Coping with side effects.

[Doodledays]

Is anyone else on weekly Paclitaxel and 2 weekly Bevacizumab regime for platinum resistant high grade serous epithelial Fallopian tube cancer? Had stage one disease , surgery and chemo which meant to be curative , wasn’t and return of cancer to lymph nodes 4months after end of chemo. Now on this regime with rotten side effects. Hard to maintain positive outlook despite first clear ct scan and normal ca125 after 3mths. Treatment has to continue until sign of disease back or I can’t stand treatment anymore. I am in Scotland so drug regimes may be different but appreciate any helpful input.

[Lyndy]

No experience to share I’m afraid but just wanted to send you a message of support...side effects sound insignificant but they really are not! xx

[Doodledays in reply to Lyndy]

Thanks for taking time Lyndy.

[Grace-53]

Hi and you are doing very well with clear scan and normal ca125 after only 3 months. Keep going with the treatment, it’s worth suffering some side effects for a good result.

Grace

[AlaNtO]

Sorry to hear you have bad side effects. Paclitaxel affects each of us differently. The first time around 15 months ago was like being in one of those cage fighting bouts. It was brutal. However Paclitaxel does work. The bowel movements from one end of the pendulum to the other came right with regular use of Movicol. It takes 3 days to go through the system. So full strength the day before the IV infusion and next 2 days and then half a sachet daily during the week. My GP also endorsed this and he is into Palliative care. Neuropathy in feet with oedema has also been a problem but exercise does help and put those feet higher than the rest of the body. Best wishes and never ever give up.

[Hopefulgal1]

Great to see clear CT! But hard to manage side effects - ugh. I too would suggest laxido or movicol and gentle movement. I didn’t get much neuropathy with Taxol but if you do I’m your hands ask for ice mits if they have them? Speak with your nurse and see what she suggests too they must have seen it all!! Good luck x

[Chick44nzrn]

Hello Doodledays .sorry to hear you are having horrible side effects as indeed I am . Not so bad initially but up to week 18 now and seem to get everything on the list ! From simple ones to more challenging e g nose bleeds diarrhoea, aches fatigue neuropathy , numbe feet n hands , insomnia, etc and today bloods taken so might have to be admitted , if nutropenia . It’s difficultto keep faith at these times but

Somehow we do get through !

I wish you the best of onco help and advice and hope that there’s more light st the end of the tunnel, and you are given the very best of care and attention to help get through this difficult time

Denise x

[viduanujranu in reply to Chick44nzrn]

I am facing same. Mine is avastine n irinotcane. Side effects same as urs. Terrible. Don't know how to get respite.

[Chick44nzrn]

Hello again ! Good news to pass on as my last post was not so cheery ! After some sudden high temps out of the blue the blood tests were healthy so chemo went ahead and my temp came down with a few doses of ciprofloxacilin., this I’d tupical that there is always expert help with side effects !! I felt pretty toxic yesterday morning but fine by evening !!

Today only dry metallic taste , sore throat better than last 2 days and ready for a good day after a steroid with breakfast !!

Hope you are well today and don’t worry if you get side effects from Taxol as they truly are doable !!

Denise x