I made a promise to let you all know how immunotherapy--offered as first relapse treatment was going and yesterday came the results. Its been 8 weeks, 4 infusions--lots of side effects, and then the scan. I have progressed. It was in a small area on one side of my abdomen and now on the other side of the abdomen and the "vaginal cuff" (have not looked up what that is yet). My ca125 was 84 when I stared and now is 256. Onc said I should go on standard treatment to get back to NED, then a PARP (Olaparib) for maintenance. He said there are more trials IF (I love when they say IF) I need them later.
Its strange, I feel like crying when writing to you all---my safe place. Almost like I failed and disappointed my family. They of course don't feel that way but this worries them and then I just feel worse.
It was actually this site that got me to ask for different treatments. My onc wanted me to consider Carbo Taxol again and I said I wanted Carbo Doxil because I relapsed after in only 7 months after Frontline. He did agree, but said it will knock me out of a few clinical trials (having Doxil now). But said it was a good choice because Doxil is less harsh than Taxol. One treatment every 4 weeks for 6 months, then (I guess if NED) onto a PARP. He said if Rubraca is approved for maintenance by then, he will consider that one too but for now he thinks Olaparib.
I knew it was a long shot but it has worked on others.
They tell me Doxil will make my hands and feet crack and possibly blister and wants me to use lotion 4X a day (how do you use lotion on your feet 4X a day when you work?) And do any of you have any words of wisdom for Doxil side effects? And was your regimen the same? Every four weeks? They also said I could have become allergic to Carbo after frontline. I didn't know that. Starting on steroids a few days before first treatment. Any advice, input, etc. more than appreciated. Gloomy outside, gloomy in my head. oxoxox