Follow up after treatment. : Diagnosed stage... - My Ovacome

My Ovacome

17,618 members19,895 posts

Follow up after treatment.

hilaryjane profile image
8 Replies

Diagnosed stage 3 hgs oc April 2021. Chemotherapy and debulking surgery and then 10 doses avastin. NED May 2022.I have been having 3 monthly CA125 tests since then which I think the new CNS follow up service want to change to 6 monthly. Scans are not part of the follow up here which my GP was surprised at, so I'm wondering what other women are offered in other parts of the UK.

Thanks

Written by
hilaryjane profile image
hilaryjane
To view profiles and participate in discussions please or .
Read more about...
8 Replies
delia2 profile image
delia2

Hi. I’m not in the UK but I think most people only get scans if they have symptoms or their CA125 rises. In my case CA 125 is not a marker so I get scans every six months. It’s normal to be checked every three months for two years.

Robbo16 profile image
Robbo16

I’m in England and I get 3 monthly CT scan and CA125. My last active treatment was April 22 (2nd debaulking surgery). No chemo since January 21.

Jannibags profile image
Jannibags

Hi! I'm 3 years in and had 3 monthly follow up with my consultant for the first year and then she moved me to 6 monthly as I was stable, and, so far, I still am!🙏🙏🙏🤞🤞🤞. I don't have scans, just CA125 and physical examination, suppose I would get a scan if I had symptoms . I'm in North Manchester. I think maybe the view is why expose us to radiation unnecessarily , which makes sense really doesn't it? I suppose it would be different if the CA125 wasn't a marker to begin with, but it was for me. I was fortunate to be at an early stage, 1C1 borderlines/low grade serous. Hope you continue to be well!😘

mrstadpole profile image
mrstadpole

At the moment my CT scan has confirmed that I am cancer free.I was diagnosed in 2017 with the usual procedures and have been taking Olaparib (PARP) for 3 years.I always have a monthly blood check at GPs followed by a monthly phone call from oncologist.Scans about every 9 months.I always have had this.Before covid it would be face to face appointments.

Purplepansies54 profile image
Purplepansies54

Hi there Hilaryjane,

I am in Lancashire and finished frontline treatment in May 2022 and am on Niraparib. I had two follow up scans 3 months apart and am due a third scan this April which will be six months after my last one.

I agree about the radiation though, if not needed I would prefer not to have that many. It’s always a balance isn’t it as this horrible disease comes back so quickly for some people. My CA125 is a good marker for me and is very low atm, I suppose if CA125 isn’t a good marker then the only way to check there is no recurrence is through symptoms and a CT scan.

Long may you continue to be NED!!

Saintgermain profile image
Saintgermain

I'm in the US low grade Endometroid 18 months NED I only get a scan if something feels off I was having some upper abdominal pain my Gyno/Onc didn't want to do a scan so I called my Primary to order it as I was paranoid showed some inflammation in the intestine was due for my colonoscopy had that all fine. I was switched to alternating every 3 months with my Gyno/Onc for pelvic exam and Oncologist since my CA125 is a good indicator for me I have that done every 3 months.

AnaJim profile image
AnaJim

Hi Hilaryjane,

I finished active treatment in April 2022 and have had 3 months check up for the first year. My oncologist confirmed today I will be monitored every 4 months from now on. She doesn’t order scans unless bloods look abnormal or you have concerning symptoms.

I am being looked after by Buckinghamshire Healthcare NHS Trust. It looks like each Trust/Region has different protocols, I suppose it depends on your personal circumstances as well. I was diagnosed Stage 3B HGS, had debulking surgery and 6 Paclitaxel/Carboplatin sessions. NED April 2022.

I wish you all the best!

Anax

hilaryjane profile image
hilaryjane in reply to AnaJim

Thanks, seems there a small variations in follow up pro endures. I think I will try to continue with 3 monthly CA125 tests for a bit longer.Keep well everyone.

You may also like...

Scan Delay - follow up

beginning of the month for first follow up and as I suspected \\"it's back\\". I have now had the...

Three monthly follow up

Hi peeps Saw my oncologist today. Ct scan requested as lymph node in groin bigger. I kept being told

life after treatment

diagnosed with stage 3 high grade cancer in March at the age of 54. I am wondering if others have...

Missing top up treatment

wanting a little advice. I am on a chemo regime which has treatment day 1 and top up day 8....

Checkup after treatment

one year after surgery and 6 months after chemo . All NED. I saw my oncologist a month ago and when...