1st Recurrence

[YDLSmyth]

Hello Ladies - got the devastating news yesterday that they found a 2cm tumour on my peritoneum near my liver and a couple of swollen lymph glands on my scan last week. I thought something was going on as my CA125 was slowly ticking up at each blood test.

I was diagnosed in May 2020 and had surgery last August with three courses of chemotherapy before and after the surgery.

They are meeting on Friday to decide on whether to do a second surgery or put me on monthly Carboplatin / Caelyx. They have stopped the Niraparib as it’s not working. I was on it since November of last year.

Is there any hope for me at all now?

Love Yvonne xxx

[Lyndy]

I am sorry you’ve had this news Yvonne. We all hope it won’t come back but it’s just so good at it! The good news is they have a good idea of where it is and what to do about it.

This is definitely not the end. I promised myself that I would get a second opinion and see if I could get on a trial if a recurrence was suspect ed. It was a really empowering thing to do. I learned a lot and was reassured that my local team was doing the right thing. I would do the same again I think. Maybe you could think about this? Could you find a surgeon or research team that can offer you an alternative or even just more information about how your particular disease works?

Don’t despair…you can deal with this xx

[Katmal-UK]

Hi Yvonne, so sorry to read about your recurrence. I was diagnosed 3b in Oct 2007 , given 2 years but despite 2 recurrences I’m still here. I totally get yr question about whether there is hope for you, I asked myself the same question several times. The answerI decided is yes, I’m still here, still breathing, still have fight., so to answer your question I’d say yes. Put that positive head on and fight. We are all here beside you willing you on. Big hug. Kathy xx

[Realistic]

Dear Yvonne think most of us have got the tee shirt on this one so we know just how you feel.But there us light at the end of the tunnel. They will just try something else read Katmai post.

Most of us have been through the same and feel your pain & despair. Sometimes it helps to get a second opinion. But dont give up 2 years ago l nearly did but 2 years on lm doing the 100

Mile challenge for breast cancer research and

have smashed it over 130 miles so far. Never thought ld be able . Yes l get my off days but they don't last long. I truly believe we can do this and to the lady who's husbands got pancreatic cancer. My darling boy won that battle and is still here helping me with my battle

We can do this. Sending love & hugs please stay positive. SheilaFxxx

[PPSCENE]

Definitely lots of options out there! Keep marching on. There are lots of treatments out there x my mums on a trial. Very happy to share details with you x keep positive. There is hope and treatment xxxx

[Cher96]

Hi Yvonne I am also living with this alien near my liver and it seems like we can all just get along with a variety of meds that are now available. This is a chronic disease that we can live with so I’m told. Let me know what you and docs decide.

Cher96

[Kaitlinsmum]

Hang in there Yvonne! Please stay positive and focus on the love of your family and friends. Eat well. Do things that make you happy. I hope your medical team come up with some other treatment. Im currently still putting all my faith in Niraparib.Good luck x

[organicinna]

Hello dear. I wander if they do second surgery, do they cut again on that healed huge scar? And it will have to heal again for 2 month ?