Feeling Terrible

[1916]

Morning ladies.

I had second Taxol on fri I felt my tummy was swollen again, they examined me and yes asites is back its just under 4weeks since last drain. The consultant thought I wouldn't need drain again I worried the chemo isn't working !! So I'm waiting for appointment hopefully this week to drain it sgain. I've had a terrible night not sure weather it's the chemo or asites been sick with no sleep.

Sorry to be so negative two and half years is catching up with me it's so relentless.

Love to all of you

Ann xx

[dexta2005]

Hi, I had to have two drains in three weeks. The last one two weeks ago. Since I have started my first course of chemo and although I can feel the fluid, I hope it may have slowed down. I was warned that I could need further drains through out my treatment and totally understand how you feel.

[1916 in reply to dexta2005]

Hi dexta

Thanks for reply, do you feel nauseous as well before your drain and do you have to stay in over night?

Love Ann xx

[dexta2005 in reply to 1916]

Hi again, thankfully I did not feel sick but gagged a few times. But the last time I was so full, I had difficulty in eating and drinking and the uncomfortable feeling and back aching was awful. Tht time, I stayed in 1 night as the drain went in late morning and came out the next afternoon, the time before 2 nights as it was put in later. I totally understand how you feel.

[1916 in reply to dexta2005]

Thank you dexta

I don't feel so alone it seems to panic me, like I feel that ill will I ever get back to how I was on my other treatments.

Love Ann xx

[dexta2005 in reply to 1916]

Hi, I'm on Paclitaxel and carboplatiol (Taxol/Carbo) which so farI have only had one (day 11 today). I know how panicky it feels and at the moment I have no energy to walk very far, but I'm sure you will get back to how you were and myself also.

[1916 in reply to dexta2005]

Thank you so much for your support, I wish you well . Please keep us updated .

Ann xx

[Cbyrdie in reply to dexta2005]

Dexta my first round of same for first reoccurrence was miserable and I was so tired and sore. I requested Physical Therapy (and dexamethozone < sp, step down) and although it was exhausting going I’m glad I did. I just finished round 6 and feel stronger and better than I did with my first round of same treatment almost 5 years ago. Just a suggestion ❤️

[dexta2005 in reply to Cbyrdie]

Thank you, at present I feel the weight in my tummy is what stopping me from walking to far, but I am keeping active in the house and up and down the stairs.

[Madmolly]

Sorry to hear your feeling so low nothing worse than lack of sleep for pulling you down. Hoping another drain sorts you out. I have just had my 3rd chemoplatin. Taxol and 2nd avastin Large scan due on Friday to see how much cancer has shrunk and hopefully op on 23rd Jan. Achinglegs and constantly tired have oc stage 4 am on Trials so follow up with 3 more chemo taxol and astavin after op taking the lot away plus omentum. Hoping I'm up for it. Stay with it Ann and hopefully 2020 will be better for you. Wishing you the very best

[1916 in reply to Madmolly]

Bless you Molly

Thank you for your kind words , you are an inspiration and still thinking of us. Your right let battle commence again ,l am feeling better today after a nights sleep will hopefully get my dog on a walk some normality.

Love Ann xx

[Madmolly in reply to 1916]

There is always something to keep us going I am also having a bit of respite with leg pain. It must be nice having a dog as a companion what kind is it. Enjoy your walk and pleased your feeling a little better

[1916 in reply to Madmolly]

Hi molly

He's a golden Retriever and my mate, sorry you have the leg pain keep us updated please Molly.

Love and best wishes

Ann xx

[Natsmb]

I'm so sorry about that. That stuff just stinks. Don't worry too much yet. I've had a sights and effusions off and on for a while and the cancer hasn't been coming back or progressing. the doctor really can't explain why it's there. He thinks it's just a response of the body to chemo over time

[1916 in reply to Natsmb]

Hi Natsamb

Thank you for you reply , I hope your cancer stays away fingers crossed. I have a new sight on the surface of the liver hence the asites and starting chemo again.

My cancer marker had halved when I saw consultant and no asites it appeared again Thurs.

Anyway love to you

Ann xx

[LittleSan]

Hi, I'm in the same boat, 3 drains in 4 weeks! The last one being 2 weeks after starting carbo caelyx. Arghhh, does this damned disease ever give up?? I too started to panic and made myself thoroughly miserable but I've changed my mindset determined not to waste precious days with worry. I'm feeling the benefit of the drain and my chemo side effects are subsiding so today I'm going to make the most of things! I've never had to stay in, they're keen to get me home because there are lots of admissions of flu and other viruses.

Love and empathy winging their way to you. 💐😘

[1916 in reply to LittleSan]

Hi San

Thanks for reply that's good they don't keep you In that's the part i hate.

You are great cheered me up a good attitude i will dust myself down and fight another day .

Love Ann xx

[Cbyrdie]

I pray your second drain takes your pain away and helps you feel better❤️

[1916 in reply to Cbyrdie]

Thanks Cbyrdie

It's my 3rd drain last one was 4weeks today they took 7 litres last time just hope chemo does its job .

Thank you so much for reply.

Love Ann xx

[Cbyrdie in reply to 1916]

Oh my gosh! That’s a lot! 🙏🏻

[Cynthia18 in reply to 1916]

Omg that's alot at one time.whrn you starting feeling to uncomfortable you should contact for an appt to get in earlier.theres no need you to suffer like that.

[1916 in reply to Cynthia18]

Thanks Cynthia .

Had it done now will post update in a bit.

Love

Ann xx

[Gemimablackvelvet]

Hi 1916, sorry you've been feeling so down and worried. No need to apologise for feeling negative. So many well meaning people tell us to be positive and quite frankly I find it impossible. My tummy is swollen all the time. I can never tell if it's due to general immobility (I have a Neurological condition as well as stage 3c OVC) or if it's possibly ascites returning. It never seems to have gone down since my original diagnosis early 2018 when they drained 8 litres of ascites before chemo, a hysterectomy and more chemo. I'm now on my 5th cycle of carbo/caelyx after a recurrence. How can we tell if we have ascites? Tonight my tummy is tight and bloated. I see my oncologist on Thursday 16th Jan. Do I wait and see what he has to say? I don't know why the hell I'm going on about me when you're obviously feeling really bad but I don't know how we can detect ascites without seeing the oncologist or having an ultrasound before we go.

I hope by now things are better for you and the appointment went well or goes well a the case may be. Two and 1/2 yrs down the line Ann. Keep going, you can do it. Who knows when they'll find answers for us all. This disease is relentless but so are we. Try not to despair (easy to say not easy to do)

My love to you,

Angela xx

[1916 in reply to Gemimablackvelvet]

Hi Gemima.

Thanks for reply, I had drain Thurs and Fri feel relieved hope that will be ot and the chemo kicks in. I think they removed 5 half litres in the end a bit less then a month ago which was 7 litre.

It is truly awful disease to live with so unpredictable one minute your doi g fine then it can all change!!

I hope you feel better soon , my next chemo Taxol is on Fri hopefully.

Sending you love

Ann xx

[1916 in reply to Gemimablackvelvet]

Meant to say you sound like you have asites be persistent they can tell by feeling your tummy its really hard and like a band round it

Ann xx

[Gemimablackvelvet]

Ok I will thank you Ann.

Love to you

Angela xx