Recurrence in pelvic area and matastized mass in liver during 1st line treatment

[remarkablynice]

I had a total abdominal hysterectomy, removal of ovaries, tubes, cervix and omentum with optimal debulking at the end of September. I am not sensitive to CA125 so cannot use that as an indicator.

I went into the hospital on Dec 16 with a fever. They did a CT scan and said I have a mass in my pelvic area (5cm x 4 cm), and a mass in my liver (I don't know if it's new as I didn't have a CT before surgery).

I had my 3rd carbo/taxol treatment on Dec.28 ( delayed a week because of low white blood levels).

Around January 2, I became incontinent. GP sent me for a vaginal and pelvic ultrasound. She prescribed a drug that helped at first, but stopped helping after a week or so even after doubling the dose. Radiologist said she thought the mass was larger, but hard to compare ultrasound with CT.

I had my 4th carbo/taxol on January 26 ( delayed a week because of low neurophils).

I'm worried that the chemo isn't working since I have a new mass so quickly after surgery and during treatment.

My gyne-onc told me in December she doesn't want to panic, but I'm worried about my time being wasted if it isn't working as it's been 4 weeks between treatments and I have two to go.

From what I've read, if there is a recurrence before 6 months you are considered platinum resistant. I don't know how you find out otherwise, but if I have a recurrence in treatment......

My questions:

Has anyone had recurrence and possibly spread during chemo? If yes, how did they treat it?

Has anyone had incontinence? If yes, how did they treat it?

Thanks so much, big hugs to you all!

[Katmal-UK]

Hi I can't offer advice I'm afraid but just wanted to send you a big hug and hope that someone comes along who can give answers/advice. Have you tried calling Ovacome for advice? Kathy xx

[remarkablynice in reply to Katmal-UK]

Hi Kathy, I'm in Canada so participate online only.

I'll take a big hug any day! Thanks for your message.

[Neona]

Also sending a big hug. I haven't started chemo yet so have no knowledge to share but sending best wishes.

[remarkablynice in reply to Neona]

Thank you Neona!

[Hidden]

I can't answer you query but I am also sending a big hug over the pond , Marian xxx

[remarkablynice in reply to Hidden]

Thank you Marian!

[Cropcrop]

I can't give you any advice as I've not had your experience but thought a big big hug and lots of love couldn't hurt. Speak to your cancer nurse specialist together with your oncologist and see if they can give you some solid information, do try to steal clear of stats on the internet they can be very alarming and sometime bogus and out of date. Sending the hugs and love and wishes for better news soon, be strong lovely lady ❤xx Jane

[remarkablynice in reply to Cropcrop]

Thank you Jane!

[Hidden]

I think Jane has come up with a good idea and do make an apt to speak with your Cns or Oncologist or perhaps your Cns might be free at your next chemo, sorry I cant be more helpful

[remarkablynice in reply to Hidden]

Thank you Suzuki!