Hi there up early so thought i would tackle this .
This subject provokes lots of emotion for lots of people in both camps , here are my thoughts from personal experience.
Do i think the system works, absolutely not.
" normal " people are force fed the idea that everyone can work , with paralympians rightly promoted at every opportunity, then such dreadful T.V propaganda with benifit cheats and the like. Its no wonder there is such a stimulus attatch to real people with debilitating conditions.
The great british public are now of the opinion that everyone should work. Im sorry but in my opinion this is brainwashing extrordinaire.
Its my view that yes there are people out there who should hang their heads in shame claiming everything , playing the system. It is also my view that there are masses of people being victimised by the system. A system which is a box ticking exercise , a way of enhancing government figures.
I have CRPS full body and now affecting
I did recieve DLA for a number of years
On one review of this i was asked to attend
An assessment. So luckily i was having a good/ bad day so managed to attend. Heres the kicker on this if im having a flair up and cant get out of bed to attend money would be stopped. If i struggle and attend , clean and tidy i know whats going to happen.
Bit of a loose loose situation.
On arrival do i look "disabled" to someone with no medical training , probably not.
So immediately the decision is made in their mind.
My first question before anything was said was Do you have any medical knowledge of how CRPS affects the body. The short answer was no. The long answer was a body swerve that the system coveres everyone.
I obviously dont agree , i completed the assesment which is full of questions where im damned either way.
One simple example is the question
Can you walk a certain distance unaided.
WITH 2 OPTIONS
YES OR NO
So if i say no im lying because on a good day i can .
If i say yes im lying because on bad days and flair ups i couldnt.
I tried to explain this was impossible to answer. As were most of the yes no box ticks.
This took around 1 hour and resulted in me having a huge flair up.
I now am totally stressed in lots of pain bed ridden 90% of the days awaiting the result of findings from someone with no clue of CRPS.
Results are in i was told i would need 15 points. I scored an unbelievable ZERO.
Proof the assesor had no idea of CRPS
And he didnt listen to a single word.
APPEAL lets go.
Fill in all the forms again .side letters from top uk doctors etc.
Then out of the blue i recieve a call, a very polite gentleman ask if i was ok to chat.
At this time i was laid on my bathroom floor , in lots of pain , after a shower my right hip popped out, a regular occurance for me.
I told him this and as i was unable to movr i wasnt going anywhere so yes free to chat.
I wanted to get the appeal over with it was just so stressful.
He asked a number of questions , i asked the same old chestnut, do you even know what CRPS is, which was body swereved like an astute politician being asked a yes or no question.
Result in .
So you can all probably understand my rant.
Did i appeal again. Not a chance. I could not go through all that again.
Result mission accomplished by the government. One more stat on the disability figure reductions. So well done to them.
A foot note to all "normal" people out there
Before CRPS i was also normal. Did i ask for CRPS absolutely not. I was diagnosed after an accident . An accident is something unintentional that happens to you. Through no fault of your own. It just happens hence its called an accident.
So in reality all normal people are only one incident in life from being in this position.
So spare a thought the next time you look at someone and say there doesnt look lime there is anything wrong with you.
And rember there may come a time in your life you need these people at PIP.
Thank you all for listening looking forward to the responses.