Feeling emotional : Hi ladies My scan results... - My Ovacome

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Feeling emotional

Salmon45 profile image
15 Replies

Hi ladies

My scan results were as i suspected. Another reacurance. Feeling so down. My third line treatment will be paxol on its own. One a week for 3 weeks then 1 week off for 6 cycles. Has any of you ladies had this treatment on 3rd mine. So need some possitive vibes right now.

Maxine xxx

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Salmon45 profile image
Salmon45
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15 Replies

So sorry to hear this,any recurrence is draining and tiring even to think about it, I haven't had this drug yet but wish you the very best

Seasun36-uk profile image
Seasun36-uk

Hi Maxine. I haven’t had to have that regime but just wanted to say hang in there and we are thinking of you. Sending love & hugs xoxo

henrib profile image
henrib

Thinking of you Maxine, I haven't had this regime...yet either. It is okay to feel down. You will rally. Valerie xxx

January-2016-UK profile image
January-2016-UK

I’ve not ling finished this regime. It’s much easier to tolerate than carbo Taxol. My peripheral neuropathy increased somewhat and I was a little tired with a little diarrhoea followed by a little constipation each week. It was quite successful reducing my CA-125 from the 600s to 46, now 96. I was left with just two sites of disease in the lymph nodes which have however started growing again.

Good luck, oh and dig out your wigs and scarves!

Helen

Salmon45 profile image
Salmon45 in reply toJanuary-2016-UK

Thank you Helen I have already got the wig out ready 😥 only just got my hair back xxx

Di16 profile image
Di16

I had it as 2nd line, & found it reasonably easy to tolerate. I had a bit of trouble with neuropathy, but otherwise it wasn't too bad. Di

Salmon45 profile image
Salmon45 in reply toDi16

Thank you Di xxx

Maxjor profile image
Maxjor

Did not have this treatment but sending hugs. The realization that your suspicions were true is a hard time but once past the initial "sadness", it does get better. I have read about many women on this and they say it is very tolerable----and I am not sure they even have that one week off which may make it even more tolerable. Wishing you luck and great results.oxox

Jessica-DianeB profile image
Jessica-DianeB

Very hard news to take Maxine, I think evert recurrence is, somewhat harder?

I face this regime to as 2nd line Caeylx hasn’t worked for me.

It’s incredibly vain and the least of my worries, but not looking forward to being a sweaty, bald headed person through the summer, it was hard enough in the winter.

I was lucky that my Ned months were June to August so I got to spend quality time with my children. Now facing a whole summer on chemo is really getting me down.

At the very least we can come on here and say how we feel and everyone gets it. I feel for you, dealing with the recurrence and facing chemo again. It sometimes feels previous treatment had all been for nothing. But who knows without it where we would be.

Enjoy the days you can between now and starting, be kind to yourself, it’s ok to feel as you do xxxxx

Salmon45 profile image
Salmon45

You are so right. I went through chemo through the summer last year and will be this year 😥 I did not lose my hair last time but did the time before so I have only just got it how I like it. I am trying to stay possitive and it helps alot talking on here as I never let my guard down in front of my family. I feel the need to protect them. Keep in touch ad let me know when you start xxx

Jessica-DianeB profile image
Jessica-DianeB in reply toSalmon45

Will do, you too. Have you a starting date? Xx

Salmon45 profile image
Salmon45 in reply toJessica-DianeB

No not yet they said about 2 weeks 😥 xxx

Coolroses profile image
Coolroses

Just had my first weekly taxol this week. 3rd line treatment. Supposed to be easier to tolerate- let’s see! Good luck with yours, mine, everybody’s!!

Salmon45 profile image
Salmon45 in reply toCoolroses

Good luck to you I have not had my start date yet I too am 3rd line xxx

Jessica-DianeB profile image
Jessica-DianeB in reply toCoolroses

May luck be with us all xxx

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