What next for me : Well It looks like the Doxil... - My Ovacome

My Ovacome

18,349 members20,425 posts

What next for me

sandirara profile image
2 Replies

Well It looks like the Doxil/ avastin mix is not working for me my Ca125 has gone up to 11,000 I was diagnosed 3c in 2015 and did taxol/ carbo then gemzer/ carbo then zejula and now dioxin/ avastin .. Doc said I have 6 to 8 months if I do nothing and he is suggesting maybe weekly taxol again, no real trials . I want more choices is anyone on an immunotherapy trial.. I am high grade 3c pdl neg Braca neg . Its been a little over 2half years on this journey and I have done so many treatments already . Scary stuff.

Written by
sandirara profile image
sandirara
To view profiles and participate in discussions please or .
Read more about...
2 Replies
BeeWild profile image
BeeWild

Hi sandirara I’m sorry to hear your troubles xx

I’m currently on a trial at the Christie in Manchester

I am BRCA negative, platinum resistant on my first recurrence 4 months from successful first line chemo

The trial is called CEBOC

cardiff.ac.uk/centre-for-tr...

Not sure if this would be suitable for you and not sure where you’re based x

Keep on trying sweetie something will come up and let us know how you’re doing xx

Bev

OvacomeSupport profile image
OvacomeSupportPartnerMy Ovacome Team

Dear sandirara

I can see from your profile that you're based in the US - I'm afraid I don't know enough about the US healthcare system to advise you fully as to the processes, but you could look at the Clinical Trials.gov website which is a US-based site listing worldwide clinical trials. You can search under ovarian cancer. The link is as follows:

clinicaltrials.gov/

You could then have a conversation with your oncologist about possible trials or referral to a larger oncology centre which may be running trials? There is information on asking for a second opinion in the pinned post to the right side of the page. It is written from the point of view of a UK-based system but much of their information will be relevant for the US too.

I hope this information is helpful.

Best wishes

Anna

Ovacome Support Service Manager

Not what you're looking for?

You may also like...

carbo/gem

I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin,...

What Next?

I have been on this forum for a few years now, and have seen that treatment usually follows the...
27-359 profile image

is there any hope for me

I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I...

What's next?

Hi everyone - my mum has already had 2 courses of chemo following her diagnoses and op nearly 4...

Unsure what to do next

Hi everyone, hope you all have a good long weekend and that you are feeling positive. I'm wondering...
cah48 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.