get some answers.

A good rheumatologist can recommend other options if NSAIDS are not appropriate. There are many options, prescription or otherwise. In my mid-twenties, and again in mid-thirties, acupuncture provided relief from pain, and was a miracle for my fatigue. Off the top of my head, approaches I've tried: tricyclic antidepressants, anticonvulsants, muscle relaxers at night, injections, physical therapy, electric stimulation, CBT for chronic pain, meditation, pool exercises, stretching, gentle yoga, non-inflammatory diet and more. Some worked better than others. And I've finally learned that stress makes the illnesses, inflammation and pain so much more active.

I know I won't be pain free for every day over the next few decades, so I do many things to try to remain functional and to enjoy as many pain-free days as possible.

I hope this helps and that you can enjoy pain free days ahead!

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Thank you so much for the advice, I had a very long talk with my husband and I shared some of the advice that you had told me about.. We have decided to call and make a Dr app for all the new blood tests,and hopefully be able to get a scent to new specialists and go from there.....

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Robin, it sounds like a good plan. I wish you all the best!

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