Hi all. As promised, my results. Not good though.
The carbo/caelyx has done zilch and all the tumours have marched along merrily this last six months as the avastin alone didn't do anything either. I'm going to start on Hycamtim in two weeks, once the carbo/caelyx is out of my system. Chances are I'll lose my hair again but I won't have the skin problems. No more dust then. I'm also carbo intolerant now so no more of that, unless I'm still around in a year or two and they try again. My onc was so sad. He cannot hide his feelings so I knew as I walked into his office what to expect. But, it still came as a shock. I was ok the day after but today I'm really down. Can't stop crying and most of it is because this next treatment is weekly for three weeks and one week off which means we have had to cancel our trip back to UK. I shall miss my best friend's birthday, my grandson's birthday, my daughter-in-law's birthday and my own pre-birthday party, as well as seeing my precious boys again. It has hit me very hard and some low life has stolen my big girl's knickers from me.
Don't know anything much about Hycamtim - think it's called Topotecan too - as I don't want to google too much. So, any anecdotal advice will be welcomed. My mind is telling me that the best options have eluded me now and I'm on the slippery slope to the end. Hubby's brilliant of course but I know he's hurting. We are both so disappointed. Onc assured me that I'll still be here to celebrate my actual 70th in December, unless I get knocked down by a car. A big stick-out-neck thing to say but I'll cling to that. I'll come back and haunt him if he's wrong. He said a couple of times that he has lots of drugs to try and he'll keep going until he finds the one for me. His dream, he said, is to take a piece of tumour and hit it with all the known chemo's to see which one he can give each patient. His eyes actually filled up when I said that perhaps for our children or grandchildren but not for me. I am so lucky to have such a wonderful onc who is still passionate about his work and so caring about his patients. So often they become blasé and cold.
So, if anyone has seen my big girl's knickers would they please send asap as I really need them at the moment. Love to you all xxxxx