I posted a while back that I was on the Trioc trial, and had started to have problems with my balance. I was taken off the trial and have now eventually seen a neurologist who feels I have PNS ( the above) I was diagnosed stage 4 OC in 2014 and had debaulking surgery and 6 rounds of Carbo/Taxol I responded well, then went on Avastin.
Early this year my CA125 started rising, a CT scan showed I had two lymph nodes in my abdomen and I was offered the trial. I am now watch and wait, I would be interested to hear from anyone else who has PNS. What treatment you may have had, how it has affected you and at what stage you were diagnosed. I was told that commonly people who are yet to be diagnosed with cancer tend to diagnosed with PNS first. And others maybe a few months after a cancer diagnosis. Not years as in my case.