COCCYX pain control options. What works

[Jacq2009]

Had injections and manipulation under x-ray. Had 8 or 9 since 2013 .omnipaque 300. Mixture 5% chirocaine. 40mg kenalo

They mostly worked but not so good now and chiro and other medical have said not good to have more than 3.

I need other options b4 I have to consider removal. I have other issues with nerve damage so any success out there so I can ask my consultant be great.

Thank you

[Baileydog]

Hi, I understand your pain and despair. I have had serious chronic coccyx pain for nearly 3 years. I had an injection which didn't work . I started having treatment at sayer clinic in London . Had numerous manipulations and the coccyx freed . I also have pn damage from fall . My coccyx is still so painful, cannot sit, spend my life lying down or standing. It is thoygh however 80% better from my treatment at sayer clinic. It is however expensive and slow progress.

I wish you well in your search for treatment.

Sandra

[Jacq2009 in reply to Baileydog]

I found yesterday a chap called Dr maigne.. he works in Paris but cost of 2 day trip is cheaper than if I pay in UK... euro was 500 for both visits with x-ray injections and recommendation.... I think I need removal... lady told me about Dr hardy in Bristol but private.. I going look .. think I go have injections first while I look ... x

[Baileydog in reply to Jacq2009]

That seems like a really good price. I am waiting at my pain management clinic to see if they will do injections into coccyx but they are still debating funding ! I think now my coccyx is freed that an injection may settle it down . Who knows. Let me know how you get on please.

[Jacq2009 in reply to Baileydog]

Sometimes the injections work like fairy dust has been sprinkled on it then other times it only takes the edge off...

I will post when we get some info xxx

By time flights hotel ect are added it's same as here but this way we get mini break to x

[Hidden in reply to Baileydog]

Please write to your MP over this if you really are suffering.

[Pippins2]

I had the surgery 18 months ago, best thing I ever did x

[Jacq2009 in reply to Pippins2]

That's so good to hear. Was this in UK. Did you have full removal . Any tips for recovery..

[Pippins2 in reply to Jacq2009]

Hi yes in the UK and full removal.Best tip is don't sit at all for at least 6 weeks then build up sitting very slowly. I started at 5 minutes a day and only increased by 5 minutes each week. Buy a good quality coccyx cushion. I can recommendthe Bael wellness coccyx cushion x

[Jacq2009 in reply to Pippins2]

Oh that's great tip. Thank you x I been given name of Birmingham consultant.... spilsbury....i am in Staffordshire. I will look up the cushion x

[Jacq2009]

I got the cushion it's great. Thanks

[lurky52]

Hi Jacq2009,

I have chronic lower back, legs and mobility problem since 4/1/2000. I'm now having awful coccyx pain / pressure which is affecting my butt either side of my coccyx and all through my genital area but not been offered anything for it as on quite a lot of meds. It's awful and sitting is hell like my bits are being gripped with pliers. Any advice?