Ppc: So, went to my oncologist for check up and... - My Ovacome

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Ppc

Rlenesue profile image
27 Replies

So, went to my oncologist for check up and ct scan results. Seems like it's back. Currently surrounding my liver, stomach, spleen. She has scheduled a pet scan too for 2 weeks from now but,starting chemo on wednesday. Doxil and Cabo cocktail. 6 does, once every 4 weeks. Anyone used doxil?

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Rlenesue profile image
Rlenesue
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27 Replies
Nicky100 profile image
Nicky100

Sorry to hear your news. What a shock for you.

Have they suggested surgery first?

By far your best option for success.

Love Nicky

Rlenesue profile image
Rlenesue in reply to Nicky100

No, don't need surgery or biopsy. These tumors have not invaded my organs but are in the fluid surrounding them. This is the joy of ppc.

Nicky100 profile image
Nicky100 in reply to Rlenesue

Oh OK. Good luck and lots of love xx

Rlenesue profile image
Rlenesue in reply to Nicky100

Went through surgery, debunking, etc with first pls diagnosis

Purple-iris profile image
Purple-iris

Hi

Haven’t had this chemo but wanted to send love and best wishes for your treatment and say how sorry I was to hear that your cancer is back . Glad your team have sorted a plan and hope it works well for you with minimal side affects . Love and best wishes Kim x 💜

Rlenesue profile image
Rlenesue in reply to Purple-iris

Thank you so much purple iris

Purple-iris profile image
Purple-iris

Sorry to hear you are also needeing chemo must have been such a shock after 5 years . Hate this OC . Sending love and positive vibes for your treatment and hope side effects are minimal and your OC is well and truly sorted . 👍

Love and best wishes Kim x 💜

riverside profile image
riverside

Hi. Well Doxil is another name for caelyx of which i have had two lots combined with carboplatin. It was ok the first time, harder the second but up until June last year I was having chemo every year so I expect there was a bit of an overload in general. Not as bad as Taxol which I had weekly for six months at the beginning of this journey. Watch rubbish TV and drink stacks of water. Good luck! Marie

Rlenesue profile image
Rlenesue in reply to riverside

Thank you riverside. I didn't know it was the same drug. Are the side effects worse than the taxol with carbo?

Di16 profile image
Di16

I had caelyx (doxil). Unfortunately it didn't work for me, but I didn't find it too difficult. I had it on its own though, not with carbo

Rlenesue profile image
Rlenesue in reply to Di16

Are you ok now, d16?

Di16 profile image
Di16 in reply to Rlenesue

I'm currently having hormone therapy. Di

Rlenesue profile image
Rlenesue in reply to Di16

How are you doing with that?

Di16 profile image
Di16 in reply to Di16

Had my 3 month appointment on Tuesday, and they are happy for me to continue for another 3 months. Little in the way of side effects. I go back in April to see if I can continue any longer or need to try another chemo. I hope your chemo works for you. Di

Hi, I have had Caelyx also called Doxil as second line treatment, I found the side effect hard but managed the 6 treatments with some success ,I have now just finished 8 rounds of Carbo/ Caelyx as 5th line of treatment, with very little side effects and good results my 125 was 1300 and finished at 56, my last scan showed I'm stable , stable is good,

My oncologist was about to put me on Caelyx as maintenance Caelyx has been a good chemo for me and you know we are all so different when it comes to treatments.

The reason I'm not going on Caelyx as maintenance I've been offered a trial for a new drug for recurring ovarian cancer.

I'm going to a meeting on Tuesday to make up my mined if I will or not.

If you type in Caelyx/Carbo in the Search My Ovacome at the right hand top of the site ,then enter you will find earlier post from our lovely ladies about Caelyx and tips on how to handle side effects, they can be managed.

I hope this treatment give you good results take care Lorraine xx💙

Rlenesue profile image
Rlenesue in reply to lorraine71-Australia

You have been very helpful, lorraine71 and I wish you the best. I will also be doing the parp inhibitor as maintenance as clinical trial. I hope it works for you.

lorraine71-Australia profile image
lorraine71-Australia in reply to Rlenesue

Post when ever you need help.good luck with the trial..Lorraine xx

Rlenesue profile image
Rlenesue in reply to lorraine71-Australia

Thank you so much, Lorraine. I had my first of 6 doses of carbo/caelyx today. So far so good.

ellseybellsey profile image
ellseybellsey

Just wanted to send you hugs, i am sorry to hear you are going back on chemo.

Hugs Ellsey xx

Rlenesue profile image
Rlenesue in reply to ellseybellsey

Thank you ellsey..

Juliette35 profile image
Juliette35

Just wanted to say that I am sorry to hear you are going back on chemo. I will be having the carboplatin /paxitaxol which was my first chemo in 2015 starting this Tuesday. Julie xx

Rlenesue profile image
Rlenesue in reply to Juliette35

So sorry for you too...good luck

Juliette35 profile image
Juliette35 in reply to Rlenesue

Just got letter off my oncologist and just having carboplatin weekly. I thought it would be every 3weeks. Xx

Rlenesue profile image
Rlenesue in reply to Juliette35

I wonder why they omitted the 2nd drug? Maybe too toxic? Last line of treatment I had carbo/taxol for 2 consecutive days and then the cisplatin on the third day. Every other week I had that regimen for like 17 rounds. Saying it was tough is an understatement. But it had me in remission for 1 1/2 years... good luck and keep posting.

Maggiemo19 profile image
Maggiemo19

I have just had my 3rd cycle of caelyx alone. My scan after 2 nd dose shows my peritoneal cancer has remained stable. Have peritoneal now after oc. Side effects are bearable. My hair, eyebrows and eyelashes have all grown back at tremendous rate since November. X

Rlenesue profile image
Rlenesue

Thanks, wonkylegs... carbo for me too, again.. hope you feel better soon.

Rlenesue profile image
Rlenesue

Yay!

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