Good result yesterday!

[triplets]

Morning lovely ladies. Went for my 3 month check up yesterday with the surgeon, his first words were "you are looking fantastic". Told him I felt it, was feeling very well. He then did his usual examination/internal and said all felt fine. My last bloods in June were 8 and MRI was also good, he had done that because of the lymphedema appearing. That also is good, I do wear the stocking every day but my leg looks back to normal! So as its almost a year since I finished chemo (I was diagnosed in July 16 stage 1c) he has moved my appointments to 6 monthly.......I was not expecting that! Best Christmas present ever! xx

[January-2016-UK]

🍾🍾🍷🍷🎉🎉 Time to celebrate. You must be feeling over the moon.

All the best!

[Hidden]

Great news on all fronts.

I was 1c grade 3. I think I'd have mixed feelings about moving so quickly to 6 monthly checks, I've been on 3 months or less for 7 years now.

I know it makes life easier to be on 6 monthly, but are you happy about this?

Enjoy the celebrations and feeling well. x

[triplets in reply to Hidden]

Yes because I think the anxiety of every 3 months doesn't do me any good, I get in such a state. I don't get bloods or scans done anyway unless I have any symptoms and he has told me just to lift the phone at any time if I have any concerns. I have faith in him. Have you been all clear since you diagnosis? I am stage 1c2 what does 1c3 mean Mac? Do hope you are ok. xx

[Hidden in reply to triplets]

2 and 3 are indications of how aggressive the beast is. So it looks as if he's quietly confident that you should do okay. Hooray.

No, if only. The beast getting moving has been picked up, I feel, by my monitoring regime.

I've had 4 lines of chemo and various surgeries, but I have to say I am generally very well.

And you're right we all need to manage our anxiety as best we can! xx

[triplets in reply to Hidden]

Do you always get symptoms or is it generally picked up by bloods and scans? It seems to be a postcode lottery as to whether we get offered them or not. Certainly here it seems to be watch and wait. I am though going to ask my gp to keep an eye on my bloods she has said she would, although at the time of diagnosis my CA was 13! x

[Hidden in reply to triplets]

Hooray... managed to update my profile.

I know it sounds odd but I don't feel I've ever really had symptoms, apart from at the start when I thought I'd pulled a muscle. Only felt ill as a result of the treatment!

Without bloods and scans now I'd be none the wiser. But my CA 125 does so far seem to tell a story. Which then merits further investigation. x

[triplets in reply to Hidden]

Just read your profile........you certainly have been through the mill, hope you have a more positive 2018. xx

[Hidden in reply to triplets]

How funny - I was trying to update it yesterday and had the same problem as others have had. Better luck today perhaps.

Insomniac this morning, I caught up with that TV programme about 3 young people vlogging about having cancer. How impressive they were.

I've not got much to complain about!

Best possible 2018 to you too x

[lorraine71-Australia]

Hi, Alway glad to hear good news, i hope it continues for a very long time..Wishing you and your family a Merry Christmas 🎄🎄,,Lorraine xx

[harpist_UK]

That's great news. Just saying hi here as I'm another one with lymphoedema - mine is in my left arm and hand and I also have the support garment and some exercises to do. It works if you keep at it - sometimes I have a sneaky day or two without the sleeve and it soon shows. Good luck and stay well.

[Purple-iris]

Fantastic news . Celebrate and have a great Christmas. 🎉

Yes we all need to find what suits us as individuals as far as check ups go . I have been on 6 weekly bloods as on Avastin for a year which is due to end in January so even moving to 3 monthly with no maintenance treatment will be a big deal for me to get my head around being stage 4 high grade. My CA125 has so far been a good indicator and have to say I do rely on the magic number for peace of mind as had no real symptoms apart from needing to wee more frequently leading up to diagnosis. For me not having the regular checks would cause more anxiety but I appreciate for others moving to 6 monthly or yearly checks is such a relief .

When I saw the prof at the Christie and asked about how frequently I should be monitored he told me he lets his patients decide what is right for them , within reason ! And appreciates that we are all different , so amazing and reassuring. Could defiantly do with more of this attitude around the country although I suspect with all the cutbacks the pressure is on to increase the length between our visits after treatment .

Stay well and enjoy you celebrations 🎉

Love and best wishes Kim x💜

[badger4218 in reply to Purple-iris]

Have a good Christmas Kim, we are all with you in spirit and I hope you will be surrounded with the good company you deserve😇

[Lewisriley47]

Fantastic news Pam xx

[Hidden]

Fab news triplets. Have a wonderful Christmas 🍾💐x

[Lyndy]

Fantastic! Next stop Christmas 🎄! xx

[Cropcrop]

Awesome news 🍾🎁 and so very well done. I was diagnosed the same stage (1c3) and I’m on 6 monthly appointments too and have been for 2 years, at first it seems odd after going weekly then monthly and then quarterly but the time scale now stays at 6 monthly appointments until they discharge me (🤞🏻), there is always the option to ring my team should I be worried at any point so they’re still there for me and I’m sure yours are there for you too.

Have a fantastic Christmas and a lovely celebrate and keep as well as you possibly can be ❤️Xx Jane

[Sunfleury-UK]

THat's fabulous, so very pleased XX

[Lynne65]

Good for you. I am stage 1c grade 1. Finished chemo in February and had no evidence of disease scan in March. Still on 3 monthly review. As with you my Ca125 has always been normal - 13 at its highest - so listening to my body and being attune to changes is my only indicator and then a scan is requested. A couple of months ago I had a bloated feeling in between reviews and I called my Macmillan Onc Nurse who immediately requested a scan - thankfully I had the all clear but as withbyou it is nice to know they are there for you when and if you need it. Take care and enjoy the Christmas festivities 🎄. Lynne 💞

[triplets]

Thank you all so much, I think the key thing is to be aware of any changes we don't feel are "normal". My CA as I said was only 13 in the beginning, so I don't think I can rely on that. I go a lot by my experience with my husbands cancer, he was diagnosed with bowel cancer stage 4 in 2008 and is currently in his 7th year of remission. I used to watch him like a hawk and packed him off to the consultant if I thought anything was amiss. I fought tooth and nail to get him on a trial when the oncologist was going to give up on him, he was put on it and hasn't had chemo since, that was 2010. We are all on our own journeys, each of us will have diversions......but one day they will find that magic cure we all so desperately need. Much love to you all. xx

[Neona57]

All good news-well done and Merry Christmas!

[Katsmum]

What wonderful news and especially just before Christmas so have a great worry free time!!

All the very best

Jane x🎅🏻🛍🍾🎄

[Chezp]

Fantastic news. Enjoy your new freedom. X

[ShropshireJo]

Great news. Have a very Happy Christmas 🌻🌸🌺🌼🌹

[triplets]

Thank you all..........have the most wonderful Christmas and I wish you all a very healthy 2018. xx

[Maxjor]

So so happy for you and Merry Christmas!! Your first (early) gift! And what a gift.

ox

[chrissapam]

great for you....made me remember I did not send you my triplet photo...will do that!! Chris xx

[triplets in reply to chrissapam]

ooo yes please I would love to see them, Have a lovely Christmas and a healthy 2018. xx

[Caroles1]

Hi lovely,

I was 1c too, had ascites and had 6 months taxol/carbo and get bloods and exam every 3 months and a gynaecologist internal every 6 months.

I am happy with that and you need to think of what you are happy with.

It sounds amazing and you have come so far,you know your body as I do and I think we will both know if things are a concern.

Enjoy Christmas,just keep an eye out as we all do,

Well done

Carole xxx

[Hidden]

brilliant news, keep up the good work!

[triplets]

It is interesting though isn't it as to who gets offered a routine blood test, the approach here is watch and wait. I know my bloods in the very beginning weren't helpful CA was 13. I have though got a good gp who is willing to do one for me, so that's also peace of mind. . x

[Rossie15]

Well Done, I too had bad lymphedema in my legs after the operation for a number of months, it was lot of hard work and diuretics to get them back to normal, but they are now, praise God, I really wondered whether they go back to their normal size. Rossie