Hello everyone. Am reading all posts and always think " Oh this lovely people knows everything about their cancer, treatments and medical terminology and I don't know anything. English my not first language but I lived in England 27 years and of course don't need interpreter. But after 9 month since diagnoses, operation and 6 chemo , 9 moth of internet search about cancers I still don't know what is my CA125? I never saw the same oncologist twice The seem to circulate patients randomly to different doctors each visit and telephone chats ? is it normal on NHS ? And they where never gave me and figures and numbers about my blood results. Sometimes I think this is because am foreigner or may be gave them impression that I wont it understand anyway ?
Do I need to know precisely my CA125 every time & Is that important to know more than " your marker is gone down, its normal and not worrying " ? I was asking them some other questions of course but I decided not ask about "prognoses " only )) Few month ago I ask them to be able to have access to my reports and scans. Because my fiend in Russia who had breast cancer 10 years ago was shocked and surprised I don't know my reports etc. In Russia doctors talking to patients about everything apparently !
After that I was chasing Royal Marsden secretary for whole month to get me access to my reports online. Finally they send me lots of printed pages saying they can not at the moment do it electronically. And to this day I still have no free access From that printed pages I understood from that pages some information about what they cut of me during the operation and my diagnose but numbers in charts with blood results told me nothing )) Of course this Wednesday I have telephone appointments and will ask about CA and that i would like to educate me about other stuff.