Thank you everyone who responded to my post, sadly the outcome is not good ,after discussion with surgeon and the team my husband and I have decided on palliative care at home ,the cancer has now spread to my bowel and is causing the obstruction, my chances of getting through surgery are slim and the problem could occur again within months,to go through so much only to face the same thing again is more than I can bear , I've had a PICC line inserted today for nutrition because I can't eat ,to say the least it's been an exhausting sad day.This forum has helped me so much since I was diagnosed four years ago, I am so grateful for the support and kindness of all of you.
Cheryl. Xx
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So sorry to hear this news Cheryl, you have been such a support to all of us on this forum. I thank you from the bottom of my heart, but still have hope for you,.I am hopeful you will be with your loved ones for Christmas. Love and hugs, Jas x
Dear Cheryl, you have been so courageous throughout these four years and your’s and your husband’s decisions must’ve been tough and it’s completely understandable that you’re tired out from the relentlessness of this terrible disease.
I hope once you get the nutrition running through your veins, you’ll feel much better in yourself.
I had a blockage caused by the cancer before I even started having chemo and an op. I remember the Colo -rectal surgeon at the hospital wanted to operate but the gynae surgeon asked him to try me on a course of powerful steroids which did clear the blockage. I also had the nutrition intravenously. It did give me energy again.( I then went into treatment).
I just want to wish you lots of love and that you have a beautiful Christmas despite all the trauma you’ve been and are going through, with your husband and family.
Cheryl, I dont know how I missed your post the other day. I am so sorry to hear that the cancer has spread & its causing you so much pain. Unfortunately no matter what I say to you now is not going to ease your pain or your heartache but I just wanted to let you know I am thinking of you & I 🙏you will get more time with your family & that the palliative nurses can make you comfortable as you have gone through enough already. Thank you for all your advice & encouragement to me since I joined in 2019. If you still have the strength please let us know how you are. Sending you lots of love & strength Xx💞
Dear Cheryl, I'm so sorry to be reading this but relieved that you are going to be able to go home and be with your lovely husband. Sending you massive hugs and lots of love wonderful lady, love Kerry xx
It must have been so difficult Cheryl but I can understand why you've made that brave decision. I really hope you're feeling more comfortable now at home and can spend quality time with your family again.
Dear Cheryl I’ve been following your posts since you joined the forum and have admired your courage and optimism. This is the news we all dread getting. I wish you and your husband a calm and peaceful Christmas together. Sending by best wishes and comfort. I will be thinking of you
I’m so sorry 😞 I pray nearly eveynight for everyone on this site. I hope they can make you feel better. I was very Ill couple of weeks ago, my red blood cells crashed badly but my white blood cells and platelets were good. They gave me blood transfusions and a bone marrow biopsy. The fluids of the biopsy came back clear no blood cancers now just waiting for the bone marrow part to come back. My GP said I had a bacterial infection but it turns out she was wrong and I had been walking around with shingles for a month so they think it was either that or the medication that made my cells crash. I will keep praying for you and sending you love and hugs
Dear Cheryl. I am so sorry to hear that you have had this difficult news. You are still entitled to the best care and I am sure they will have started to get that lined up for you. I spent most of my working life as a district nurse caring for people like yourself. If I can be of any help to you, I am here.
So sorry to hear this, Cheryl. I am new to this forum and couldn’t respond earlier. I will have you in my prayers and hope to hear from you soon that you are feeling better.
Dear Cheryl , I have had you in my thoughts and prayers and am so very sorry to hear your news . I hope that you can get some relief from your discomfort very soon .
I sincerely hope that you get to spend some quality time with your loving husband and family this Christmas Season.
Oh Cheryl, so sorry to hear this. Hopefully the palliative care will give you much comfort. You have been a warrior through your four year journey. Sending my love and prayers, Donna xx
It's hard to find words Cheryl. I can only say that it's been a privilege to be a witness to your bravery over the time I've been on here. I can only say that it takes more strength & courage to make this decision than to put yourself through more pain without the promise of a positive outcome. Your family must be so proud of you. Sending love & so much admiration. xxxxxxx
I’m so sorry to read this Cheryl . I wish I had the right words to convey how much I admire your openness and honesty about your situation. I am sending love and strength in the hope you are able to be pain free and to enjoy time with your family.
I am so sorry you’ve reached this place. I think we all dread what comes with bowel obstructions. You have dealt with this disease admirably and honestly and taught us all a lot. Thank you for sharing with us. I wish you comfort and peace and loads of love.
So sorry to hear this, Cheryl. My prayers are with you. You could try Fenbendazole. No proven track record for OC but has helped with other cancers. It's being trialled for OC at Stanford at the moment. Check with your team as they might advise against. I'm no expert but when the chips are down, I'll try anything. I have OC and checked with my consultant and she said it would do me no harm.
I don't know but my research assistant, aka sister, might. We watched a video on YouTube. Melatonin, aspirin (small doses) also recommended. UK does not prescribe melatonin in any dose larger than 2g but you can source from US. I have 10g, 60g, etc. It's perfectly legal there. The Joe Tippens protocol is where I heard it. Found it: youtube.com/watch?v=Wkf01IG.... It's an hour long or so. One of the questions is on OC but not sure where it is in stream. Could you get an RA (sister/husband/child) to listen to it? I may not be able to post this here so will send as message too.
Hello Fendweller, my heart goes out to you. I often follow your posts, you always give such good advice. I understand that you are tired of it all, I just so wish you could hang on in there; I am convinced we are on the brink of a breakthrough (not before time) whereby this horrible disease can be treated more like a chronic illness or even better we can all be cured. You and your family are very much in my thoughts and prayers. 🙏 All my love Xxx
Dear Cheryl, I have read many of your posts along your journey with oc; like everyone else here, I have really valued your honesty when sharing, warm vibes and concern for many of us here. Personally, I feel warmed at your courage to be kind to yourself and loved ones - for me, the most precious human gift you can give. Thank you for being you. Lx
So very sorry to hear of the progression of this awful cancer. I hope they will make you comfortable enough for you to enjoy time with your family during this Christmas season. Our paths are similar as I have been on chemo since diagnosed Dec 2019. It is so hard to keep fighting but you are an inspiration to all of us!
Thank you Debbie, I'm now in my local palliative care unit , being very well cared for ,my husband and family can visit anytime , I'm sleeping a lot and tire after even a short visit , but I'm certain I've done the right thing ..xx
There is nothing they can do? You have fought hard in the past and present. I am hoping time with family will be uplifting for you and bring calmness and peace. Much love
I'm thinking of you, Cheryl. This is exactly what scares me so much about OvCa. And people say don't worry.. you'll just gently drift away at the end. Well.. that's what I'd wish for you.. so much. It's not fair you should have to be so miserable. Is it possible to get some tranqs or 'I don't care lala' kinda meds so you're not stressed.. if you want that? Much love and hopefully your discomfort will lessen somewhat at home. xx. Maus
I'd hoped to drift away quietly too , I'm being very well looked after by my local palliative care unit, I have a mild anti anxiety drug that goes through my syringe driver along with morphine and anti nausea ,I'm quite comfortable and I'm able to sip water and juices also jelly and ice cream ,an ice lolly is sheer heaven , I won't say don't worry because you will , I hope you're one of the lucky ones,but you will be cared for .xx
I'm much more comfortable, husband and relatives can stay with me , but I don't need them to at the moment, when I deteriate they will. Husband is coming and going all day , I'm only a ten minute drive away xx
I have been thinking of you, Cheryl, and am very glad to hear that you are much more comfortable. May you be surrounded by love and family this Christmas season. Hugs and love.
Apologies for delay in replying. I have been out of the country. Am very sorry to read this. You have been so strong and such a support to others. The main thing is that you are comfortable and happy with your care. Thinking of you ❤️Xxx
I can't tell you how sad I feel about your news. You are amazingly brave and supportive to us all on the forum. I hope you are kept comfortable and enjoy the Christmas with your family. Love and best wishes to all of you. xx
I have been following your journey these past two years since I joined this forum. Sending you hugs and love. I think you are a very brave woman... someone to aspire to. I hope that you are not in too much pain .
I don’t respond often but I read this forum every morning and celebrate and am saddened with everyone’s good news and trials. We began our journey with OC at the same time and I have been emboldened by your bravery and desire to live. My heart sank with your recent health deterioration but I am so happy palliative care is assisting you. I think of you every day. May peace fill your heart.
You are the reason, after my last CT scan, when my second recurrence was diagnosed, and chemo was determined, that I said not now. I have a grandson being born any day, the holidays with family, my 65th birthday and a few more memories to make before I go down this road again. I want to live life my way as much as possible. Chemo will be there in February when I am ready to hunker down and deal with it. I surprised myself with my words but gained the strength from women like you.
Blessings to you. Know that you are loved in this forum.
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Bowel obstruction 
Second line Caelyx and bowel obstruction
Total bowel obstruction (may be upsetting)
