Hello all. I am brand new to this forum and would love to find some help and hope from my fellow cancer sufferers. I finished chemo at the end of July, 2016. When initially discussing my chemo drug, Cisplatin, the pharmacist told us to look out for difficulty with buttons and picking up coins, and tingling and numbness in the toes and fingertips. It didn't seem to happen during chemo, thank goodness.
But after my final treatment, I noticed numbness and tingling in my toes and fingers, and it did not fade. I found it irritating, but not debilitating. Oh well, the small price of saving my life I thought. Then a month and a half later, BOOM, it hit me hard! The numbness and tingling rapidly crept up my arms and legs, and every nerve shrieked with pain. Practically overnight, my ankles, knees and hands and wrists became weak. I hung onto stair rails and walls as my balance was gone. My hubby had to hold onto me when going out to save me from falls when I stumbled. I couldn't get up from a crouched position without help, and my feet screamed if I walked too much. I dropped things. Fasteners, lids, caps, buttons and ties are now all too difficult, even writing with a pen. In order to do my Christmas shopping it was online from my couch, and via wheelchair around the mall.
My oncologists admitted that "Yeah, Cisplatin is a real culprit for that." They did not question the cause of my neuropathy, as they knew I was strong and healthy prior to chemo, other than having cancer.
No one described how awful it would be and how it would change my life overnight. I am 50 but now feel like I have the body of an 85 year old! They offered me pain meds and will send me to a nerve and pain specialist. No one knows how long it will last, but most patients are better within a year after chemo. Some never recover from full blown neuropathy.
I am interested in commiserating with fellow sufferers, but most of all I would love to hear from those who suffered and then recovered. Please, even though you are fine now, take the time to comment, so that we who suffer can have hope. Please!!! Tell us how long did you suffer? What were the first signs of recovery? How did you cope?