As we expected last Fri our Onc said NO to more chemo, said it will not work. Now this is the same Onc that said the same 18 months ago and was then prepared to 'give up' until i persuaded her to refer us to the Marsden for a 2nd opinion. The Onc said all they will do is a trial, but the Marsden gave my wife the chemo that i had asked our Onc for.
Strangely on Friday our Onc said more chemo (carbo or carbo plus ???) will be too harsh and wouldnt work. HOWEVER she then followed that up and said but i will refer you to the Marsden for a trial if you like........IMO a trial would or could be harsher, and besides my wife isnt strong enough for a trial anyway. But for me it was strange that she said no to Carbo, a pretty easy chemo the scheme of things but would refer us into the unknown for a trial.....
Then on Saturday in the post we received a copy letter from our Onc which basically said (but we hadnt known before) that the CA125 had fallen from 3200 (mid feb Marsden) when they stopped Caelyx after 3 sessions, to 2500 on March 1st.
Had i been given the figures then i would have naturally assumed that Caelyx kicked in at the 14 week stage and said no to the Letrozole which we were taking not knowing if my wife was ER positive or not.
So yesterday i emailed the Onc and she said different machines give different readings. Perhaps so but they didnt 18 months ago and not so wild a swing as this.....i think.
So we are mulling it all over .....anyone got any thoughts on the Onc and/or the swing in CA125 levels being purely a machine difference??
LASTLY glad to read you all had a good time in London.