Referral

[Bobbyo1]

Having a referral tomorrow to see a professor at st Charlotte's hospital in London travel down from Norfolk today five years since diagnosis could not have debunk operation but had operation on the otemum had no chemo since two years ago because of this they sending me for a pioneering operation looks of questions written down to ask worried because of neurophenia which I had before my cancer let you know how i get onxx

[Lindaura]

This sounds like a very interesting, hopeful and terrifying opportunity.

I assume this surgery is meant to unstick your organs and get at the cancer that is stable, but still lurking.

Wishing you the very best for your surgery and recovery.

Be brave🙏🏼

Laura

[Katmal-UK]

Hope the consult goes well, do let us know how you get on xx .

[Solange]

Good Luck for today, and what's to follow, Bobbyo. Will be keeping my fingers crossed for you. With love and a big hug, Solange. 😊

[BeeWild]

Good luck hope it goes well x

[Bettyxxx]

Hello Bobbyo

If its prof F she is amazing she did my recurrence operation 18 months ago and i am still doing well. The hospital and care was amazing too. Message me if you want to know any more

Love Diane xx

[thomas62]

Hi Bobbyo,

I was also a patient of the amazing Prof.F. who operated on me following 2nd recurrence. If anybody can help you it will be her. Good Luck and Best Wishes. Gwen Xx

[Missmuffet32]

Hi Bobbyo1

This sounds really encouraging for you. I wish you well. I think we would do anything to get rid of this awful disease. I’m in Norfolk/ Suffolk too. Been attending James PAGET/ Norfolk and Norwich but now at Addenbrookes. I hope you get all your questions answered. Please let us know what the outcome is and what you decide. Best wishes Margot 🙋🤞

[Bobbyo1]

Just to say my operation will not go ahead as they had told me when I went to addenbrooks for some tumour that was removed from my otemum the first time 5 years ago that it was too risky to do a debulk the professor agreed when she found out why with the little information she was given she did not realise that I am a neutropenic and have been before I was diagnosed and had nothing to do with the chemo also I have epilepsy and it would not make any difference to my cancer so it would be better not to break what not broken and if needed to go down the chemo route as it will be much safer so back to my consultant that referred me all she had sent was an a4 piece of paper so professor had my blood taken to look at as she also asks about platelets and numbers which I was not sure of will keep you informed thanks for you replys

[delia2]

Sorry you had to make the trip for nothing, but I guess you now have more knowledge of your condition. Good luck with your treatment options. You didn't mention whether you had a friend or partner with you for the consult? I found that I needed someone else there who would remember what the doctor said because I was always overwhelmed.

[Bobbyo1]

My husband did go with me he has been my rockx