Hi all. A mass was found on my left ovary during a transvaginal ultrasound after I had lots of symptoms causing concern, the GP then sent me for CA 125 test which came back as 52. I have now got an appointment with rapid response gynea clinic on Wednesday. The GP says this will have to be removed anyway due to size and the symptoms I am having.
Does anyone know how long surgery usually is after this appointment if they suspect OC?
Someone told me I could be taken for surgery within a week and others have said it could be months?
Feeling anxious? X x
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jojo27
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Hi JoJo. I'm sorry that you are feeling so anxious. Everyone here will have a different story to tell. I was immediately admitted to hospital and operated on within a week. Others have had a longer lead in time. The meeting on Wednesday will clarify things for you and will help you feel more settled interns of timing. I would suggest you take a list of questions you wish to ask as it can be daunting and if someone can go with you, all the better to take in the information. My advice to you is to keep as calm as you can. Ask as many questions here as you like and try to remember a mass can be many things not only Ovarian Cancer and a raised CA125 can also be raised for many reasons. Wishing you all the best for your meeting and the results xx Trish
Thanks Trish. My sister is coming with me on Wednesday which is great.
My job is very challenging as I am a manager looking after 12 people with learning disabilities, I think I feel anxious as if I get admitted or have surgery very quickly I am not prepared and have not had time to make plans or anything else.
I have been trying to think of questions I may need to ask so I am prepared.
They have said to come prepared for biopsies but I am not sure what to expect really.
But however I feel positive and the outcome will be what it will be and I will have no alternative but to get on and deal with what it all may bring.
I appreciate everyone's kindness on here as it is a really scary time.
I'm supposed to be renewing my car insurance, so it's much more fun talking to you!
Surely it's your manager's job, not yours, to ensure cover arrangements can be put in place, if and when needed, preferably with your involvement of course.
Perhaps it would be wise to flag up this health worry, if you feel comfortable enough with them, so you could do some contingency planning.
It might take the worry off your shoulders a bit?
Very good advice from Trish already.
Try and take someone with you as well as your list of questions. It can be really helpful to have another set of ears and a brain alongside yours.
If they do suggest surgery is necessary, I think they generally get on with it pretty quickly - I think I waited not more than two or three weeks.
It's easier said than done, I know, but try not to worry too much. You can do a bit more worrying when you know what you've got to worry about!
There's lots of wise support and experience on this site so I'm glad you found us.
Make sure you really enjoy the next 10 days and give yourself some treats which will take your mind off things! xx
I had surgery 4 wks after, however my mass had solid bits in it and my CA125 was much higher than yours. It might just be a cyst and this may have caused your CA125 to rise slightly. Wishing you all the best. Try not to worry and don't go lifting anything heavy in the meantime. Ann xo
I agree try not to worry, and remember your health is more important. We all tend to worry about our jobs and how will they cope but as my gp pointed out to me, that is what the manager is paid for. Our job when faced with tests is to try and relax and prepare for them. Of course it is daunting having more texts and getting results but hopefully all will be okay for you. They always manage at work without us and when we are back working, you are back working, lesson learned
I know how worrying it is, but the main thing to think about is your docs have spotted it early and things are moving quickly. I was diagnosed 12 yrs ago nearly, operated on quickly, however my CA125 was 500+, if you want more details you can click on my profile. Prepare for what's ahead. It's completely normal for the med team to operate to see what's going on inside you. There's only so much they can tell with scans etc. it's better to be safe than sorry. Your supervisors will cope with putting plans in place at work. I know you're in an area where you're relied on, but there will be back-up plans. In the meantime have a look on our parent site if you haven't already, look at our parent site ovacome.org.uk There is lots of info under the 'resources heading, in Factsheets. There's also a helpline number if you want to ask a nurse about anything. Good luck . Hope you get things sorted quickly
Hi, my surgery was in a week i had everything removed with robotic surgery, hysterectomy , recovery time was so quick. mine was stage 3 ovarian but a friend had a large cyst and it was benign. ladies from my chemo were very low ca125 and stage one, four years later they are doing great. Mine came back and i am on more chemo, get discouraged but come back to my hope and faith in God. Thankful to be seeing my second child off to college. I know how hard the waiting is , from talking to other ladies at chemo you sound in good shape, I even keep in touch with ladies that were stage 3 and fine today, so praying for you and others
On GMTV a 31 year old had a similar experience as she had 'No Children' decided not to go ahead with de-bulking 'Total Hysterectomy' advised by the
'Surgical Oncologist' took a step back as she wanted children.
Had a course of Chemotherapy that put the cancer into remission and allowed her to have a beautiful healthy Boy, and remained in remission after the birth.
Case History's prove 'Ovarian Cancer' after radical surgery returns regardless
of 'Radical Total Hysterectomy' think carefully and make important choices when you speak to Surgical Oncologists after the CT scan as you can have the surgery after a course of Chemo if necessary. Ca 125 (50) is not really a marker for 'Ovarian Cancer' other factors can play a role in the increase
Your decision your choice, good luck with the CT Scan results and the biopsy, will be thinking about you. Murdina x
I had U/S, cyst on left ovary, CA125 was 34. Diagnosed August 2012, cyst removed Sept 2012, full hysterectomy Oct 2012 after cancer diagnosis. So quite quick, would have been quicker if surgeon had his way.
My wait for surgery was just under three weeks. I then had another two weeks to wait for my results.
All the very best to you and I hope everything goes well.
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