Anxious at being discharged

[sem10]

I just had my 3monthly check up which I'm now a year post op and have been told today that I'm now discharged . I feel very anxious about this as I thought that I would get checked at least yearly for 5 years . I had stage 3a microinvasive borderline cancer . Is this the normal practice for this .

[Hidden]

Hi sem10

This does seem to me too soon.. but I don't know the procedure for borderline though...

you can give the helpline a ring and speak to Ruth Payne she is well informed and feel sure she could answer the questions you have.....that is what's good about this charity there is always someone you can speak to and they give unbiased advice ...love x G x

Ovacome Tel [phone]

[charlie12]

Hi there sem10

Sorry you have this to contend with.

Definitely get this checked. I also had a borderline tumour removed, no staging was done , but was told I needed to be seen annually for 7 years. I have since negotiated to be seen every six months as I still have pain etc and this was agreed to.

Best wishes

Charlie xx

[sem10]

thank you both for your quick reply. Im just a bit shocked i feel i have been let down from start to finish . i have never seen an oncologist or had a cancer nurse to talk to my check ups were from my gynae consultant dont get me wrong she has been good and thorough but ive mostly seen her hso in her absence whom today discharged me . I got longer check ups when i had abnormal smears lol . You have to laugh or you cry I just feel i have no safety net now i was told to go to my gp if any problems .

Better go nightshift tonight but dont think i will sleep

hope you are all well

take care

sem10 xxx

[Hidden in reply to sem10]

Hi sem10

I am so sorry... do try and give Ovacome helpline a ring... they will ring you back ... and might put your mind at rest... I've rung them in the past and Ruth Payne is so nice and does know a lot about what the procedure should be... Love x G x

[joolzm]

Hi sem10 I can honestly say that I have some of the exact same thoughts, having been diagnosed with the same stage and grade as you following my hysterectomy in ocotober. I was expecting a much worse outcome but have struggled with my diagnosis a lot, feelings of guilt (could be much worse so get over it), doubt (what if they were wrong) etc etc.

I was "discharged" on being given my results 2 weeks after the op which I found hard to come to terms with - what no follow up??! However, this site and others have helped me immensely with understanding this disease and my gp recently referred me back to the hospital as she realised I had lots of unanswered questions. The consultant who carried out my op was absolutely lovely and very honest, explained that I am never actually "discharged" and must contact them anytime I have any concerns. This has finally made me appreciate that there is no black and white here, no foolproof methods of monitoring or screening, and that u have to take responsibility of being aware of whats going on in my body. It's scary. But knowing I'm not alone in feeling this helps me and I hope it helps you too. Take care Julie xx

[Hidden in reply to joolzm]

Hi Julie,

Lovely answer thank you love x G x

[suzannehadenough]

Sem10

I have been in similar situations... was not diagnosed in 2006 when i should have been and was left till i found the cancer myself in 2011 i am meeting with the consultant that didnt inform me next tuesday... I think in todays climate of medical cut backs we have to stand up for ourselves much more than ever... And i firmly beleive that if your not happy with the decision of being discharged then you must stand up and say so... ask them politley for routine checkups for you own peice of mind im sure if you tell them you concerns they will come up with a happy medium for you...

Take care

lots of love suzanne.

xxxx

[sem10]

Thank you all for your support . I took your advice and contacted Ruth from ovacome who encouraged me to write to my consultant re this as I believed I was told I'd be monitored for five years however due to worry and nightshift I could not sleep lol so phoned them . Turns out my consultant is off at present for some time but her receptionist is looking into it for me which is some relief . I was also informed that my last ct scan showed enlarge vena cava but not to worry as they think it is due to the water I drank prior to scan just wondering if anyone knows anything about this

Thanks again for all your support and hope you all keep well and live life to the full

Sem10 xxx

[fannyanny]

Hi Sem10,

Just looking at some of the others replies and I strongly agree that you should be monitored at least every 6 months up until 5 years. If your oncologist is not doing this PLEASE go find another oncologist!! Preferably a MEDICAL one and not CLINICAL. It makes all the difference! This is your body - your life and sometime you know - they do get itwrong? Take charge !! Wishing you all the luck x