.my problems began about 2-3 years ago having being diagnosed with fibromyalgia in 2005 I was fairly stable with my conditions until 2011.then i began to get a whole lot of new problems.It started with rib pain and then abdominal swelling then progressed to skin rashes and general swelling.i have had a poor appetite for several years and now have to force myself to eat.Overtime my weight has increased considerably by around 3 stone which is all abdominal and having lost weight elsewhere this concerns me that I may have ovarian cancer.although i have had several scans which say otherwise,my gp persists in saying i have IBS even though I have never presented any symptoms ie constipation and diarrheoa.I was not told this verbally but only found out from a letter my gp wrote to the DWP.Prior to that I was and am being told "its my stomach".I have seen my gp at last once a month trying to get answers and a diagnosis but I am feel I am not being taken seriously.
over the last two years I have developed a cough which remains undiagnosed and nasal sores and bleeding plus nasal and brow bone growth which i have been told is a condition called Acromegaly.,.Although having treatment for my nose ,it only provides temporary relief and then flares up again.After about 9 months I was referred to ENT dept only to be told "its not a sinus problem".i went back to my gp as neither myself nor him had ever mentioned sinuses and was refused a rereferral.i still have flare ups now.
I also was referred to a rheumatologist in 2011 who only spoke about weight and diet telling me I needed to lose weight but would not accept that my weight gain was not due to my diet as my appetite had diminished and I barely ate and that the weight i ahd gained was all abdominal.again my gp wouldnt support me and i eventually got an appointment to see the rheumatologist which was not the rheumatologist I had seen previously even though they tried to tell me it was.
As my symptoms have worsened over the last three years I am able to do less and less.I am desperate to get a correct diagnosis.i had scans carried out in early 2012 and these were said to be normal.i was referred to another gp recently who arranged for me to have an endoscopy and a colonoscopy which revealed several conditions-hiatus hernia.gastritis,duodenitis and diverticulitis.if i had been listened to these especially the Hiatus hernia could have been discovered two years ago as I had stomach pain in that area although i had no signs of any of the other three.My stomach is still increasing in size and weight and this is still not accepted.I am still being told I have IBS even though I say I have no symptoms.i am told that the reason for my stomach s swelling is its bloating caused by gas but that too is only a recent diagnosis.
I also had my gallbladder removed after which my stomach swelled .
I saw my gp recently re persistent pelvic pain which i have also had for over a year and is disabling but was told "i am not having anything to do with your stomach".I said it is not it is my pelvis. I have also had various other symptoms which resemble those of ovarian cancer but I am told i am clear of it and any concerns that i did have OC were based on a few things -that Babs was orignally misdiagnosed,my gp not giving me any other reason for my symptoms,and hearing and reading that it is OC is difficult to detect and it is said that it is mistaken for a bowel condition.
I also have had difficulties swallowing and several choking fits after eating.i believe this to be thyroid related as my neck and tongue are swollen and my thyroid feels enlarged btu all i got told was "I cant feel anything".i have not had a neck scan at all.one gp said she would refer me to ENT if it continued but this never happened.