anyone else get low in their magnesium levels on chemotherapy
magnesium : anyone else get low in their... - My Ovacome
magnesium
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Le-gra143
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Yes. My levels were recently low when they tested the morning before my 3rd chemo.
1.2 was my level. My oncologist added magnesium to my pre infusions on day of chemo. Im keeping a close watch on them because my understanding is that the IV magnesium sulfate added only stays in system around 36 hours. I’ll consider oral supplementation when I get results of most recent levels. Oncologist suggested oral. Have researched a lot as there are many types. You can get combinations of different forms of magnesium.
I’m also struggling with increasing neuropathy.
Hi moonbeam
Yeah mine was 1 and hameglobin gone down to 10. They we’re considering blood transfusion but from preassement on the Fri to the Monday it went up by .6 so they didn’t kinda wished they did. I’ve to be vigilant and I’ve been getting dizzy and really exhausted, exhausted like leaning on counters. I didn’t realise it takes 4 hours for a blood transfusion
It also takes 40 weeks to bring up your magnesium levels? What I read
They gave me prescription for magnesium sachets so I’ll try them
Best of of luck to you and thanks for reply
Yes I am becoming aware of feet so mine was at the 3rd chemo
So is it more and more symptoms as it goes on I wonder
I had been creaming my feet all along but I do notice they are getting soooo dry
I am getting the sachets today so we will see hope I can take them tummy always iffy for a few days
Hope you feel good today
X
Yes I did and was despatched with a week of tablets after one of my sessions. Didn’t have to have them again though.
Was it low
Did you find them good?
Why is it saying it takes 40 weeks to bring levels up
I have taken 1 tablet magnesium oxide regularly up to 4 a week. This has been since I had a 2nd round of chemo in 18months, 4 years ago. I have told my onco and she is happy because it seems to help bowel movements, which could have been caused by adhesions during surgery
I can’t recall levels as it was four years ago now but was only a short course and they were ok for the next cycle x
Morning, yes my magnesium has been low and I am given sachets to take every time I have chemo. In Feb whilst still on Niraparib (currently back on chemo) my haemoglobin became very low and I had to have an urgent blood transfusion. My only symptom was I became breathless almost overnight. I only take the magnesium sachets given on prescription by my oncologist. Good luck
Yes in my 6 months chemo l had 3 occasions when mine were very low but was given tablets each time and was fine after so try not to worry it happens sometimes. Love & hugs SheilaFxxx
yes my magnesium is always low, it’s 0.7 at the moment. It was always low through chemo and hasn’t improved whilst on Niraparib. My oncologist prescribed sachets but I hate taking them, so didn’t bother last month, not a good idea, my oncologist insisted that I do take them and do I take one sachet at bedtime. It also helps keep my bowels moving, my oncologist says it is much like milk of magnesia which we used to take for constipation back in the day.
Best wishes Julie x
When you took them did you feel better
I read it takes 49 weeks for levels to come back up
It is the breathlessness and the nausea fatigue it has brought on me and with the hameglobin dropping I think because of the bleeding from rectom. It was for 8 days
I get funny reoccurring symptoms in between cycles. I get the bone pain (from injection) which I’ve pain somewhat controlled . I get two days of tummy pains and I’m in the loo
I get 3 lumps come up under the two armpits
I get 2 days of headache and then I’m up and down with fatique this lasts now
I’ve just done my 4th cycle of chemo on Monday
Do you get any reoccurring symptoms
Thank you
Oh poor you! You are having it rough. I’ve been lucky whilst on Niraparib and not had any nasty side effects. I do get breathless and have fatigue but not sure if that’s because of the low magnesium. Xxx
How do you do all this.....have you ever considered the side effects are not worth it...i guess not Iam not happy at 74 yrs old with stage 3c and really dont know what the future will bring but Mom had Myelodysplasia and had low grade fatique and it was all the cancer drugs with their side effects.............god bless all of you...looks like this Ovarian cancer is very common....do people refuse treatment? what percentage of people do.
Hi there
That’s low
I know how you feel taking all the tablets etc and now sachets that is what I’ve been prescribed
I just hope they work
I would have preferred a infusion of it as it takes such a long time to come back up I read
Hope you are improving
Thank u for reply x
Hello Le-gra143 Although I have experienced low levels of haemoglobin whilst on Rucaparib ( enough to have had to have many blood transfusions) I have not experienced low magnesium until very recently. I am currently back on IV chemo and after about a week after my 1st session I became really weak and suffered palpitations and ended up in A&E. I was sorted out with sodium and magnesium infusions and a beta blocker and I have been well since. However, your post and the helpful replies had made me realise I have to be more vigilant and proactive myself about this. At the blood test before the chemo the nurse did say my magnesium was a bit low but said it was okay to go ahead. Now I will ask more questions and see if I need to take supplements. So I thank everyone for alerting me to this. Our shared experiences are so helpful. BB.
Hi badger
I had palpitations in the 3rd cycle and I have been feeling worse since so they did a ekg all ok
then but like you didn’t think to Percivere it until Monday on 4th when I was telling her I had bled for 8 days and she went looking at my bloods and my hameglobin was low and my magnesium was very low so they we’re considering blood transfusion ( does it take 4hrs) but because it cane up by 06 they said I was ok to go ahead with the chemo but gave me magnesium sachets and a number for the a&e oncologist nurse and if I’m bleeding again or if I feel poorly to ring her
So I’ll be more vigilant too I thought it was just the process
Are you feeling any better
Thank you for reply
X
Hi Le-gra Really sorry you have been going through all of this. Blood transfusions themselves do not take more than an hour or so in my experience. However, there is a lot of waiting for blood results and the actual blood to arrive. They did make a difference to me helping my breathlessness mainly. All this is process I think it just long and very different for each woman. Keep vigilant and do ring a&e. This is what I will be doing in future.
Thank you I am well at the moment so taking every opportunity to get on with life. My next chemo is next week so we shall see how that goes.
Do take care of yourself. BB.
Oh thanks badger for reply I feel better now after yours and all the ladies replies
I feel I can ask anything here and so many understand
I don’t feel like I’m being dramatic so thank you very much for taking the time to reply
Best of luck with next cycle
My magnesium level dropped a bit on chemo, but never to the point where I was deficient or they wanted to take any action. That 's probably because I take a magnesium supplement in tablet form every day, regardless of chemo. Most of us are low in magnesium, its a common one to be short of, which is why I started taking it daily about 20 years ago - it certainly helped with the night cramps I was getting at the time.
Hi there
Oh do you I was only taking magnesium a few yrs ago as I was weight lifting
I wish I had been taking regularly as I hear it takes a long time to replenish
I have palpitations and real bad fatigue
And I was getting nausea which I don’t usually get and loss of appetite so I just assumed it was from the chemo
I hope you are well now bamboo x
Take the sachets you've been given, they may work faster than a pill, though I've no clue as to what the formulation is. This 'it takes 40 weeks' to get magnesium levels up is only for those with ongoing chronic, serious magnesium shortage, so when you finish the sachets, just get some magnesium tablets, though of course, you can absorb magnesium through the skin via a spray too. I don't like that method so much, can't tell how much I've absorbed, if any, so I stick with the tablets. Your magnesium shortage is not chronic, its acute and is likely due to chemo, though yes, you may have had low magnesium beforehand. One other thing for later - if you take Vitamin D3, take that and the magnesium at the same time, it helps with absorption of the D3. As for your symptoms of nausea and fatigue, I don't know which chemo you're on, but the likelihood is its the chemo causing those sympoms.
Hello, I am not low on Magnesium but my Husband has struggled with that, the infusions really help we went to a specialist because there's so many supplements not saying you need it but if any Teal Sisters struggle with it "Slow Mag" from Amazon has helped him tremendously brought him back into normal range not the same scenario but he hasn't had to have the weekly infusions.
Hi there
Ok that sounds interesting
Is he feeling better with the infusions. Had he many symptoms
Palpitations and breathlessness I felt dizzy and just leaning on counter tops
Hope he doing well and you
Yes, the infusions helped and were not that time consuming the symptoms that your feeling are typical of low mag heart racing, shortness of breath and dizziness the infusions should really help you feel better fairly quickly have you had your first one yet?
No they gave me sachets to take
Haven’t took one yet as the meds make me sicky and it’s hard to take them
But hopefully tonight as I ate something there with ease I would love a infusion ye are all helping me to know I can ask for it I didn’t realise you could get a infusion of magnesium so I’ll monitor myself more better going forward
God I love this group so so helpful feel like I’ve have loads at my back
Appreciate everyone’s time to reply to me
And you saintgermain
Yes, it brought it up slowly but your Onc may have your dose a bit higher given the circumstances. Push for the infusion at times it's frustrating that we have to be our own advocate and navigator. Plus the infusion will get into your blood system a lot quicker and its painless. Yes, I love this site.
My mum has constantly fought magnesium levels, always borderline too high to prescribed oral, ( and that always affects bowels!) But often just low enough to need infusion ( adding an extra hour onto chemo day) They didn't seem to consider her able to monitor the oral doses herself so as to try to maintain a better level without causing bowel problems. She's now trying to eat more green veg and a small amount of dark in an effort to keep her levels above the threshold and so far it seems to be working. Hope you can find a solution that suits you. Xx
Hi there
Thank u for reply
I do eat green veg and nuts is it from the chemo you get the low magnesium levels
When I looked into the symptoms it’s is like chemo symptoms so I didn’t say anything last month just this month about the bleeding and the checked my preassessment bloods and seen my haemoglobin went down and magnesium was very low
But after Monday bloods haemoglobin went up slightly so they just said I’ll be monitored
But I would have loved one
I have a feeling I will have one before I finish this chemo
Hope your mom doing ok and you x
Yes, they made me take Mag supplements
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