Thyroid e petition request: Hello, I hope you... - Pain Concern

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Thyroid e petition request

Pooh10 profile image
2 Replies

Hello,

I hope you don't mind me posting this on your forum (I can delete if necessary). I'm trying to promote a UK e petition created by Thyroid UK below. Please sign and share on social media or other if appropriate. Many thanks

The reason why I have posted on your forum is that thyroid problems can so often be an associated factor in so many conditions e.g. high cholesterol, fibromyalgia, depression, anxiety, food intolerance, absorption issues such low vitamin B12, vitamin D, iron and more, chronic fatigue syndrome, fertility problems, weight problems, sleep issues, other auto immune disorders and many more.

Please help and if you agree sign and share (Facebook, Twitter, etc) the e petition below.

Thyroid sufferers really need your help.

Anyone can succumb to Thyroid disease although it mainly affects women. The results can be mild to very severe. It has the ability completely to destroy a person's and their family's lives, e.g. unable to work, infertility problems, relationship problems and severe mental health problems. I could go on.

I myself have lost nearly 15 years to this debilitating disease. Despite all efforts, I've lived in constant pain, experienced extreme weakness, cognitive problems, severe dizziness/vertigo to name just a few symptoms. This made me largely house bound, unable to participate in much of daily life and reliant on others for help. Throughout this period, the NHS only offered me thyroxine (T4 the inactive form of thyroid hormone).

Thankfully, having done my own research, I'm now on the road to recovery having found other treatment options namely, Liothyronine/Triodothyronine (T3 the active form of thyroid hormone) and Desiccated Thyroid (NDT) which contains T1, T2, T3, T4 and calcitonin (the same as a human thyroid).

Many people do well on the conventional treatment of T4 only. However thousands of thyroid patients are suffering unnecessarily. The economic cost to the UK in terms of general and mental health care (including inpatient care), welfare benefits and employment costs of maintaining this narrow approach must be significant and I have little doubt would well exceed any additional cost which a broader choice of NHS medication options would require. So in real terms, although hard to quantify, there would probably be net saving to the Exchequer and NHS.

Lets see if we can make a difference for thyroid sufferers in the UK and potentially globally.

All we need to be heard is 10,000 signatures. Why not help us reach our goal of 100,000 signatures.

Many thanks for you help.

Best wishes

Melanie

epetitions.direct.gov.uk/pe...

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Pooh10
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2 Replies
chriswinkle profile image
chriswinkle

Hello Melanie

I have signed your petition as it contains information I had not heard before and I believe certainly needs looking into. As I suffer from some of the conditions you mention I think I will ask my Dr about a Thyroid check when I next see him. Thank you for your post, do keep us updated.

I am sorry you have had such a bad time but pleased to know you are now feeling much better and hope that other sufferers will try looking into your info.

Best wishes,

Chrissy x

Pooh10 profile image
Pooh10 in reply to chriswinkle

Many thanks for your support. The last few years have been hard and it was only through reading other peoples' stories I joined the dots.

If you go ahead with a thyroid test it is always useful to have a printout of your results. The people on the thyroid forum can always help if necessary. A lot of the time the Dr only tests the TSH (thyroid stimulating hormone) and maybe the FT4 (free t4 - inactive hormone). This doesn't always provide the full picture. It is quite possible to be within the normal range and still be symptomatic. My levels where fine for years but I had trouble even standing and carrying anything was impossible. It is only when I changed meds and most importantly got meds optimal that I improved. I hope you feel improvements soon. x

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