It has returned

[Shorty864]

Not in a good place tonight, went to the hospital this morning with the hope of seeing my oncologist or seeing someone who could confirm that the ascites was back and therefore the cancer was back and which meant I would not be going on holiday on Friday. So got to see my oncologist who confirmed the ascites is back in my stomach this time and not my lungs. Tomorrow I will be returning to the hospital to drain my stomach and then it is back to chemo (Carboplatin and Cylex) and Avastin - just finished chemo at the end of July was not expecting it to return so quickly - quite depressing.

[Welshandproud]

Oh I'm so sorry. That just isn't fair. I send you all the best for your drain tomorrow. You will feel much more comfortable when the fluid is drained. I'm so sorry about your holiday and hope you will be able to go after the next round of chemo is over. Sending you lots of love. Sian xx

[Shorty864 in reply to Welshandproud]

Well I am here in hospital waiting for the team to arrive. Can't wait for it all to be finished. Thank you so much for your reply - makes me feel not alone. Having said that I have my long suffering husband by my side. Anne xxx

[CallmeMum]

My lovely,

This disease really does suck what I find hard is people who don't deserve it get it and cancer doesn't go for people who should have it. On a positive note though you are getting carbo, which is surprising as the oncologists usually say carbo resistant if the cancer returns within 6 months of finishing chemo. Xxx

[Shorty864 in reply to CallmeMum]

Thank you my dear will check with my oncologist - always wondered how carbo resistant presented itself. Take care your self. Xxx

[Howick01 in reply to CallmeMum]

Quite shocked at your comment that cancer does not go for people who should have it.We who have cancer should definitely not have that attitude and if we do there is something seriously wrong with us.'I do not wish this on my worst enemy 'says it all.

[CallmeMum in reply to Howick01]

When I see the likes of Robert Maudsley who has been in prison since 1977 or Ian Brady who was in prison from 1966 until his death in 2017 for murder, then I see so many wonderful people who have become an online family all with the same horrid disease then yes I will say people do or don't deserve it. I'm very angry that cancer took Cindy at the age of 60 and I'm angry that friends I have made on this site have cancer or have been taken too soon its really not fair.

[Howick01 in reply to CallmeMum]

I do not wish to argue with you but the law is there to deal with them.Yes there are dispicable people out there and we will never be able to stop them but we must remain humane otherwise we will be eaten up with hatred.

I wish you all the best for the future and you will never hear from me again on this site.

I have OC as well and my brother has prostate cancer .My husband died from gall bladder cancer within 3 weeks of diagnosis.We did not even have time to say goodbye as we were called too late to the hospice.So I understand your frustration.

[Katmal-UK]

So sorry to read your news. Hopefully the hospital can get you right so you can get on a holiday xx Kathy xx

[Shorty864]

Still haven't got into the mind set of going on holiday as soon as the coast is clear for a few days and not think in weeks. Well to say I am not nervous would be a lie and hanging around doesn't help. Thank you for reply - much appreciated. Anne Xxx

[Solange]

I'm so sorry to read your news. Do hope you're being drained now. Hopefully the next lot of Chemo will knock the hated cancer on the head. Maybe the Avastin will help the Chemo. I had Avastin six years ago. Felt like packing it in when I felt low with aches and pains, now and then, but persevered and am so glad I did. Seemed a bit hard, still having it once the Chemo finished, but at least it only took a short time at the hospital. Good luck and I really hope you do manage a holiday. Love, Solange 😊

[juliamillen]

What bad luck. Poor you. I know you will feel better once that fluid is off. I hope the chemo goes as smoothly as possible.

[Solange]

Oh, just seen you're Anne. Would have been nice to use your name - sorry. Xx

[Shorty864 in reply to Solange]

Dear Solange, just had the drain inserted and am already feeling the benefits. They were telling me about people who do this every day - so I consider myself lucky in the grand scheme of things. Well I can only hope that Avastin does the same for me as it has done for you - will have to keep in mind what you said when things get difficult. Thank you so much for sharing your story and may I pick your brain if I need any advice about Avastin? Best regards. Anne

[Solange in reply to Shorty864]

You're very welcome to pick my brain, Anne, but I can't guarantee an answer as my memory is hopeless nowadays!! 🤔We can always try though, so feel free. Xx 😊

[Shorty864]

Thanks a lot my Juliamillen - keep my fingers crossed for chemo and especially the Avastin. Anne

[Barmycharm]

So awful and dispiriting for you. Just when you were trying to pick yourself up and move on. Hoping the drain makes you feel more comfortable and the chemo works better this time. Thinking of you and wishing you better and able to enjoy a holiday soon

Claire xxx

[Shorty864 in reply to Barmycharm]

Thanks a lot for your kind thoughts my dear - I have had over 3 litres removed up to now and feeling a lot lighter - was trying to imagine carrying two big plastic bottles of water around with me and realizing why I now feel different!!!! Anne

[Lyndy]

I was so sorry to read this news.... this disease is always ready to kick you in the teeth when you have other plans. I do hope that you get your holiday once treatment is finished xx

[Shorty864]

This is the third holiday I have cancelled this year and this time I was going back to Rome, where I lived for 40 year, to see all my old friends - so very disappointed. Thanks a lot Lyndy for you kind thoughts. Anne

[ellseybellsey]

So sorry to hear this I do hope the draining of the fluid helps, and also Carbo does it’s work.

Sending you virtual hugs.

Ellsey xx

[Shorty864]

Dear Ellsey, I am hoping that it all does its work and hope to also follow the protocol of the COC. Thank you for the hugs my dear. Anne

[delia2]

I’m so sorry about the recurrence and especially about missing your holiday in Rome! I’m glad you’ve been drained now and hope chemo will take care of the ascites for good. 🌼🌸🌺🌻

[Shorty864 in reply to delia2]

Thank you so much Delia - feel so much better today - keep my fingers crossed for the holiday!! Anne

[Grace123]

So sorry to hear your news - sending much love and prayers xx Sundra

[Shorty864 in reply to Grace123]

Thank you for your positive thoughts Sundra. Xx

[Katiebairdie]

I’m sorry you have been having such a rotten time. We all look forward to a holiday after chemo.

Very best wishes to you.

Kathy

[Shorty864 in reply to Katiebairdie]

I was looking forward to seeing my old friends, but will hope I get a big enough break after this treatment. Thanks a lot Kathy.

[Artgreen]

I’m so sorry to hear this , so soon after the last chemo. I’m glad you are feeling more comfortable now though. My oncologist is more open than I expected to the science of the COC protocol and I’m researching my Low Grade Serous Carcinoma using the metro map in Jane McLelland’s book (How to Starve Cancer). I’m getting hold of most of the supplements and the GP is prescribing the drugs (still to do battle on the antibiotics but I’ve printed off some of the supporting papers from PubMed and other kosher sources). It looks so much more hopeful for us as a complementary approach. Thinking of you.

All good wishes, Alex

[Shorty864 in reply to Artgreen]

Dear Alex, Yes I think we have to follow the traditional and complementary a long with a big dose of positivity. Today I am back fighting, rang COC and got the list of what they need and wrote to my oncologist who has sent me the necessary documents, busy day, but have just sent the docs. of to COC and feeling much more positive. Have finally learnt that I have stage 4 high grade serous ovarian adenocarcinoma - whatever that means and I think I have to go back and read Jane's book and try and understand that map. Thank you for your lovely reply. Anne

[Artgreen in reply to Shorty864]

That’s brilliant news! I felt too overwhelmed to try to understand the metro map at first but am getting to grips with it now. I’m rooting for you xxx

[Vicx1977]

Sorry to hear your news Anne, hope all goes well and you can get on your holiday soon! Lots of love, vickie x

[Shorty864 in reply to Vicx1977]

Dear Vickie, thank you so much your positive thoughts - we all certainly need them. Best wishes. Anne

[Bettyxxx]

Sorry to hear you are suffering again xxxx sending you lots of love and best wishes

Diane

Xx

[Shorty864 in reply to Bettyxxx]

Thanks a lot Betty for your positive thoughts. I send my best wishes to you as well. Anne

[Birdsong222]

Bugger that its back so soon Anne. My heart goes out to you. I know how l felt when mine recurred after nine months. You'll feel so much better after the drain. Your team will sort you out and l feel sure you can do what is necessary and then get on with life once again.

I go for my first visit to Rome and Florence next week, a holiday which had to be cancelled till l'd finished treatment. I shall say hello to Rome for you and you will get there soon, l feel sure. Think how exciting that trip will be seeing all your friends. With my very best wishes Sylvia x

[Shorty864]

Dear Sylvia, Bugger is exactly want comes to mind when your oncologist tells you, but unfortunately we can't use it such circumstances, although I am sure my oncologist would completely agree!!

You lucky lady, I was so excited about eating some great meals and maybe a glass of wine. Here's hoping that I get there some day!! Thanks a lot my dear. Anne xx

[CynD]

I feel you on this! Terrible ascites upon diagnosis and recurrence. Got so bad I couldn't eat, drink, and trouble breathing. I got so huge I couldn't reach my privates. Then again couldn't eat or drink so no bowel movements anyway, but wiping after peeing was nearly impossible. I was drained 3 times in as many weeks, 15 litres and 30 lbs! So hard on your body, but carbo/doxil for 1st recurrence seems to be helping. I'm in the states, 3c high grade serous carcinoma - ovarian/primary peritoneal, BRCA 1 & 2 negative. God bless you!

[Shorty864]

I really feel for you and you seemed to have suffered more than me - not a good place to be. I also had pleural fluid on my lungs and had to be drain many times and in the end had a permanent drain put in. I have the same cancer as you, but i am stage 4 and BRCA negative as well. Yes thank goodness the chemo seems to get rid of it. Well the best of luck my dear, just started a new regime, Caelyx and Avastin - hopefully it keeps it away for a while at least and hopefully not too many side-effects. Take care. Anne xx