Hi everyone, I received the final letter from NHS Resolution about my medical negligence case. The denied everything, which I knew they would, they are not going to admit are they? they had nearly 3 years to get their stories straight. I saw my solicitor who has dropped the case and he talked me through the findings, firstly I found out what care I should have recieved from the actual NHS website, which they never followed, so I don't know why it is on the internet, it is all rubbish. The hospital denied Breach of Care saying that any other doctor would have treated me in the exact way. The problem is they admitted Causation but because they denied the first part of the care, my solicitor can't do anything about it. When my solicitor told me and I read the final letter I felt sick knowing that what they did was wrong but nobody can do anything about it. Well the NHS don't know me, I don't let anything drop. I have now reported it to the Health Ombudsman to carry on with the case. I want it documented about the disgusting care that I had and how I have been left, DISABLED.
Update on my Medical Negligence case - Pain Concern
Update on my Medical Negligence case
Have you looked into claiming PIP for your disability
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It took me a long time but eventually they gave it me. They only gave me the low rate care though because they don't think I am disabled enough, I can't walk for very long and I have to take my shoe off at work because of the pain I am in, which isn't normal. xx
If you get PIP low rate care then that would cover your monthly physio
What other expenses do you have that you need for care?
Mobility is much harder to claim as DWP have set guidance. MH is one. Blindness s another and I think unable to walk or virtually unable to walk
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Ask for a mandatory reconsideration, once they fail with that, submit an appeal as all appeals are currently being overturned and so everyone is currently winning against the DWP. It will take sometime, but the back payments are worth the fight to be correctly awarded.
I have already done this and I sent it to the Tribunal and the two judges could see the pain that I was in and still they didn't award me with the higher amount. They both said that I could manage. It was an absolute waste of time. There is nothing else that I can do. Thank you for your advice anyway.
It took me 4 years to get mine, every 12 month I'd ask for another reconsideration, then appeal it, it took 3 attempts to get mine recognised, though still not had my full award for support, even though I'm house bound 90% of the time. It's one of those that you've got to keep fighting for and never give up, new laws are always coming into force against DWP.
We gave up 2 years after my husbands death of trying to get any sensible response from the hospital we had a complaint against, they will never admit mistakes were made and it became pointless going on, we still haven’t had the inquest and it’s now nearly 3 years after his death, the hospital are refusing to assist the coroner with his questions !!
Thank you for the update Imagine 1 , this is similar to an outcome I received many years ago long before the NHS constitution rights came in. Care did not enter into it. It is interesting that they used the old adage that says if a reasonable body of doctors would have done the same their is no negligence. But today care , misdiagnosis, long waiting times , all come under the guise of negligence including prescribing incorrect drugs. Your doctors owe a duty of care to the patient no matter which service of the NHS you are using, so do all staff working in the NHS . It has to be proved however that they did not take reasonable care. But you have seen how you cannot seem to challenge the service , even big cases where there have been deaths get investigated sometimes many years down the line, and maybe get a public appology and promise to try and prevent future occurances. But speaking from experience quite recently and what we read on here, to spite changes , things still go wrong that patients and some medical staff feel could be avoided therefore reducing long protracted investigations that lead nowhere either for patients,staff or Doctors. The Ombudsman process is another long winded process that usually investigates the same set of facts as the solicitor, often with very little change . However do not stop the process because these matters that seem to be usual practice need to be highlighted or they never change. Do apply for any help to move forward for the future Best wishes and we can only hope the NHS changes to future need too.
Thank you for your reply Katieoxo60, it is disgusting how people get treated by the NHS, that day I went to the hospital because my foot was misshapen and I couldn't walk on it,I expected a level of care that was appropriate for the injury, I should have left with a plaster cast on and told to keep off my foot, I didn't. I have seen the final letter and most of it isn't correct, one of the things that they should have done but didn't was give me physiotherapy once my foot was better, but they never offered it me and they said that they had, there is no record of having it because I didn't. Other things as well but I can't challenge them because they are the GLORIOUS NHS, NOT! So many people that I know have had awful care with them, the stories that I hear are shocking, and what get's me is they have got more money to waste, WHY?, it certainly won't go on patient care. I have contacted the Ombudsman and they are looking into it, even though their time limit is 1 year, I had a slow solicitor who was a trainee, who obviously didn't know what he was doing and I had Covid as well. So this is why everything was held up. Hopefully I will get some help from them, they have helped me in the past with something and the outcome was fantastic. xx
Seems your experiences are similar to mine and the feed back I get from others locally including my own family. I agree they seem to think the NHS is the bees knees but it depends whose on duty . Or whether it is for general publicity. What happened to me was negligent both past and present and if you are not informed it actually constitutes assault. Just lately they do not put casts on limbs even broken ones apparently. Its a proven fact that Physio helps in limb problems. You are not alone in being disabled from poor care which suggests no one is worried about being taken to court as the system is on their side. I have had help by the ombudsman in the past with both good & bad outcomes. Have you thought about how you will go forward in your medical care for future as it is not easy to trust those who have got things wrong i.e NHS staff in one place I presume. Sadly these things leave one feeling vulnerable even when you know the fault lies with others and the staffs pardon so to speak, ie case found in their favour not yours. Even with witnesses and evidence they make them look like liers too this is the bit I have never been able to overcome , deviating the truth to save their reputation. You can only forgive someone who puts their hands up to the error you know. Take care and insist you get good care now but I am sure you will come across more careless situations in future. I'm usually here if you want a chat it can help you calm down talking to others who have been that way. Best wishes with moving forward. P>S you have three years to sue if you can prove the disability is due to poor care.
Thank you for your reply. I am hoping if I receive any money from somewhere whether it is through my wages or compensation from somewhere else I will be able to go private. The lack of care that I received has now caused additional damage to my foot now, not only do I have a very weak ankle because I can't walk on that side I have been walking on my big toe side and it has caused severe arthritis which is very painful. I need an operation but again I will NOT go to an NHS hospital, knowing them they will operate on the wrong toe, I just have no faith in them at all. All this has caused me to have Complex Regional Pain Syndrome which again the NHS have caused. I have injured myself many times and got the correct treatment in the past but since Covid days the treatment has gone to pot plus I have never had CRPS before and it is because I was left with no treatment. The final letter states that the treatment was reasonable, it didn't say it was correct treatment but again they have got away with it. Many years ago a paramedic nearly killed me giving me a drug which I am allergic to having told her and she gave it me anyway, I had to be resusitated at the hospital, I reported her and the reply was it will be on her record, no apology, nothing, so again the GLORIOUS NHS got away with it.
I really do share an empathy with you , I suffer from allergies its taken years to get them to accept this but it is now used as a reason not to try other drugs. The magic word is in your letter, reasonable treatment ,it does not have to be perfect unfortunately. You are right a lot of things have been blamed on Covid or its been used as an excuse not to treat causing further problems for many patients. My local hospital one of the newest ,biggest hospitals in UK has just made the headlines along with five others with a Red rating for baby deaths in maternity. does not give people much faith in what care they will get does it.? But at least it shows that failures do happen and we the patient who suffered poor service only have a narrow way to expose it. By the way have you tried your local Healthwatch? , they represent patients views. During my years of varied treatments, one thing stands out that causes mistakes , misjudgement ect is lack of relevant patient info , incorrect recorded info and jack of all trades amongst staff doing treatment. Your GP surgery especially. Staff should be more specialised in the area they work in not just the consultants. Sadly we are only one patient and some patients see their treatment as very good . It would be interesting to know how many mistakes go down as reasonable treatment. Sorry a bit off subject but we the patients who have suffered and still suffering don't even seem to have support groups for such things. This is long but I recall a freind treated as mentally incapacitateed when they had a rare genetic disability. The only way to try to stop such things is to go public with your experience but that often invites more stress from the medical area. We all believe staff are highly trained but is the training refreshed regularly or tested ? Where do you go if things have gone wrong ? for your health to be reveiwed independently. Enjoy your weekend guess it is difficult to go forward so try one day at a time to reveiw what you need for your future.
Thank you for your reply, it was a very interesting read. Where I had my terrible treatment the maternity unit has killed and maimed many babies and have been put in special measures, I wonder if it is the same hospital as you have mentioned? At the time of my accident I lived next door to the hospital so that is why I went there? I had never been before then because I was never ill. I wish I had gone to a hospital which is probably just as bad but I will never know now. You are right when you said that if the doctor, nurse etc mistreats you or cause patients harm where do they go to complain? nobody wants to know. There are many signs in the hospitals saying do not disrespect our staff otherwise the police will be called, what about the other way round? the patient gets nothing, waiting for hours on end for treatment that is below par, or the English patient needs an interpreter because we can't understand the doctor, but if we were to say this then we would be called a racist. At present I am still waiting for my solicitor to get his finger out and send me the relevant letters that I need for the Ombudsman. I can't send them by email or print them off because I don't know how to do it because I am rubbish with computers and I don't have a printer. I was sorting through all my papers the other night and I think I threw them away because my solicitor had dropped the case, now I need them urgently. My solicitor is probably taking his time because I am also reporting him for misleading me into thinking that I was getting compensation, he even gave me the amount, he shouldn't have done this until he knew for definite. Sorry my post is a bit long but I am so frustrated and you seem to listen to my rantings.xx
Well imagine1, even if you have a printer they dont always work . I'm always getting frustrated with mine as these new Technology take so much time its harder than writing with a pen or a phone call. My freind was accused of racism as you say just a comment that she made not intended that way. But we don't get interpreters as you say when we can't understand their speech , either spoken or on the telephone. Remember sometimes a rant helps you think about the need to do something. solicitors often mislead clients although its against the rules. No one can work out what compensation you will get either its the court who decide that based on the damage to you and loss, plus future loss due to disabilityand need for care . They use trainee solicitors as they are cheaper per hour , but you could use a no win no fee who would not get paid unless they win the case , so tend not to take you on if its a no win situation. Solicitors have to keep the documents for at least three years under data protection regulations, but can return them to the client. Theres so many rules and regs. Private treatment is so expensive today to establish the case, do keep all the documents I have folders of my written medical documents including some printed off the computer and witnessed by my family. Must go my tea will overcook otherwise, Nice to talk to you. Have a phone call to make at 6pm too. Bye for now let us know how things go.
Aww thank you for your reply. It is lovely speaking to you about it who actually talks a lot of sense. I had a lot of time off work over a year and now I am working again I am really struggling. I have to take my shoes off to do my job so that I can walk around the bedroom, I am a housekeeper in a hotel, as soon as I put my shoes back on my feet they start swelling up and are very painful. The only thing that I love doing is my job, I have many friends and the bosses are lovely and I don't want my disability to ruin all this, my husband is fantastic but I am always complaining about the pain I am in, he can actually see it on my face. I have so many problems at the moment, I feel as though I am in my 80's not 55 years old. I hope you enjoyed your tea. xx
Good morning Imagine 1, I have been disabled since in my thirties with arthritic pain amongst other things. My daughter is your age disabled with arthritic pain too . I appreciate what you are saying about work, some tasks are difficult. I used to be on my feet all day at work and my hands don't work like other peoples . I was sacked three times by big companies even though I never let them down . There are rules now that allow reasonable ajustments , its that word again. Fortunately for me I am a pensioner, do try to keep active so you don't become housebound. What about trying flight socks to reduce swelling, or that new Revitive that's advertised on TV if you can afford such things. Been reading about other illness that can cause such swelling and pain, so still room for you to maybe find something to relieve the pain but I am sure yours is due to previous damage to the foot, which might benefit more from physio to strengthen the muscle to support the foot better. Maybe you need a support specially made, like I had for my hands but the NHS does not seem to do these things now. So you have to buy things and try them at a cost if they fail. Catch up with you in the week Busy today.
Good evening Katieoxo60, thank you again for caring and giving me advice on how to deal with my pain, I have bought a bunion gel shield for my big toe, even though i haven't got a bunion I was advised to buy it, luckily it was only cheap, it does help a little bit which is good, it reliefs some of my pain, the problem now is I have developed a tiny white spot on the inside of my little toe and on my next toe, I have swelling and it is very red, so I don't know what has happened there? It is one thing after another, it is all because I can't walk properly, I am slowly ruining my feet. I am going to see a pharmacist tomorrow after work to see what the marls are on my toes and to see if I can have any painkillers that i am not allergic too. It is the pain that I am in that i can't cope with, because I have Complex Regional Pain Syndrome which is very rare, the pain is so much worse than it should be and it starts developing in my other joints too. This is all because of the lack of care I had from the hospital and they don't give a damn. xx
Hi Imagine1, sadly the pain aspect of many illnesses are not addressed very well guess its because they have no total solution. Also one attitude is if you can walk then you are not in pain !!!! Which I abhore we have no choice but to walk do we? There only seems to be certain things like the bunion support you have bought, inner soles, orthopedic shoes, walking aids ect. Or last resort artificial limb replacement. I take a small dose of opiods but its not a total solution and some painkillers can have allergic reactions which only add to the distress, plus causing addiction. Hope your Pharmacy can help at your appointment. I understand what CRPS is I've seen posts from people before on here and it seems to baffle the medics too. Some have been to Harley Street just to get a diagnosis. Best wishes for a better outcome soon including the Ombudsmans service I here the Ombudsmans service is taking upto 18 months to sort things. So keep trying other things for now .xx
Good evening Katieoxo60, I saw the pharmacist this morning and I was shocked at what she told me, firstly I went originally to see why I have 2 bad sore toes on my bad ankle side, she looked at my toes and she said that I have a severe infection in them and they need sorting out quick or I will lose my toes. she asked me how I have been walking on them and I told her that I work and am on my feet most of the day, she said she doesn't know how I am managing it because most people would be using a walking stick or not get up in the morning especially when I told her about my other problems with my foot. The problem was she gave me the name of an anti inflammatory to put on my toes to take the severe swelling down but she couldn't prescribe it because it has to come from my doctor, Because I have recently moved house I don't have a doctor so she told me to go to a walk in centre which I did, but they wouldn't see me only in casualty which was a 6 hour wait which I wasn't prepared to do having worked most of the day, so now I am still in agony, working tomorrow and have to wait for my new doctor to register me, until then there is nothing I can do. xx
Sorry to hear of the problems trying to get help with your feet, like many things the chemist can't dispense without a signed GP prescription, but I thought the walk in could!!!!!! and you have to be GP registered to use out of hours . So maybe by next week you will be re registered and can get some help perhaps based on the chemist recommendation. You are doing well to continue working while ill, but speaking from experience I guess it takes your mind of things a little. do you have any cream or the like to keep the infection under control just till the doctor sees you. An old fashioned tip salt water relieves infection a little. But might sting when you put your feet in the water. Salt water helps to heal the skin and can do no harm. Good luck
Thank you for your advice, I will try that now. When I went to Accident and emergencies at our local hospital where the walk in centre is I was told that i couldn't go there I had to go to the urgent care centre, which was a 6 hour wait, I was surprised because the pharmacist told me that is where I needed to go. I have started using Ibroprofen for the pain, I didn't know I could take this with my many allergies but I can and they are taking most of the pain away, so at the moment I am having them every 4 hours. xx
Just a quicky, thats good news that the Ibuprofen is OK I can't take that due to worsening of my breathing. But it is good if you can. Hopefully things will improve gradually now and even better when you see a new doctor. Got a lot of hospital appointments running up to Christmas plus a day care proceedure. But Ambulances are going on strike so may not get the appointments as they transport me to the hospital. But will catch up with you when I can. xx
Good luck with your appointments and I hope you still manage to get them, it is ridiculous the way that the NHS are going on strike and the ambulances, and they want more money, oh and they ARE getting more money for what exactly? It makes me sick all the ill people and we are paying their wages through council tax. Good luck with everythingxx
Hello Imagine 1, the strike is to do with wages and the financial crisis in the country. It amazes me because when I worked for the NHS contracts did not allow strike action only work to rule and a picket line to put over there point . We were only allowed to put out one main hot meal a day cereals for breakfast and sandwiches for evening tea . Everything had to be done to health & safety regulations during work to rule, and no overtime ect. Strike I believe does not honour patients care but times have changed and staff need to be well, stress free ect to meet patient need for care. Many people have become complacent about the staff working for the NHS and expect them to jump through hoops, but millions of patients are seen in a day, treated and sent home happy. As well as the other side of the coin.
I know it is about the wages why they have gone on strike, my friend works as a cleaner at our local hospital and she is on nearly £15 per hour, so I don't know why they are wanting more money, if this is what a cleaner gets a nurse, doctor etc must be on a fortune, I feel sorry for carer's they do a fantastic job and they are on minimum wage for all what they do. Now they should get more money but you don't see them going on strike. I should be on more money for what I do, I am one of the people who keep hotels busy, a housekeeper but as long as I have a job, I am happy.
Doctors in Canada disabled me as well. It’s unfortunate but it appears they are above the law. They will NEVER admit they made a misdiagnosis or mistreated us.
It’s very disillusioning that people so highly regarded in society actually 1. profile people, 2. judge us by the way we dress, talk or by our weight, 3. don’t listen to us when we know our bodies best and where the problem might be and 4. dictate and misrepresent the truth in their consult or surgical notes. They have the power to destroy lives.
What happened to you and myself is criminal behaviour. There is no justice. I feel your pained reality knowing that doctors do cause harm and are never held accountable. It’s a travesty.
Thank you for your reply Konagirl60, I know it is absolutely disgusting how people are treated. How can they get away with it? it isn't there money that I would be taking, I needed compensation for the massive cockup they caused, I tried to go private to see a physiotherapy which I did once, even she agreed with me about my care being awful, I told her what I had been through and she couldn't believe it. It was too expensive, it would have cost me £160 per month and that was only 4 times a month. It isn't as though I want to blow the money on a holiday or waste it, I need that money to get me better, but they don't care, it hasn't happened to them, I wish it had. I am a shadow of my former self, I was so fit and active and I even promoted walking football for ladies over 35 to join our club, I was in the local paper with photos of me playing football, I can't even look at a football without getting upset. The GLORIOUS NHS have a lot to answer to, but they never will, because they think they are indestructable. I am so sorry that you have been through something similar, I think the law should be changed, if they admit to harming the patient then they should be accountable for it but they can't at the moment because they think the care? that I didn't receive was enough.xx
I SO agree with everything you have said. Good luck with everything. Best wishes, Danni
I am going through something similar. Have you tried this website for help in finding a decent solicitor?
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The problem is because I have had a solicitor on the case for nearly 3 years the time limit is almost up and I can not use anyone else, which I think is shocking due to the fact how long it took? this wasn't my fault, everywhere was in Lock down because of Covid and solicitors were not working. I don't think anyone else will take the case on now anyway. The NHS are all sticking together and no matter what i do now is going to change that, I have consulted the Ombudsman though and they are taking the case on. My solicitor has a lot of my paperwork and the Ombudsman needs them but he is dragging his heels and I am sick of emailing him, phoning him. It is through his lack of knowledge due to him being a trainee that I can't get any compensation. The whole idea of a solicitor was to fight my case he did nothing, The NHS denied it and he said they are dropping the case. They are not going to admit it are they? Absolutely useless solicitor, all the promises he made not to get anything.
Ignore the 'Statuary right of limitation', as you've already brought the claim to the 'NHS' and so stops the limitation. The limitation is for how long you have, before you can't bring a claim, but so long as the claim is submitted, the limitation stops.
I've got a claim against the NHS, that keeps resetting.
I have just found out from my notes that the NHS have denied the fact my medical records are inconsistent and the clinicians evidence, how is that my fault? It is one big cock up and because it is the glorious NHS, the solicitor won't fight it. He just wants an easy case, I think my solicitor should have gone back to them and said see you in court, I think they would not have wanted the publicity and I would have got something, but the solicitor said that there is nothing else he can do. Crap or what?
In all honesty it sounds like your solicitor is a douche.
The claim is always 'Duty of Care' with negligence (I'm currently studying TORT (Civil Law) and pursuing a case against the local authority).
1: Is the careless infliction, by act or omission, of this kind of harm on this type of "plaintiff" by this type of defendant recognised by law as remediable?
2: Was the defendant's conduct in the given situation careless?
3: Was it reasonably foreseeable that the defendant's carelessness would have inflicted on the plaintiff the kind of harm of which he complains?
4: Was it the defendant's conduct that caused the plaintiff damage?
The outcome of the 'NHS' investigation, should only amount to them covering their back and so your solicitor shouldn't be dropping the case. Even if the proviso is 'Another Dr would have done the same' and yet information supplied, contradicts the response from the NHS.
The only time a solicitor should drop the case, is if the information from the 'NHS' investigation, doesn't support the 3 requirements of 'Negligence' and so the 'NHS' acted within the law.
Honestly if it was me, I would get a second opinion. Try Irwin Mitchells, I've had good experience with them.
I tried Irwin Mitchell at the very beginning, nearly 3 years ago and they wouldn't take the case on, saying it was hard to get compensation from the NHS, it is now too late to get a second opinion because the 3 years are nearly up and no one will take it on now, even though it has took this long not my fault, I can't believe it, and now the solicitor has lost an important response that the ombudsman needs ASAP, so I am stuck there as well, without that they can't help me.
The only thing I can suggest, is go to court and ask for a Judge and chambers. Present your evidence to the judge and your case against the NHS and ask for a judicial review. If the Judge is in agreement with the evidence and your case, he will issue the case to the High Court, you will also be fully covered under 'legal aid' as well and so go for the best barrister you can find, if the Judge agrees with the review.
Hi. Thank you for that information. I didn't know any of that. It's pretty eye-opening but when I complained to the NHS I had a letter from them and the Consultant lied and lied and I have kept all of their letter's but I became far too ill to pursue a case. I think they rely on that ! Thank you again and good luck. Best wishes, Danni
Hi. I am SO sorry that you have had to go through this horror. It's bad enough that you have been left in pain but it's exhausting having to fight the NHS arrogant, patronising, uncaring....I could go on ...! I'm not talking about the wonderful Nurses, most of whom do care but the people who deal with negligence cases and don't know or want to know about the emotional and physical impact that fighting them does to us ...I could rant for hour's! Our hospital left me for 15 month's with a tumour on an Xray but they didn't bother to do anything about it. 15 month's later I was rushed in with Pneumonia and my Thoracic Consultant wondered why nothing had been done but I told him that I didn't know that I had a tumour! After that it was scan's, biopsy which showed Adenocarcinoma in my top right lung! I had been feeling so ill in that 15 month's but the Dr.s didn't believe me and told my husband that it was in my head and I really needed to get up and about! Once it was found ....for the 2nd time!.....I had a Lobectomy but the non treatment has left me with multiple health issues and I have lost all trust in our hospital .Long story short...I saw a Solicitor who said that it would make me even worse trying to fight the NHS . I didn't even want money (although it would have been handy because I can't work now or drive !) I didn't have the strength to fight them but when it's a genuine claim like yours and mine and many other's, then we shouldn't have to be put through even more hell to receive some compensation for what they have put us through! Off the soapbox now!I , so , hope that you can carry on with your fight but please don't make your pain worse! Stress does awful thing's to our bodies and fighting the NHS is extremely stressful! Good luck and please let us know how you get on . I am thinking of you .
Very best wishes,
Danni
Aww thank you very much for your kind words, I am so sorry for you for all what you have been through, you are right it is disgusting how we are treated, I didn't ask to be disabled, before this happened I was so fit and active, now I can hardly walk and I am in pain from the moment I get up to going to bed. I do take a mild painkiller which works the odd time but it isn't a cure, this is all because of a nurse in casualty that didn't know what she was doing, she didn't like the look of me because of the way she spoke to me but I get that everywhere I go, I get constantly looked at all the time, my husband says it is because I am pretty and slim and I am a lovely person. What annoys me most is that the solicitor took nearly 3 years to tell me the NHS have denied it and I can't go to another solicitor because the time would have exceeded and no one would take it on, plus they have admitted to disabling me but they haven't admitted to the care that they gave me, so basically if I lost my ankle or foot because of the care that they gave me it wouldn't have mattered because that was reasonable, HOW? the law should change and if they admit to disabling the patient they should pay out compensation to help that patient lead a better life than the one that they are left with. Thank you for reading this and sorry for going on a bit but it makes my blood boil how they are getting away with it. I will let you know how I get on, if the Ombudsman can help me at all.
Take care
Karen
The treatment you have had is disgusting. It shouldn't matter how we look, we should be treated with dignity and respect. 2 Nurses in our hospital treated my Mother appallingly badly and were so nasty to her . They had rushed her in and I was told by her Consultant that she had a tumour. I was so upset that I didn't think to ask whether she had had a scan. She hadn't and when they cut her open down the middle they found she had a blockage....no tumour! 3 day's later she had a bad infection and 4 day's after that she died. 1 Nurse apologised to me but I told her she was too late and they should have apologised to my Mother. My Mother was an amazing person and very brave, going with my Father to India from London and that was in the 1940's so, no running water etc. The medic's are SO quick to judge us without knowing anything about us !Please don't worry about letting off steam. That's what we are all here to do as well as asking question's and helping other people. I truly hope that you get the help and support that you need and any time you feel as though you want to explode just write here. It might help. You can always P.M. me if you would rather. I , also, can't do anything about my lack of care or support and the negligence of not reporting my tumour still upsets me but my Lobectomy was 4 year's ago and I have my 4 year scan in February although I have just had an Xray to see whether the cancer is back. Previously, I walked my dog's for 2-3 hour's a day and now I can't have a dog and I can't drive.
I wish you all the best and send you a big hug. Take care and remember that we all have a core of steel which keeps us going. Good luck.
Very best wishes,
Danni x
Thank you for your wonderful, kind reply. I am so sorry that your mother died in the hands of the NHS, they don't care about anything only themselves and their pay packet. People tell me that it isn't the nurses at fault, I disagree with them, It IS their fault as I know. If they don't care about the people that they treat they shouldn't be in the caring profession. At present I am still managing to work, which I love and don't want to leave because of my disability. I hide it very well at work because I think if they knew then they would treat me differently and I don't want that. I have to work in a bandage for my hand, I have carpal tunnel syndrome, I was offered an operation but I can't have it due to having Complex Regional Pain Syndrome which will make it worse, I have to wear a strapping for my big toe because of my arthritis, and I have 2 plasters on my toes due to having an infection, I can hardly walk and when I have finished work, I have to take my shoes off to walk to the car where my husband waits for me, I must look a right state. The shoes I wear are very soft otherwise I wouldn't be able to get any shoes on my feet. I have always been a positive person but now I am the complete opposite, I am so negative and I hate being like this, I just think to myself all the time what will happen to me today?
Take care of yourself
Karen x
Hi again Karen. I have a question for everybody to answer! Why does the Medical profession treat us as though we are all moronic hypochondriac 's ? More than 1 question! Why on earth ( I am trying to be polite! ) do they think that we WANT to be in pain and that we don't know our own bodies? I spoke to somebody today who has also gone through hell with the NHS and when I tell people what I have been through they tell me what they or someone they know has been through. I was also told that the Nurses in our hospital have to do a course to ' teach them how to care !' I could not understand why somebody would want to go into nursing if they don't have compassion and a drive inside them to help people and help them to recover from horrible illnesses! The world has gone completely insane! The planet hasn't but human's have! I couldn't do a Nurses job but I have been a ' carer ' for my parent's and friend's but I can't even do that now.My lovely, new Pain Clinic Physio sent me a copy of a letter he has sent to my Dr.s and I must admit that it's an amazing letter and he put in it " today she tells me that she has not had any rehabilitation for any of her physical problems ". I told him that I had had no help or support after the Lobectomy and he was pretty horrified so I might get some help now . If he doesn't get blocked! I don't think that he will take any nonsense from other medics! We will see!
I really hope and pray that you all get help for your pain. It's exhausting but the medic's just don't seem to care now. Frightening for all of us ! Please take care and I truly hope that we can have 1 complete day and night without pain! Not tooooooo much to hope for....is it ? Keep going Karen. We are all here for you and for each other!
Love and hugs,
Danni x
What a lovely post Danni54, you are definitely right they are morons and like you said that is being polite I could say a lot worse, having to go on a course to be able to care for people is absolutely ridiculous, but it doesn't surprise me. I have always had problems with the NHS since I was a small child I am now 55 years old and still having the same problems. I have looked after myself all my life, I have never drunk any alcohol at all, I don't smoke, take drugs, I am slim having lost 2 stone in weight, from a size 12 to a size 8, so I can't understand why I am always ill in some way mainly bone and muscle problems. I am seeing my new doctor on Thursday so I hope he can help me in some way, but I am not holding my breath. xx
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