Hi everyone, apologies for long winded message but so nice to find people who have had similar experiences and can relate, felt a little alone since Dec!
I had a laparotomy on Tues, the tumour was 16cm 8th Jan and down as a complex cyst with nhs but private scan 2 weeks later showed it to be borderline and growing a cm a week.
It was 20cm and 1.6kg when they took it out and although showing on the left it was twisted so actually attached to the right ovary!, I had ovary and tube removed and it's been sent off for biopsy. Meanwhile my ca19, ca25 and cea results have come back normal, has anyone had normal results but still found the tumour to be malignant?
I cant help but still think the worse as I had just bleeding to start with but it grew so fast i had terrible backache and fatigue over the last few weeks.
I got a loan and paid privately in the end as I could barely walk and nhs said it could be 2 more months for surgery, the gynae who did the procedure was a benign gynaecologist so there was no oncologist present but he was all I could get as I needed it out and in fairness he did an awesome job as there was no spillage.
Its mad how many different types of cysts there are and i dont feel there is enough awareness out there, after reading about the re occurring i wanted a full hysterectomy but my gynae said until he knows for sure whats inside he didnt want to be that hasty! I defo dont want another one in a few mnths tho am already anxious about nhs not treating it fast enuf and not having anymore money to go private 😕 x