On 9th July 2013 my MP Iain Stewart got a debate in Westminster Hall, at the end Norman Lamb said "I am more than happy to discuss further how we can improve outcomes for people suffering from such a pernicious condition" Afterwards he told me in front of 4 witness "if you send in a list of suggestions on how we can help sufferers I will go through it with your MP and see what can be done. Iain Stewart sent him the letter mid August. This is a short version of the 7 steps I and some other suffers came up with.
1 Changes to NHS Choices pages so they are accurate and show the 3 treatments which must never be used
2 An e-mail to every Trust Hospital Clinic Surgery and Dentist telling them about CRPS and the 3 treatments which must never be used
3 Teaching CRPS in every medical school
4 Debate in the full house PM and Sec State for health to meet sufferers then press conference
5 Office to collect collate and disseminate papers from around the world.
6 4% of any NHS underspend to be devoted to CRPS in 2012 that would have been 36 mill they spent 200,000 Cancer got 5,81 billion
7 to use me as a guinea pig for a possible cure
Norman Lamb has failed to even acknowledge the letter let alone hold any talks despite my MP asking why not.
Ian a sufferer from Northern Ireland contacted me a few months back, he arranged to see his MP and the result was that David Simpson met Iain, they have decided that to force action they need a group of MP's so big they cannot be ignored. Sufferers on Facebook and the Pain Support Forum are contacting MP's and arranging to see them explain our condition and how from something as trivial and a sprained wrist or twisted ankle they their family or the friends could end up like us or worse. I am supplying them with documents and a video for their MP's but we need may more.
If you are willing to fight for yourselves, the 16000 diagnosed sufferers and the according to 4 separate medical sources between 240 and 466,000 un/misdiagnosed in the UK then please message me.