Epidural fibrosis : Hello! Anyone out there... - Pain Concern

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Epidural fibrosis

Mohawkshygirl profile image
11 Replies

Hello! Anyone out there have EF Epideral fibrosis? I just found out i have it and need support. I am trying hard to be strong. I am heartbroken from this news. No cure and I already have a bad back.

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Mohawkshygirl profile image
Mohawkshygirl
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11 Replies
nelson500 profile image
nelson500

I have been on pain med for over 10 years and hope after my last operation that I would finally not be on them anymore, only to come away with severe scar tissue or EF. I am currently being referred for possible RACZ, which I am told can help. You have to stay strong, there are a lot of people out there the same as you, its a shame that the NHS cut all funding to the Pain Clinic, the one thing we all need!

Mohawkshygirl profile image
Mohawkshygirl in reply tonelson500

Sorry to hear. What is RACZ? When did u find out I had EF? Thanks for replying, I appreciate it.

nelson500 profile image
nelson500 in reply toMohawkshygirl

apmspineandsports.com/diagn...

spine-health.com/video/racz...

Have a look

Mohawkshygirl profile image
Mohawkshygirl in reply tonelson500

Ooh this is what I am gonna get done. I am waiting on the approval from insurance.

nelson500 profile image
nelson500

Good luck, let me know how it goes???

Mohawkshygirl profile image
Mohawkshygirl in reply tonelson500

Thanks Nelson! I will definitely keep in touch. My name is Amanda btw :)

nelson500 profile image
nelson500

Lisa

Mohawkshygirl profile image
Mohawkshygirl in reply tonelson500

Ooh sorry Lisa! Nice 2 meet u! :)

nelson500 profile image
nelson500

And nice 2 meet u 2, let me know how the RACZ goes, and I will update you when I have my consult!

Mohawkshygirl profile image
Mohawkshygirl in reply tonelson500

Ok cool! I will be in touch.

Mohawkshygirl profile image
Mohawkshygirl

Hey there! I am still waiting on my insurance to accept and then they will make my appt ink what is taking is long. I just wanted to let you known I didn't forget you.

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