I had a total abdominal hysterectomy, removal of ovaries, tubes, cervix and omentum with optimal debulking at the end of September. I am not sensitive to CA125 so cannot use that as an indicator.
I went into the hospital on Dec 16 with a fever. They did a CT scan and said I have a mass in my pelvic area (5cm x 4 cm), and a mass in my liver (I don't know if it's new as I didn't have a CT before surgery).
I had my 3rd carbo/taxol treatment on Dec.28 ( delayed a week because of low white blood levels).
Around January 2, I became incontinent. GP sent me for a vaginal and pelvic ultrasound. She prescribed a drug that helped at first, but stopped helping after a week or so even after doubling the dose. Radiologist said she thought the mass was larger, but hard to compare ultrasound with CT.
I had my 4th carbo/taxol on January 26 ( delayed a week because of low neurophils).
I'm worried that the chemo isn't working since I have a new mass so quickly after surgery and during treatment.
My gyne-onc told me in December she doesn't want to panic, but I'm worried about my time being wasted if it isn't working as it's been 4 weeks between treatments and I have two to go.
From what I've read, if there is a recurrence before 6 months you are considered platinum resistant. I don't know how you find out otherwise, but if I have a recurrence in treatment......
Has anyone had recurrence and possibly spread during chemo? If yes, how did they treat it?
Has anyone had incontinence? If yes, how did they treat it?
Thanks so much, big hugs to you all!