CT scan results in and not good

[bunnyone]

well where do I start, I got my ct scan results in yesterday and not good, my mucinous cancer is back in my abdomen, Doctor said I have several pockets of mucin in my abdomen and that there is nothing that she can do for me any more in Ottawa Canada, now I have to go to Toronto to see a team of specialists in this field, possibly looking at more surgery and chemo with a interperoteneal implant with chemo, I don't think I spelled it correctly oh well, has anyone gone through this?? I am so scared right now, it has only been 7 months since my last surgery to remove everything and now this! This cancer is rare but still cannot believe that they cannot do anything more for me in Ottawa! scared and depressed at this point!! HELP!!!

[Petrolhead]

Hi

I cannot help but certainly feel for you. Is it worth a second opinion or does the trip to Toronto cover that. It might be worth contacting MD Anderson in Texas as a world centre for this type of OC. Maybe they do video call or skype and record can be sent electronically these days so should not present a problem. Just a thought.

Someone may be along who has had the suggested regime and can give you insight. I do not believe it is done in the UK for OC but could be wrong. Have you posted in the mainly American Inspire forum? Lots of ladies who have had all sorts of treatments there.

Best wishes

Fay

another mucinous OC person

[Hidden]

I am so sorry at your news but you are right to have a second opinion, we have to have hope and keep that hope up. You are allowed to feel fed up but try and fight it as best you can/

[lorraine71-Australia]

Hi Love, Chin up go for your second opinion and I'm sure there are options with all the new trials and treatments on offer..Take care Lorraine xx

[Katmal-UK]

Sorry to hear your news, I do hope that a second opinion comes up with something to try xx Big hugs xx Kathy xx

[ellseybellsey]

Sorry to hear your news, hopefully the team in Toronto can give you other options.

Sending you virtual hugs Ellsey xx

[Neona]

A second opinion is good and hopefully you will have access to clinical trials there. My cancer came back very quickly after successful surgery and I went down this route. It involves a lot of travelling but we just have to do whatever it takes!

[Lindaura]

I agree with Neina,

You have to do whatever it takes.

Ring your Cancer Charity there and see if they have any advice for you.

You may have to travel to Quebec or Winnipeg or Toronto, but you have to get treatment.

Look on line for Cancer centres in nearer cities.

It seems strange to me that an important city like Ottawa does not have a centre of excellence there.

But, You definitely need a second opinion.

Also, try to get support help from a family member. Get everyone you can to go online and check out all the latest info available in Canada.

comp-ocpm.ca/english/career...

It helps to have an informed advocate with you when you attend appointments.

Best wishes,

Laura

[lynn6156]

Definitely get another opinion. I have mucinous too and at the last appointment I said 'what if it comes back?' and the doctor said 'there are new drugs coming out all the time. Two new ones this summer - we'll find something!'

I didn't ask which drugs (I was having a bit of a tantrum) but I'm guessing she meant Parp inhibitors. Anyway the point is that it's always worth asking someone else.

Lynn

x

[busbee3]

I know how scary it is to have a rare cancer and be faced with fewer options than others. I've been to Toronto to PMH (Princess Margaret Hospital) for a second opinion on Low Grade Serous. PMH is a leading cancer centre in North America. I had a much longer trip than you would, going from Ottawa. My oncologist there is Dr. Amit Oza, and he's the head of the gynecological division. If you haven't looked at Dr. David Gershenson's (MD Anderson, Texas) research and treatment on mucinous, it might be helpful before you go to Toronto. You can find a couple of presentations of his online (called Treating Rare Cancers or something similar). However, PMH consults with MD Anderson, when necessary, so you don't have to actually go to Texas to benefit from their expertise.

[scraggs]

Bunnyone I did not see this post until today.That is terrible news.Its too bad you can t get treatment closer to home. There are new treatments coming out. Get a few opinions because not all Drs think the same and some are more up to date on research than others. I don t even know how to get to responses from people on this site.Please let us know what happens .I could be in the same boat as you. I havn t had a scan yet. Hang in there.