Ascites drain shutting bowel down and green bile sick.

[Lileth]

Hey lovely ladies, some advice please. I have primary peritoneal cancer, on third line weekly taxol. Back in February I started being sick large amounts of green bile, it would build up over 4-6 hours till the pressure got to much and it would come out like something from horror film. Had a build up of acities which was drained and did give me some relief for a week or so but was still being sick. Was rushed into hospital with pneumonia, sepsis and my bowel had shut down. Was in for five weeks with nil by mouth and a tube down into my stomach. Started a monthly chemo and got home and stronger, thought it was just bad luck.

But it has just happened again after another drain at beginning of October, they drained seven litres off, felt iller instantly but did have a couple of good days but then admitted back in being sick about a litre at a time of the dark green bile again and bowl shut down again. They said the pertitoneal had stuck to the bowel where the cancer has thickened it. Was in for three weeks this time with same treatment. Has anyone else had this happen? I am keen to put a plan in place as acitise is building again although I am hoping the chemo will knock it back. My thinking is that I only have some of it drained over a longer period and have antibiotics to stave off the post drain sepsis. Have put this to my oncologists which she agreed with but she didn't come up with any answer herself, which has made me nervous. Apart from that I'm doing good, enjoying the autumn 🍂 can't go out much but much better each day 😁

[Solange]

Oh Lilith, you poor thing, you have been through the mill. I'm sorry I have no advice to give, really, as I've never had experience of how poorly you've been. I think your plan that you suggested to your Onco seems a very good one. I hope it improves things for you in the future. Sending lots of love and sympathy. Love, Solange 😊💐🤞

[Lileth in reply to Solange]

Thank you Solange, I hope so too.

Blessings to you 😊

[recurrentovc]

I'm sorry Lileth, that sounds like a huge challenge.

7 litres is a lot to take off at one time, so taking it off slowly sounds like a good idea.

My upper limit is 4.5 litres at a time, otherwise I am too sore and doctor's worry about fluid imbalance. I go for drainages about every 3 weeks.

Sending you strength. X Lee-Ann

[Lileth in reply to recurrentovc]

Thank you Lee-Ann,

Yes I thought it was too much to take, in hindsight I should of made them stop. It was over 2-3 hours with 20min breaks in-between. What time frame do they drain yours over?

Blessings to you 🌸

[recurrentovc in reply to Lileth]

They usually take 60 to 90 min to do it.